Hi all,
ive been off a while i started chemo in june its been a very up n down time… i was intially diagnosied with breast cancer in march, i had lump removed and was then found to be in 19/19 lympth nodes i was then told from a ct scan i had bone mets in pelvis and spine and that they was not going to offer me chemo a that stage, i was then asked to come back to see consultants to be told they didnt think it was bone mets after all and they thought it was just arthritis and they wanted to confirm that with a PET scan, i then was told that the results was inconclusive and the results report states that the lesions on my spine are conclusive with bone mets a 8mm area that they are still unsure about… the treatment plan was then changed to 6 cycles of chemo, then down to 4 because they didnt think my body could take 6 i have had 2 lots out of 4…
I just wondered if anybody reading this has had the same or simaliar results or uncertainty???
i feel in limbo as they are still not able to confirm either way… will they ever be able to??
xxx love rose xxx
HI Rose, It must be so hard to live with uncertainty over something like this. There was never any doubts about my dx - the bone mets had spread to so many parts of my skeleton! I am sure they will be able to tell you conclusively at some point. I think that after the 4 chemos they will be scanning you again to make comparison with the first set of scans. Hopefully from those scans they can confirm one way or the other, if not they might need to wait a while and then scan again because if this is bone mets there will be changes. Do you have secondary breast care nurses at your hospital? If so why not have a chat with her and find out what the plan is once the chemo is finished. They are usually very helpful at liaising with your oncologist and maybe getting answers to some of your questions for you.
Meanwhile I think you have done a good thing to come back on the forum and chat to the members here. It would be great if you were to come back soon and tell us that you do not have secondaries, but if it is the other way I’m sure you will find a lot of support here.
Dawn
xx
Hi Rose
It sounds like you’re living with a lot of uncertainty which must difficult for you. As Dawn has said it might help to talk things through with a secondary breast care nurse if you have access to one. Alternatively do give the BCC helpline a call on 0808 800 6000. Here you can talk things through with a member of staff who will offer you a listening ear as well as emotional support and practical information. Lines are open Monday to friday 9 to 5pm and Saturday 10 to 2pm.
Best wishes Sam, Facilitator
thank you ladies for replying…
Ive had 2 lots of chemo my 3rd cycle on friday, 1st lot wasnt too bad but the second i felt like id been hit by a 20 ton truck… my consultant did mention doing a bone biopsy but said the area was so small and it would be very difficult they wanted to give chemo a go, hopefully i will get some answers either way!?
thank you so much for replying xxxx
love rose xxxx
Just found this and wondered how you ladies got on. They think I have mets but slow growing due to Examestane im already on. I’ve just had a cut which showed no change. Bone scan 6 months ago showed several hot spots so still no clear diagnosis. They just say they think it is mets and will redo all my scans in 6 months. Need to see pain clinic for pain management in meantime