Hi everyone, please can anyone advise me? I’m waiting on results which I should be receiving via telephone tomorrow regarding a recent mammoplasty after discovery of high DCIS. After a surgical biopsy just before Christmas, I was told I will definitely be needing 5 days of radiotherapy and they want clear margins. I’m terrified that they’ll not get clear margins and I’ll potentially need a mastectomy. My partner and I have fallen out due to all the stresses and I haven’t been handling it well at all. I want to know but don’t want to know the results in equal measure. My journey started back in July and I haven’t been in work. Has anyone been high DCIS and clear margins been found?
3 Likes
The waiting for results is the hardest part. It is stressful for everyone involved.
I had surgery last July to remove about 20mm of high grade DCIS. This was removed by wide local excision and the margins were clear first time.
Before surgery I had been told that there was probably a small area of invasive cells. This was removed within the DCIS. As a result I have had a few sessions of chemotherapy and I will have radiotherapy in March.
I hope you get good results.
1 Like
Thank you for your response. I’m so glad they got clear margins for you. I hope you don’t mind me asking but did you lose your hair? It sounds silly but I’m really worried that I will. I’m currently requiring 5 days of radiotherapy but no mention of chemotherapy yet.
The chemotherapy has resulted in me losing my hair. Initially I had hoped to keep it as I started using a cold cap. However I had an allergic reaction to the chemotherapy drug and the new one I was offered doesn’t have the option to cold cap. (I think it is a sort of slow release over a day or so)
I am having chemo because they found some invasive cells, and the type of cells they were means chemo is recommended. It is a kind of belt and braces as they were all removed with the operation.
Your team will tailor your treatment to you. This is why it feels a long time between your initial appointment and any treatment starting. They are making sure that they have the full picture before starting.