Hi all
Some forum members requested that we set up a new category for members to share their experiences of waiting for test results. I hope you all find it helpful.
Best wishes
Ann
Interactive Services Manager
Thought I’d make a start - had needle core biopsy in August, WLE for High Grade 5.5cm area September 22nd, re-excision October 9th, began taking Tamoxifen October 22nd, started radiotherapy December 3rd -
STILL WAITING FOR MY HORMONE RECEPTOR STATUS!
Have they lost the results? Did they actually do any tests? Should I be taking the Tamoxifen - or something else - or nothing?
Maddy x
Hi Maddy
Sorry you have to wait for so long, presumably you have asked the BC nurse or consultant, because I would have thought if they have started you on Tamoxifen then they should have your hormone status and that you are positive. My consultant also said it depends on whether or not you are pre or post menopausal to which drug they start you, his choice is tamoxifen for pre armidex for post.
I am no expert but hope this helps
Linda
X
Thanks for that Linda -
I have rung at least four times and asked staff at every hospital visit - I was told yesterday to ask again today!
My surgeon originally said to take it ‘because there could be a 7week wait for radiotherapy to start’ (he was very close), so he felt it was better to start the attempt of protection of the other breast early, the oncologist says to stop taking it (radiotherapy can upset the Tamoxifen and the health benefits are outweighed by the side effects) but my GP says better to keep taking it until the results come through! I’m still taking the tablets!!! Better safe than sorry.
The good news is - I’m no longer waiting for my daughter to give birth - I now have a 9lb 1oz grandson (OUCH!)
Maddy xxxx
awww Maddy congrats
my eyes are watering at the thought of 9lb 1oz.
As for your dilemma not sure what else to sugest other than ring up the pathology department personally and ask them for the results and ensure they actually got there.
How are we supposed to understand what is happening when the so called experts cannot agree on treatments
Take care
love Linda
X
Latest from the hospital - wait until the doctor’s review - but keep taking the tablets ! Talk about contradictory - it’s a good job I’m a sensible human being who can think for herself - that’s what I’d already decided.
Maddy xxx