I was diagnosed with lobular BC after a recall from routine mammogram. Caught early treatable etc. After MRI showed larger areas now need single mastectomy. Waiting for results of CT scan done on Thurs. Trying to decide if I want the expander implant recommended or just stay flat. Anyone experienced having an expander? All seems very confusing ?
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Hiya,
I too have lobular discovered after early screening mammogram. I will have a single mastectomy early in Feb. I was advised that I may have to have radiotherapy afterwards and so implant is not an option as they are prone to hardening and shrinking when exposed to radio. Might be worth checking if there will be a need for follow up treatment which may influence your decision.
I am having an immediate DIEP reconstruction.
Good luck with your journey.
X
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Thank you for your reply. ‘Radiotherapy may be recommended following surgery’ so I will have to check this.
Definitely worth asking the question then. Wishing you all the best.x
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Hi tracey.
I was diagnosed with lobular bc 8 years ago. Like u it was the mri that showed what it was and size deemed a mastectomy was necessary. During surgery cancer was discovered in my sentinal node so it was recommended i have chemo and radio. I had let my surgeon know that i wanted a tissue expander, which would eventually be replaced. I was told a silicone implant was a no no because of radiotherapy and the effects it would have. I was told after a year i would get reconstruction but waited for 7 years and only got surgery because i complained about discomfort. My tissue expander was so badly damaged that it had to come out. I was given the diep reconstruction, new breast and an uplift to other breast. I did have problem’s and even now i have tightness and discomfort after 19 months. 9 months after surgery i was disgnosed with secondary bc. I had been having pelvic hip pain that was diagnosed as sciatica by GP. I got referred to orthopedics and had an mri which showed spread to spine. Huge shock as u can imagine. I live near Glasgow and i have noticed that other ladies have a different experience that live elsewhere in the uk. I would like to think yours will be better. I wish u well. X
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I keep coming on here to say I think it’s a good idea to go flat. You can have reconstruction later if you can’t live with it. There are so many risks and problems with reconstruction. Good luck with your treatment.
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Thank you taking the time to for reply I’m so sorry you’ve had such a bad experience.