Hi
I am new to this forum but I feel like I am back on the rollercoaster again. 2 years ago I had lumpectomy for DCIS high grade.
This year after my yearly scan I was recalled for follow up scans and biopsy which have been done but I don’t get the results until the end of next week which seems to be taking such a long time.
I am fully expecting at least the same as previously but hoping for less. Slightly nervous that the signs were there in the first yearly scan but have apparently grown in between.
On top of my current headaches which will not go away I am struggling a bit trying to stay positive but doing lots of things to keep my mind from dwelling, however the waiting is just so hard.
Hi #rollercoaster1… Sorry to hear that you find yourself back on this rollercoaster of emotion. There is no doubt that the waiting is utterly unbearable!
It sounds like you are doing the right thing, trying to avoid dwelling on negative thoughts but i know how hard it can be to do that at times…
For me, it helps to notice AS SOON as I start thinking this way and stop the thoughts in their tracks by turning my attention to something else…the more I train myself to do this, the better I get at it (although I still have my moments)…
Other times, I just have to let myself have a good cry to release all the negative energy and tension that’s built up…A good cry makes me feel so much lighter… but you’ve got to do whatever works best for you…
Good on you for seeking out this forum, there is so much togetherness and support to be found here, makes us all feel less alone…
Look after yourself and keep us posted on how you get on…
Welcome to the forum, we have all been there and now we are here for you, the waiting game is long and hard, keep busy, hopefully you have some support with friends and family.
Take one day at a time, at the moment, look after yourself, please let us know how your getting on.
Welcome to the forum, we hope you find it a helpful and supportive place. As you will have seen from the responses you have already received, you have come to the right place and we hope we can offer you a comforting place to chat things through. We’ll be with you every step of the way.
Sending love and wishing you all the best with your results,
I am sorry to hear you feel back on the rollercoaster and you’re wondering whether they missed something on the first of your yearly mammograms.
When they first found your DCIS was that during a three yearly mamogram?
I go for a lumpectomy in two weeks. They found something suspicios in my 3-year mamogram; but there was no mention 3 years ago. That seemed to be fast, from nothing to intermediate in quite a short time. Maybe we should always have yearly checks?
At the moment they say the results from the needle biopsy indicate imtermediate grade DCIS, but that when they do the operation it may also show higher grade cells. I’m trying not to think about that.
When the consultant showed the breast image the main cluster of calcifications are a relatively small dimension, but he pointed out some smaller white dots further along the duct which could also be calcifications beginning (that would increase the dimension by a third).
Have you told family /friends that you have had a biopsy and await results? Thinking of you next week.
In answer to your question my original DCIS was found on my very first mammogram screening just after turning 50. So I am thankful that we have these but also it’s a whirlwind I was not expecting as everything happened so fast I felt I didn’t have time to really think.
Back then I also did not want to share except with my partner at first, I did read this forum and website along with doing lots of other research but felt unable to share at the beginning.
My partner encouraged me eventually to talk to friends / family about it and I am glad I did it really helped. This time round I am using all the resources I have available and using them as support for me and my partner is really important.
Although I was nervous about the surgery 2yrs ago it all went well and my results from the surgery came back as two smaller lumps rather than one bigger lump which they had originally thought.
I hope your surgery goes well and your recovery is smooth
All the best
Rollercoaster
