I want to stop Tamoxifen after one year of chemotherpahy. It is a very hard decition for me but the side effects are soooo sever that I cant bate it anymore. Now I know that diagnosing with cancer , having mastactomy, 6 operations , chemotheraphy was absloutely fine in compare with this drug. I finished my chemotheraphy last May 2015 onco put me on Tamoxifen , latrozole then anastrozle then examestane all of them were worst and she had no choice but to put me again with Tamoxifen . I passed all thoes bloody hard times of hot flashes , joint pains, sleepless nights but my mood changes, being depress constantly, beinf over weight ( before surgery i was 55 kg now i am 70 kg ) , I fight and pick on every small bits with my family and husband , I mind things within a second without even thinking i am not happy I dont get my periods and no sex with my husband since one year , I am constantly tired because wow I am on Tamoxifen and I am alive is this really life? This medication keeps us only alive but takes everything from us , takes our inner person , womenhood, love , feelings etc . I rather have quality life than quantity and now i read that after 5 years 60% of women will get utrus cancer as the result of tamoxfine so who garantees we really will be fine after 5 years? The side effects are severl wether it will put me to sucide or i rather come out of it have to make choice what about you ?
Hi Bella,I speak to a number of ladies who have stopped hormone therapy as their quality of life was so badly affected by the side effects so you are not alone is feeling that way.Has your oncologist suggested taking a break from it for a while to see how you feel without the meds?Have you discussed the percentage gain you get from the meds ?Its a very personal decision but if your life is so miserable I can totally understand where you are coming from.Jill.
Hello Happyboobs, I can totaly understand what you go through all I knew about cancer was operations, chemo , radiotheraphy and some emotional moments none of us knew and had no idea that the real cancer comes after all these for me the real cancer is hormone theraphy because it effects our daily life and stops us doing and being who we are. I wish you best of luck and please get evening pimorse oil and sage tablets from Holland and barette it helps alot woth hot flashes . Best of luck
Yes ,I have a hairline like my husband now too .Have you tried Tamoxifen HB?A lady I speak to who is post menopause is much better on it than Letrozole
Bella I’m with you on this. I finished chemo April 2015 and started tamoxifen in May after reconstruction. It has made me feel terrible, like you, angry, depressed, irritable, fat, etc etc. I recently had a break for further reconstruction and felt so much better. My onc suggested going back on it for a couple of weeks to see the side effects, within a week I was back to being an emotional wreak, so I’ve stopped it again. Onc doesn’t want me to stop hormone therapy completely and has suggested zoladex injections and anastrazole. I’m seeing him on Monday to discuss pros and cons. I want quality of life like you, what’s the point of being here if you’re miserable and make everyone around you unhappy? I have kids of 11 and 14 and want them to have happy memories of mummy - not a grumpy old bag!!