I think we feel every little thing when we are so worried and normally you wouldn’t notice half of its, it would be like water off a ducks back. We had parking ticket in hospital when I had wle and ANC, all because I have staff badge on car and we had parked in visitors car park , as I was a patient and different hospital to where I work but same trust, I emailed next day and havnt heard anything else, you can ask bc nurse to phone them, I’m always phoning for people on ward.
does he go to appointments with you? That might make him sit up? I know my OH so got it once he’d been with me. Can you talk to his mum? Well we are all here your doing the right thing letting your worries out on here, it’s nice cos no one judges and no question seems daft, take care Hun x my OH out with my brut so will be drunk and he’s taking me to hospital in morn, on he’s in trouble now and in spare room tonight due to SNORING xx
thanks huni, mt bf doesnt come to appointments as he works permanent nights he cant even get time off to take me to my surgery on thursday. am really trying to talk to him but its useless either get ignored or told to relax.
got work for the next three days but really think i may phone in im a carer and dealing with people who are ill is making me so sad especially wen i visited a lady today who will be 100 tomorrow made me feel awful cos i thought ill never get there!
dealing with one cancer at a time is hard enough as we all know but to have this other hanging over me is too much, my body will be unable to cope and is it classed as secondary cancer now oh god x
It’s not secondary cancer no one has said that to you , we all worry about that . I’m a staff nurse and from day of diagnosis I havnt been to work. Normally im in charge of 29 bedded ward and I wouldn’t have been able to concentrate plus you cant have as much sympathy and empathy with patients when you are so anxious, my boss was brill when I told her and didnt expect me to be on duty But if you aren’t in work keeping busy will you cope as you sound so worried at moment does work take your mind of it? If you dont feel you are safe in work at mo ( I didn’t) then you should def be off and get sick note from gp.
have you told any friends or colleagues, can they spend some time with you ? Can you talk to your gp, I had diazepam for a week, really helped.
try and have a good sleep I know it’s difficult and sooo hot. Tomorrows another day and your probably worn out with anxiety, il chase up posts tomorrow after op, take care Hun x
thanks liis, some of my friends know but not really my work collegues. i am very worried and of cors everything i read makes me feel worse. my best friend has been brilliant taking me to apptments out for lunch. my gp wasny very supportive just gave me diazapam that i cant take.4
ill go in tomorrow and see how it goes , your boss sounds really good. dont thiink my bosses understand as they thought id be back at work within a week.
sleep is very elusive atm, up early 6 for work and preop in morning. got a peer group lady ringing me tomorrow see if that helps
thanks for all the help it is helping and im sorry to be so negative x good luck to all x
Hi its been lovely reading all the kind word it make you feel that you are not Alone . l was going though all this 3 years ago when my mum had BC , I never thought it would happen to me so you can imagine how my mum feels she blame her self I told her not tone silly these thing happen. My partner and i were flying at to Spain in two weeks but had to cancel because of this, but luckily we had all are money back for are holiday so that was a relief . I knlo its very hot here now but its not the same as being abroad lol . take care every body and good luck to you all hugs from barnowl xxxxxxx
Hi girls did a loooong post and lost it all so will condense, barn owl, your poor mum think its so hard for them to see us ill it’s your worst nightmare your child being ill no matter how old you are, I know my mums feeling it. Shame about holiday get planning one for next year, something to look forward to, x
PENDRAGON, how are you? Did you go to pre assessment today? Did you speak to anyone, hope your feeling better than yesterday.
i had surgery this morn was fine nothin like other week, was home by 1. Bit of woozy head cos of having a general but its ok and hopefully il get some sleep tonite regardless of heat. Well I really hope you had a better day today, keep in touch x
barnowl im sorry you lost your holiday but enjoy the lovely british weather whilst it lasts! good luck with everything.
went for my preop to be told that even though everything is fine and controlled they will not do my op on thursday. Lois im devastated, just wanted thursday to come along and my lil alien to be removed. i spoke to my bc nurse who said well we dont want you dying on the table ! i understand they need to be concerned but they cant leave me like this with a early treatable cancer growing inside me. i have pre existing conditions and am o warfarin but everything is well controlled. they knew about it all from my first appointment and all the treatments have been done at the same hospital. i asked wat next and was told that id have to be fitted in at a clinic, so iasked if i cd have it done under local and was told no. im scared and after visiting my gp she has signed me off and given me anti depressents.
got up this morning to a letter calling me for a internal and external ultrasound tomorrow and now think oh here we go again, womb cancer. im sorry for all my negativity but my get up and go has gone.
please help…
Hi pendragon, will pm you did leave one yesterday. Look at messages x
Hi Ladies, didnt know where to ask this question, but as so many of us are awaiting results, I thought I would run with this and ask. I went for both a CT and a Bone Scan yesterday and as the bone scan was finishing they sent me for a back x-ray and whilast I was in there I overheard the radiologist say there was a queery around T9! can anyone enlighten me as to what this might mean? am confused and feel like so many of you that they have seen something and still have to wait another two weeks to see the oncologist for the results, this is hell… Thanks in advance for any help with this x
Don’t know if this is any help, coco, but when I went for my bone scan they had to re-do a section over my stomach because the stud of my jeans was in the way. Possibly the query around T9 just meant a section of the x-ray wasn’t clear.
The radiologist isn’t there to make a diagnosis, just to record accurate information - I’m sure he/she would never speculate about any patient’s results, especially within your hearing or even if they thought you were out of it!
I know how easy it is to get paranoid about these tests - I was the same and thought everyone knew more than they were saying…please try not to worry, there’s no reason to think anything will be wrong. I know it’s hard.
Annie x
Hi coco, back on the worry train, il be on it over weekend got body ct Friday. Can you phone yr bc nurse for results next week? You will go mad if you have to wait 2 weeks, Don’t worry and if my experience on the ward is anything to go by they are always querying things and then the consultant comes along and says nothing wrong. I know this is nothing to do with this but radiologist did query my mum had shadow by lung last year , worry worry, I asked consultant to review cos I work with him, and, normal X-ray. T means thoracic region that’s all. At least they are being thorough. I’d like bone scan to put my mind at rest but they said no, does my head in everyone’s treatment so different, is it postcode lottery? Have nice evening try not to get to worried x
hi ladies, just to let you know had my ultrasounds today, was a bit shocked when a man came to get me from the waiting room, but hey lol. had ordinary and internal ultrasound got embarrased cos im on my period. he asked me why id been sent i said to check my womb lining he said oh no youre having abnormal periods and pelvic pain, well i said thats not me. he checked details and thats wat the dr had written. anyhow got to wait a week for results now. hope everyone is ok in this heat (uk) and thinking of you all, ill be away for few days got breast surgery tomorrow, yes thank goodness its back on…
See you all soon … xxxxx
Hi Annie62, Thanks for your comments that all sounds very feasable and I know I am just paranoid, but sometimes I feel they think we are stupid and if they just said look all we want to do is this etc rather than saying nothing. The trouble is with me is I want to know all the time exactly what is going on and am hating the never ending waiting. I will try not to worry Thank you Meg x
Hi Lols, Hope you are doing ok and recovering from Monday. Yes back on the worry train and good luck for your CT scan on Friday, I have to say the CT was nicer than the Bone Scan it does not take so long either. Sorry you are not being offered a Bone scan are they saying you dont need it? I would have seen the Oncologist next Thursday but because I am due to have an MRI on my other Breast that day I have to wait a further week. I didnt know I could phone the BC Nurse for the results, I will bear that in mind. Perhaps ask why they are not letting you have the scan. keep me posted. Take care Meg x
Hi Pendragon Just to say am so pleased you are now going to be able to have your Op as planned, all the very best and please let us know how you are doing. All best wishes. Meg x
hi pendragon hopr everything goes well with your opp. had my opp on the 2nd july got to go for my results tommorow to see if has spread to the lumph nodes i am getting really nervues now just hope i get some good news for a changes. lifes not fare some times good luck to you all barnowl gives you all hugss xxxx
Hi ladies, good luck for ops and results all of you.
yeah coco asked him why not bone scan he said not within his remit and he doesn’t feel required, did suggest onc might order one when I see them, no idea when that will be. Phoned gp this morn to ask her advice, basically she feels that I should have one if it puts my mind at rest but doesn’t want too interfere, politics!!! But is prepared to write a letter and I could pick it up and give it to him Monday when he does wound check. Being in this business , so to speak, he is soooooo not going to like that , so might not bother, might depend on anxiety levels on Monday.
do chase up your scan results with bc n I know I can she texted me yesterday with appt for Monday and said hopefully have ct scan results as well. They are generally reported on same or next day or imagine the backlog. I can get back to ward with patient sometimes and cannot access results immediately on computer, 2 weeks anxiety isn’t fair, we’ve all done enough waiting, I understand when it’s pathology but not scans.
barn owl good luck for tomorrow , keep us posted.
pendragon I think your in hospital now , lets us know how you get on.
Have good afternoon girls xx
Meant get back to ward and can access results immediately. Sorry predictive txt on iPad x
lols I will keep you all posted thanks for all your support xxxxxxx
And good luck with your results tommorow sunflowerfan 