So I had mammogram and ultrasound after changes in nipple shape and direction…
Mammogram showed that I have asymmetric density BI-RADS C/D which I understand can make it hard to see any lesions or mass.
But evidence of a small opacity which is part of abnormal puckering and pointing of the nipple medially with lateral nodularity/folding or the periareolar skin.
I know I shouldn’t google but I did and now convinced myself I have pagets disease of the nipple. It is intermittently itchy with evident crusting.
Have been told that it might be 2/3 weeks to wait for biopsy results and only had the biopsy on Monday…
Any words or wisdom or tips on managing the wait or similar experiences and outcomes
Basically it’s taking a day at a time . If you can do at least one nice thing every day that will give you a moment of joy to hold onto it helps - I’ve done a lot of mindfulness which teaches us that the present is all we have so I tried to lean into that and enjoy moments - and I did . Try to keep busy - if you’re going to Google use reputable sites but it might be best to leave all that until you have results and know what you are dealing with as otherwise it can take you to places that you may never go to in real life . We all have this urge to be in control of our lives obviously and the hardest part of the waiting is not having any . I know the weather is a bit pants at the moment but if you have a nice day try to get out in nature - keep physically active and busy . If you have a good friend you can call on for support they will be invaluable to you right now . The waiting game is often the worst part of all of it . Some people have gone to their GP and got something for anxiety or to help them sleep - no shame in that either . I’m on a blood pressure tablet that makes me sleep so sleeping was not a problem I had but I found some of the evenings difficult . Sending love xx
Thank you for replying and for your kind words of advice. It’s means a lot.
I will try and keep busy…have friends over this weekend and two young girls (3&5) that keep me on my toes! Xx
Welcome to the forum @louisa2 .The anxious waiting is truly awful , I hope you get good news but if not lots of support and advice here from people who understand . Best wishes Jill x
Hi, have you got any call for the result yet?
I received a call and asked me to do another biopsy on the other side of my breast, the wait will be longer now, that makes me even worried
I am feeling your pain, I am 38 and had quite a few cysts over the last 4 years. Went about a month ago thinking nothing of it and it would be another cysts. This time they found a suspicious lodger and took a biopsy via the aspirated needle.
2 weeks of hell waiting then told it’s come back benign but we’d like to see you again in 2 weeks. Went back on Tuesday for the scan, the doctor was extremely thorough and lovely, ended up having 4 biopsies taken and 4 markers put in my boob. Now I’ve got another 2 weeks of hell to wait for these results. Whilst i totally appreciate the doctor being upfront with me by saying although it came back benign he was told to go with what they were seeing on the ultrasound.
He showed me some cysts I have in the same boob which are perfectly round. Then he showed me the lump which is more long and spiked edges. It looks awful and angry.
I know they say don’t feel negative or anything but I’m am feeling more towards something negative just on my experience rather than be completely positive and be floored if it’s not good news.
Spoken to the husband who
Is supportive but there’s only so much you can say isn’t there. The not knowing is horrible I feel like I’m just always sighing of huffing and I’m getting irritated with everything and everyone. I just feel real fed up at the moment. So in short I get you and wish the weeks go quick for
You
Xx
