I went in for WLE for widespread intermediate DCIS on 17th August. I was told they were confident they had it all but the margins were close to the edge. The doctor said he would see me in 2 weeks with my results. It has now been 3 and my appointment is next Tuesday, a total of 4 weeks.
I feel so anxious, down, scared etc. The waiting is truly awful. Everone around me is saying “be positive and no news is good news” but they don’t seem to understand the apprehension and fear that is there. If I knew what I was facing I feel I could deal with it better. All that keeps going through my head is have they found invasive cancer, will I have to have rads or a mastectomy, has it all gone… So hard to be positive.
Sorry for the moan ladies, just feeling very depressed and want this whole thing to be over.
Love to you all
x x x
Sorry you’re having to wait so long for your appt - 4 wks is too long!. The waiting really is awful, once you know what you’re looking at and you have a treatment plan, it’ll be a bit better. Take care and I hope your results are good. x
Hi Faz, I am sorry that you are having such a long wait for results. Most of us on here all agree that the waiting for results of tests is just the pits and the worst bit. Once you know what exactly you are dealing with and what your treatment plan will be it will become easier. I hope you don’t need any more treatment but could you contact your Breast Care Nurse at the hospital and have a chat with her. You did the right thing by coming on here as friends just do not understand just what it does to your head when you are waiting to hear from the hospital. Let us know how you get on and I really hope you do not need to have any further treatment. Val
Its so hard! People are right about staying possitive, and you know that, but i know the worries are there all the time! i doubt this will help but, i found when i was waiting on mams results…i tried to do things to take the worry off our minds if she was sitting in the house, id go in and say come-on lets go out go for a walk! or cooking, baking with her,it will never go away but if you keep yourself busy… go to the shops or go for walks try and make sure your with people all the time and it might just help a little, i hope everything goes allright, take care x x x
Hi Faz, I completely agree, the waiting is awful! Have you tried ringing to check if the results are in and asking for quicker appointment? I’ve done this a couple of times and have managed to shave a few days off the waiting time.
I live very close to my hospital and often ring them to ask for ANY cancellation appointment, this has also worked, in fact I got one of my CT appointments on the day I rang, instead of the following week due to a cancellation.
Keeping busy is definitely helpful…anything to pass the time, reading, knitting, jigsaws, crosswords, a fav film, etc.
You could ring the help line for a chat with someone who will understand your fears, talking things through often helps.
Sorry you are going through this at the moment,it is naff isn’t it?!
As Sandra has kindly suggested, please do call our helpline where you can talk things through with someone, it may help. The number is 0808 800 6000, weekdays 9-5 and sat 9-2.
Hi Faz
i know exactly how you feel. I also have invasive ductal carcinoma had my op 2 weeks ago still sore under my arm and have sensitive breast area. I had been watching for the postman all last week for date of appt in the end rang and checked with a secretary Today at 12 I go to get my results am feeling scared anxious hoping all was cleared at surgery. No one tells you the mental anguish hurts more than the physical pain. We are unfortunatly in this together you are not alone. Sending you lots of love.
Maggie xx
Thanks for your comments ladies. I feel much better today, what a rollercoaster this journey is!
I am ok in the day when at work, I have wonderful supportive colleagues, I find it hard of a night when the kids are in bed.
Only 6 days now though until d-day…
This is a wonderful site. All your stories inspire me or your comments spur me on. Thank you ladies.
Maggie how were your results? Hope you are ok.
Hi faz
Had good and bad news good news was sentinel node biopsy clear,however, tumour was twice the size originally thought. The bad news will now need 6 months of chemo then the radiotherapy. Felt like I had been kicked in the stomach yesterday. Not what i had expected. With better head on today realise tumour gone chemo and radio will just blast what ever may have been left well away. Got apppointment to see Oncologist next Tuesday so another positive no wait. Will be on count down with you. We all have ups and very down downs with this disease but all here for each other we need to stay positive I know its hard at times. Agree this website brilliant for getting information and support.
sending big hug
love Maggie x
So sorry for your results yesterday. You are in my thoughts and I will be thinking of you Tuesday. It is so hard isn’t it? The unknown is so scary…
I rang the bc nurse today to see if I could get any results, she said she would call me back as she needed to check with the pathologist, but as of now I haven’t heard anything so fingers crossed the results are not ready yet. (Although I had the op almost 4 weeks ago now!)
Stay strong honey I am here if you need a cyber moan, cry, hug or laugh!
Love Faz x
Hi faz
Had further trauma today ‘vacuum cleaner’ blew up! What with a black Labrador and a long haired black cat how very inconvenient and I thought having breast cancer was bad!!!
Been reading other women’s posts re chemo on the website and feel better read some post’s from girls a year on, hopefully that will be us next year telling positive stories.
Love maggie x
Hi why dont you phone breast news because the appointment people seem to forget to make you an appointment it has happened to me i waited 3 weeks no appointment came through so i phoned my nurse going today 2 days after i phoned her the waiting is so hard good luck xx
Just wanted to update you all…
The breast cancer nurse rang today and told me that lymph nodes were clear as was the vessels around the dcis. She said that she was unsure about the margins and if they are clear or not but the consultant will have all the results by Tuesday and I will be told then. Feeling confident and can’t wait until Tuesday, only 4 more sleeps.
Maggie I would completely use it to my advantage, the vaccum cleaner being broken, you can’t do any housework! Just sit back and relax babe, it will still be there tomorrow! Hope you are ok though, thinking of you. Take care.
Hi faz
Pleased at your news phew!!what a relief no lymph nodes. I am sure the surgeon did a good job and all margins will be clear. Can honestly say know how you must have been feeling and what a relief.
Let me know Tuesday how you get on and i’ll update you from my appt with the Chemo specialist.
This is the first time i have commented. I was diagnosed in mid July from a routine mammagram and stereotactic core bx as having a very small invasive tumour. I had a l/n bx and WLE and then had to wait four weeks for my results, when they came it was to tell me that no cancer had been found in what was taken, although a confirmed hormone receptive cancer result was the pathology of the original core bx. They could not explain why it had happened,it was two weeks before I had healed enough to have another mammagram like for like , and another three for the result and outpatient appointment.
The outcome of which today was to be told that the surgery has to be repeated. i now have to wait for a date for my new surgery… more waiting!!! its doing my head in… have you heard of this happening before ??
Hello Dob1603, I am sorry that you are having to have your surgery repeated but it sounds like you are in good hands and the surgeon is taking all precautions to make sure all the cancer cells are removed. This doesn’t help with the agony of hanging around waiting though. The waiting is always the worst part. I hope you don’t have to wait too long and that all goes well for you. Keep in touch with us on here and we will help you through the waiting days if we can. Much love and a gentle hug, Val X