I have been reading some of the threads on here for a while but this is my first time posting. I had my surgery on 8th December and due to my surgeon/consultant being away for Christmas had to wait until 28th December for my results appointment. Everything had gone well with the surgery with good margins etc but because my tumour was a grade 3 they decided to do the Oncotype test. I then had to wait until 17th January for appointment with Oncologist to get my results. Thankfully no chemo necessary but then had another 18 days wait to see a Christie dr to discuss radiotherapy and sign my consent form for that. I have now got my appointment through for my planning day but it’s not until 28th February so still got to wait another two weeks. I have noticed that some of the ladies on the forum that had their surgery at the same time as me are almost finished with their rads and I still have no idea when mine will be starting! Am I right to be concerned or am I worrying for nothing? I am really worried that I should have at least started having my rads by now. I am also worried that I have my follow up appointment with my consultant on 29th March and I may still not have had all of my 15 sessions of rads by then.
Hi hope I can help put your mind at rest. They say it’s normally s window of 12 weeks after surgery to start rads. Please don’t worry done ladies start earlier and done a little later. Have you been prescribed any tablets? Great news that you don’t need chemo too!! Xx
I’m glad your surgery went well. I would like to share my story. Had surgery early Dec with successful results. Had oncotype test as the tumour was large and received results mid Jan. Like you I do not need chemo. Saw onco end Jan to discuss rads but because of seroma and haematoma I had a vacumn and then had to wait for the surgery area to settle. This week I had another appoint with my onco and referred for rads at another hos who will contact me for planning, sign forms etc so it’s likely rads will not start until March, three months post surgery. I have been given hormone meds to take from now.
Please bear in mind we are all different and at different stages of our reatment. Try not to compare your plan to other ladies who are further on or have completed treatment as this will certainly cause more anxiety and we have enough of this as it is :smileyhappy:I trust my medical team and i know they want the best outcome for me. I’m certain your team will want the best outcome for you.
Hi Kaz I would agree with Northerngal, please don’t worry unnecessarily about starting your rads. Do you have an assigned breast nurse you could speak to? I’m sure they would put your mind at rest about this. I have heard of treatment being given earlier and much later than the general rule. So please don’t worry xxxxx
Would also add you are still within the average timescale as you have time up to the second week of March before you hit the 12 week stage. You will be fine! Xxx
Good luck for your planning appointment. Guess you will be on the March radiotherapy thread. Hope it all goes well for you. I will have finished mine on the day you have planning but will bob back on here from time to.time. it’s been a great support and help to me. Good luck xxxx
Hello, I had a second lumpectomy Jan 10th as my margins weren’t clear. Results were fine and I’ve had my rads planning assessment yesterday. The cold weather caused the ct scanner to not work so I had to return back to the hospital 4 hours later when it had warmed up!! I’m due 15 sessions of rads from April 4th, so hope to talk to others who may be joining me:)…I was talked through the breath holding as my left breast was affected and I’m not too confident that I’ll be able to do this for 20seconds when I’m being treated!..any one else done this?
I’m about to start Letrozole, which I’m dreading as SE seem to be quite terrible?