What happens at the results appointment?

Hi all,

 

I was seen at the breast clinic earlier this week for lump in my right breast. I had a mammogram, ultrasound and 2 core biopsies. I was told they were certain I had breast cancer, that my lump was 20mm and my lymph nodes seemed clear on the scan. I am oddly calm about this at the moment, I realise I may not always be calm though, but right now I’m  just eager to get the full picture and started on treatment.

 

My results appointment is late next week and I’ve been told to expect to be there for about two hours. My appointment confirmation sent by text indicates the appointment is for ‘breast surgery’.

 

Can anybody let me know what is likely to happen at this appointment please? Will I have any further testing done? Will they know what type of cancer I have (grade and ER/HER status etc) just from the two biopsies? I’m under no illusions it’s going to be good news, but would do much better if I really understood what happens at the first appointment and how much info I will have by the end of it.

 

thank you!

 

Sarah

Hi Sarah,

 

Welcome to the forum. When I found my lump I had a mammogram, ultrasound and 3 core needle biopsies in my first appointment. They said they were sat on the fence re whether it was bc or not and that they would only be able to determine based on the biopsy.

 

When I went for the follow up appointment I met the same breast surgeon specialist I’d seen at my first appointment. She told me that it was breast cancer, told me what type of cancer they had found in the biopsy (including the ER/HER status) and informed me what treatment they recommended. The treatment varies for different types of breast cancer, for me the initial treatment was a lumpectomy to remove the lump and a sentinel node biopsy, to check the key, i.e. sentinel lymph node under my arm (often done as a precautionary check).   

 

The surgeon produced forms, for me to give consent to surgery, and I was given a date for the surgery (for a few weeks later). I was told that after they had removed the lump they would test it, and the margin of tissue around it, to ensure the margin was clear of breast cancer. At that stage they would be able to tell me what other treatment may be recommended. I was told this would most likely involve radiotherapy, hormone therapy and possibly chemo - they wouldn’t be able to say until the whole lump was tested and sentinel node biopsy done.     

 

It’s a good idea to take someone with you, since none of us really knows quite how we’ll respond to such news until in the hot seat, and if it turns out clear, I’m sure your companion will be more than happy to share your relief!

 

Also, take a notepad. You can ask for a copy of the diagnosis report…(although I can’t remember whether I got this at the initial biopsy stage or after the whole lump had been removed and tested).

 

The chances are a breast cancer care nurse may also be in the consultancy room, and depending on the results, you may be given some time with her afterwards (or an appointment made to meet her soon-after) to ask any follow up q’s or get any information leaflets etc.

 

I hope your appointment goes as well as possible. If you do end up joining this club, you will find lots of help, support and advice on the forum, both from members who are going through it, those who have emerged the other end, and via the Breast Cancer Care telephone lines (support and advice from nurses and trained staff).

 

Wishing you all the best, do post again if you start feeling a bit twitchy as the appointment gets nearer. 

 

Seabreeze (5 years on and doing ok!)    

Hi Sarah ,welcome to the forum .At my results appointment they confirmed the results of the core biopsy went through the procedure for surgery and signed consent forms and then sent me for pre- op blood tests .They will probably know the type and grade of your cancer and probably whether it is hormone receptive from the biopsy, but they really don’t know the full picture til after your op when they are able to analyse the tumour and results from lymphnode biopsy things can change  - there are quite a few pieces of the jigsaw that they put together over a few weeks before deciding on a treatment plan for you .I hope you get good news but if not there is lots of support and advice on this forum and lots of people who understand .Jillx

Hi Sarah

 

A lot of good advice here. I just wanted to add a couple of thoughts. Being oddly calm is not an unusual reaction and, maybe surprisingly, there’s not always a change from that. Apart from my internal hysteria because I have a phobia for vomiting, I really wasn’t perturbed by the prospect of breast cancer or the treatments. Maybe I was more numb than calm but I handed myself over to the experts, asked no questions and just went along with it all in a sort of daze. It worked well for me. Others need to know every detail every step of the way - it’s a choice. Whatever is most comfortable for you.

 

It’s great you’re taking your husband with you but he’s emotionally invested in this too so I’d strongly advise you both make a list of all the questions you would like answers to and let him take charge of it (but please don’t go looking online - it’s disastrous in most cases). No matter how prepared you think you are, what you hear is still stunning news and it’s hard to take everything in. Also, when your questions are written, you can just hand over the paper if you need to. 

 

I’ve learnt on this forum that there are different ways of treating patients - I had surgery to remove all the cancer, then moved on to chemo etc. Some people have chemo first to reduce the tumour size. So be prepared for anything really. Above all, be prepared for a lot of waiting. NICE recommends a maximum of 90 days between surgery and commencing chemo. I started on day 89 (Christmas Eve). I learnt to chill, not be fazed by most things, to ask for and expect help and not to lose my temper during the waiting process. And I’m usually wound tight as a coil! 

 

I hope things go well for you. Calm is good, not odd and not unnatural. It’s also a great place to be.

 

Jan x

Hi Sarah 

Like you I had ultrasound, then 3 biopsies and another mammogram (only had one in july this year that was apparently all clear) I knew she suspected something and I was right at my appointment last thursday they confirmed I had the “C” word I didn’t freak out straight away I had an idea even though I didn’t want to be right. She told me it was hormone receptive what grade or size it was and calmly asked if I was free this friday for the op? I felt like saying having my nails and hair done that day any other dates available!!! of course I’m free lets get this bugger out. Im having the lump removed which will be fine hopefully clear margins, I asked her to take whole thing off but she said no, no need. She wasn’t the one in my chair. Also got to have couple of lymph nodes out, they seem extremely confident that its not spread but to make 100 percent sure, I hope they have that bit spot on but if not the journey will take a bit longer than first thought but Cari (the name I have given her) is being evicted from her home this Friday never to be seen again! There is still hope this could just be a benign something for you and fingers crossed for your appointment next week, don’t take this the wrong way but we don’t want any new members, good luck xxx 

Hi Sarah I was diagnosed on 5th November 2 areas 6mm size and lymph node positive. Had my treatment appointment today. Plan is chemo first for 3 months then mastectomy. MRI plus heart scan to be done before next weeks appointment with oncology. Treatment to start in 2 weeks. 

 

Was hard to take in all the consultant said today she had to repeat herself it was too much information for me. She reminded me she’ll put it all in a letter so not to feel I’ll miss out on anything said today. The treatment will be ongoing for a year. 

 

I was so terrified today knowing I’d hear the test results but feel more focused now I have a treatment plan. Still feel in a limbo state. Now just want to start treatment.

 

Wishing us all the the very best