Hi
I understand the horrid feelings of waiting. I got my diagnosis on 31st october and am having surgery 29th november. Already had magseed inserted and pre op assessment. My awful wait is for a treatment plan as they need to see what they’re dealing with when they remove the lump. Thankfully i found it early as it was painful (apparently most arent) so a mastectomy isnt necessary. Its like we are in limbo
Definitely horrible limbo.
I’m worrying ref stupid things like whether to cancel new bathroom (due to start 11th Dec) but trying not to make rash decisions until get more info Wednesday
Hi Hiker
Did you get the results? Always know we are all here when you need us. We know how terrible it is to be part of this club but we are in it together and the support here is fantastic.
Sending much love
Carrott
Xx
Thank you, Carrott xx
Yes, results yesterday and “good” news in the scheme of things, I guess.
Stage 1/Grade 1 & not in lymph nodes. Triple positive IDC.
Surgery 21st Dec (Merry Xmas, eh 
) including sentinel lymph node biopsy and aicap flap (I’m very small so the lumpectomy is a large proportion despite it being a small cancer) Then chemo, radiotherapy and immunotherapy.
Have to admit, I’m gutted I need chemo as a friend with stage 1 just had radiotherapy.
There waa a sense of calm on getting the results after the torture of 9 days with all scenarios going through my head, but still worry and questions. Initial concern is that I live alone and am unsure how much help I’ll need in the days after surgery - bad time of year to ask for help.
Hi, still no results as yet.
I had a scan last Tuesday on my other breast to check a possible lump that was looked at during a review of my mammogram and was told (only because I thought I was going for my results not a scan) that I am on the list today for the multidisciplinary meeting and that I should get a call later today or tomorrow with an appointment to see the dr possibly on Tuesday. The waiting is awful.
But hopefully nearly there. Thank you so much for asking, it’s been a bit of a month!! xxx
Noodles111 Yep! One hell of a month! The waiting is torture as you think all possible news😢
I do feel a little calmer now I have details and a plan so hope you get yours very soon xx
As my sister had BC 7yrs ago (stage 3 triple positive & she’s fine now) and now me, my daughter is being sent a genetics questionnaire and I’ve been told she will most likely get annual mammograms early - she’s almost 30.
Hate knowing she’s higher risk now because of me but early mammograms will be a reassurance.
Hi hiker50,
Glad to hear some of Your waiting is over for now. I too got a plan yeaterday, surgery in 2 weeks… lumpectomy too, with node removal. Radiotherapy 6 weeks later, and hormone therapy. Am hoping to avoid chemo but the oncotype score will decide that after surgery. I was told mine is grade 1-2 . I too, feel better now I have a plan, and something to focus my thoughts and energy on.
Hopefully you can enlist some help post surgery or during chemo. There is a local charity where I live that arrange hot healthy meals to be delivered to your door on the days that will most likely be hardest, they also do a house cleaning service. I am in Ireland but perhaps there is something in your area, worth having a look online.
It is good that your daughter is being monitored, although I understand the guilt at having her go through it. It is a good thing that she will be regulary screened.
Noodles, I hope that you have results soon and the wait doesn’t go on much longer. I know I just want to get started now.
Stay strong ladies xx
The waiting is hell .The beginning of September is when I found out through a mammogram and radiograph that I had a suspected cancerous lump .I had two biopsies both of which were inconclusive then a lumpectomy and senital node biopsy that was over 5 weeks ago and I still don’t know whether I have cancer or not and if I do what it is etc .It’s starting to affect my mental health now as I have a diagnosed anxiety disorder .
The Dr says it’s the staff shortages
In the path lab he is very apologetic and I know it’s not his fault but I beginning to think they have no idea what the wait can do to people
9 days wait affected my mental health so I can’t imagine what the extended wait is doing to you.
Is it worth contacting PALS, Breast Cancer Now, Macmillan etc to see if someone can get it addressed?
I really hope you get answers soon. Please speak to others to get this followed up - even without a pre diagnosed anxiety disorder, the wait would badly affect anyone.
I was low / suffering anxiety before the recall and was demented with 9 days wait.
I really hope you get answers soon xx
Hi Hiker,
So pleased you got your results and the wait is over.
It sounds like it was caught very early which is fantastic. Are you sure it was grade 1 though as very unusual to be triple positive and grade 1? Perhaps you meant just stage 1?
I know what you mean about being gutted regarding chemo but as you’re triple positive, you will probably get herceptin which has been incredibly effective for triple positive and has one of the lowest recurrence rates. I hope that makes you feel better.
You can do it and put all this behind you soon!
Noodles, I hope you get your results back soon and can move forward too.
Sending you all lots of love and strength
Carrott
Xxx
Yep, grade 1 and stage 1 & triple positive. I took a notebook as there alone - double checked the details I had written with the surgeon before leaving.
Trying to do practical stuff like ordering post surgery bras & chemo head wraps / caps to feel like I’m doing something.
I’ll be having herceptin and tomoxaplen