Waiting on results - should we be worried

Writing for my daughter as she doesnt have confidence to ask herself.


She found a lump accidentally about 3 or 4 months ago and finally agreed to see a gp after my nagging. She is only 23 and has never actually checked her breasts.  The lump was about 3cm and easily found, but not mobile.  She was told to monitor for 6 weeks. 6 weeks later, another visit back to the GP and saw someone different.  This GP noticed changes to her nipple (slightly inverting), and also stated the lump was fibrous and not a cyst.  She made a referral to the breast clinic. I went with my daughter last week  for her appt at the clinic and at this appt, the examiner found a second lump under her arm and also noted full nipple retraction in the affected breast.  The 2nd lump was not found by either of the previous gps so we do not know how long it has been there.  She had an ultrasound, then a mammogramm, then had 4 core biopsies taken.  She was given an appt to see the breast surgeon next week to get results.


The consultant on the day of the tests would only say it looked highly suspicous and suggested she talk to her director of studies (she is in final year at uni), regarding late submissions etc.  She said they would tell her more next week after they had agreed  the treatment plan at the weekly mdt meeting.    I was with my daughter for this consult and asked what treatment  would be needed if it turned out to be benign as would be expected due to her young age.  The consultant would not be drawn on this and just looked sympathetically at us both.  Obviously, nerves and emotions run high on such a day so I am  thinking, and hoping we are reading too negatively into this omission of positivity.   



The wait for results is agonising as is to be expected, but all the statistics are stacked  in favaour of  it not being anything dodgy so we are not panicking yet.  However, I spoke to a breast nurse a couple of days after the tests,and although no results were in, she did say that, becaue of her young age, her birad score was given at 4.  No idea what she meant by the age thing and she did not say whether it was 4a,b or c,  but I did read a birad 4 was more  likely good news than bad so it kind of contraditcs what the consultant was suggesting.  The nurse also reiterated my daughter needed to talk to her university and said the clinic could write in support of mitigating circumstances or anything else if needed, again kind of contradicting a low birad score.


So what my daughter really  wants to know and dare not ask is:

Is it usual for the clinic to suggest the worst when statistically the worst is very unlikely?

could something benign like fibroadenomas cause all this, and/or what other good outcome suspects could it be?

if it is all benign will her nipple come back out or is it hiding inwards forever?  


I am hoping someone on here has had similar experiences and can help me with how to handle this. I am naturally very optimitistic, but I have a nagging feeling that  something is just not adding up here and I dont know whether to be worried or continue to hang onto the statistics that say she is simply too young to have anything nastsy. 


nb: There is a long history of cancer of both sides of family but none of breast cancer.  I myself had cancer when my daughter was 1 yr old, but that was Thyroid, so my daughters risk profile is very low I think.

Hi Blovesdreamies, ,
First of all, sorry to hear you & your daughter are going through this, but although it does not feel like, thankfully you both have been proactive in getting to the bottom of it & the team is being thorough about it all. There have been one or 2 experiences reported on here, where young women have had issues in not being taken seriously.
As ever, it’s not really possible to second guess what’s going on, but it is right they are being as informative as possible about it all.
You are right & it is ok to hang onto the statistics. Bc would be very unusual in someone of your daughter’s age & for any breast change there is normally a more common reason such as fibroadenomas behind it all, but inevitably, the anxiety when waiting is so difficult. We all know what that’s like.
If you want to, do let us know how you both get on.
If you need to talk things through, do call the BCC helpline here.
ann x

I have just seen your post on the nurses board, Blovedreamies & so sorry to hear that your daughter has been diagnosed after all. I can only imagine what you are all feeling at the moment.
I just wanted to send you all my very best wishes & all the luck in the world to your daughter for a speedy recovery.
It goes without saying that we are here if you feel we can be of help in any way.
Sending hugs

Hi Blovedreamies,
Obviously, this is a huge shock to you all & monumental to get your heads around, but things will get clearer.
You will be told about the findings to date (type, grade & stage) & will get some idea of the treatment plan & the timescales involved. Sometimes, there are other investigations to be done to ensure the diagnosis is completely accurate to inform the treatment plan - so do get clarification on this if needed. This is quite usual.
I’m sure you’ve already thought of this, but do take something to make notes, alternatively, professionals usually are happy for consultations to be recorded as long as they give their permission, of course.
As your daughter is young, it might be an idea to ask about genetic testing as well.
It might also be an idea to ask about support for younger people in dealing with this.
As ever, it is the early days of diagnosis that are so difficult due to the shock & uncertainty of it all, but it does get better when the treatment plan is confirmed.
If you want to, do let us know what happens & we’re here if needed.
ann x

Just another thought, it might also be an idea to ask about fertility issues & options for the future for your daughter.
I do remember the Breast Care Nurse (bcn), telling me that the youngest patient they had was 17, she recovered well & has had her own children.
ann x