Hi, I’m due to start chemo at St James hospital in Leeds soon and wondered if anyone knows what type of cold caps they use? I have been reading there are different types?
Thank you, Adele x
edited
Thanks for your reply Ninja, did you use the cold cap and have your treatment in Leeds? Take care, Adele x
My treatment is in Leeds but not at my work although I do go there for MRI scans.
I tried the scalp cooler once; the results are all documented in a thread we have for discussing it. I’ll bump it for you.
Hi Adele
I went through chemo at St James’ Hospital in Leeds last year. 6 sessions of EC. I used the cold cap throughout and probably lost around 50% of my hair, I had very thick hair cut into a long bob style before the start of treatment. The hair mostly went from the crown area (probably where the cap just misses the scalp). My hair went very thin on top by the end of treatment but I managed by parting my hair differently and as it was through the summer did wear hats quite a lot. I got a wig in preparation but didn’t have to wear it.
My new hair has grown back very thick and a little wavy!! Last week was a bit of a milestone as I went to the hairdressers for the first time in 16 months for a proper cut!!
Good luck with your treatment and if there is anything else I can help you with about the cold cap or treatment in Leeds please let me know.
Beverley xx
Bev, hi. I know we are not supposed to use any doctors’ names on here, your post would get wiped, but was your Oncy “Reggie”? Not any of his real names but should be enough for you to twig who I mean!
Hi Ninja
I can definitely say no to that one as my Onc was a female.
Beverley xx
Thanks Bev, i too have just had my hair cut into a mid bob here’s hoping the cold cap works for me too. Your kindness in offering to help with any further questions is much appreciated I’m sure I will be intouch !
Love Adele x
Oh, OK, not the same chap as me then.
Did you ever have an MRI in Bexley Radiology? The blonde (pale grey?) lady? She is really lovely; we always have a laugh together. I cracked her up yesterday. She was just about to allow me to emerge from the narrow tunnel when I said, “Hey, you can see our house from here”.
She said it made a nice change from all the weeping and wailing. I get over the confinement by closing my eyes. You have to laugh sometimes though; all the indignities of the past 2 months would have had me in the nut house otherwise.
How are you now? I’m only 2 months in from DX and it all seems like a never-ending journey that I didn’t want to go on.
Hi Adele
Just wanted to wish you luck with cold cap. I used Paxman and have lots of hair left! In fact am having it cut on Saturday before i go on holiday and thats 3 weeks after last chemo, never thought i would be saying that at the beginning of chemo! I am being treated at York District Hospital , but rads are in Bexley wing at St James’, its a bit of a trek as i live in Castleford but never mind, am there tomorrow for planning and then start rads for 4 weeks on June 27th, so a bit further on than you but just wanted to wish you all the best, any questions please ask!
Good luck,
Sal
BTW, Bev and Adele, there are a few of us from Leeds /York area who meet up occasionally in the Haven in Leeds for a cuppa and a chat. The folk I see in there are the only ones I’ve really spoken to who also have BC and understand what it’s all about; I hate to burden my mates.
The ladies in the chemo room are all quite far away - not near enough to talk to during poisonings; and TBH, we all seem to have our chemo buddy with us anyway.
Hi Ninja
I have been to the Haven on lots of occasions, in fact I was there last Tuesday when they had a little party for the announcement that they had bought the building. Were you there too?
I’m 17 months from dx and I know how tough last year was. This time last year I had had 4 out of the 6 chemo and then rads still to look forward to. It’s not easy and I really do wish you well with everything. I went back to work in January and do feel so much better now and can honestly say BC is not on my mind every waking second of the day, which it pretty much was at first. I did have an MRI at Bexley, plus all my chemo and rads there, and have to say that all of the staff were really lovely and special.
Might get to see you at the Haven some time?
Beverley xx
Thanks Sal x and hopefully see some of you at the Haven if anyones going let me know x
Take care all Adele x
Hi Beverley, no I wasn’t at the party, I was in hospital last week - Poisons 3 didn’t go down too well 