I’ve been researching (again!!) about Paclitaxel and wondering about dosage. I am on 12 x weekly treatments of 132mg which seems quite high? My 8mm tumour had no lymph node involvement so assumed I would be on a lower dose having read more about it. Just wondered what others are having? I’m also having Herceptin every 3 weeks for 9 cycles. Just curious - I know I shouldn’t be comparing! xx
Hi @sarahc_123, I can’t really comment on pacitaxel as I had docetaxel and like you say everyone is different, but I do know dose is calculated based on weight and height, ie BMI and suspect this may have more bearing therefore than tumour size.
I am also participating in a trial to see if fat distribution could be used in future to further fine-tune a person’s dose to reduce the number and severity of side effects. Each time before a treatment I had to go to another dept. In the hospital to be weighed and measured on a special machine that measured body fat too. Then there is a grip test and questionnaires about SE’s. Now I’m being followed up for a few months. So that’s how I learnt a bit more about that aspect of how doses are worked out.
Thanks for yoyr reply suedot. I didnt know that about height and weight so thank you. I hope you are doing okay xx
Hi @sarahc_123 I have just had my first treatment and I am on exactly the same as you for the same diagnosis had same dose too…… I know everyone is different any top tips!?
Hi Molly28,
My top tip would be just take each day and breathe… I am through the main parts of my treatment and now having bone infusions every 6 months for another 2 years. I was lucky and didn’t have many side effects. I also kept my hair through cold capping (although lost all my body hair including eyelashes and eyebrows). It seemed like forever but each week’s chemo is another week done. I had an 8 day stay in hospital with a picc line infection so now have a port. I was also diagnosed a year ago with a brain tumour. They originally told me my cancer had spread to my brain but they now think it’s a meningioma and I’m having yearly MRIs to check it hasn’t grown. Been quite a journey but celebrate the little wins. Good luck! xxx