Who gets Tamoxifen?
Who gets Tamoxifen? I was wondering if all of you who have been dx with DCIS would let me know how many of you have or have not been prescibed Tamoxifen and what part of the country you are in. I’m in Norfolk and they don’t prescibe it or even check for hormone receptors for DCIS. I’m just curious to know how many other areas are the same as mine.
Thanks
Beverley
OC insited I go on Tamoxifen Hi Beverley
I was diagnosed with DCIS early stage BC, no node involvement, had a WLE, and RADS, my OC insisted that I should take Tamoxifen for between 2-5 years even when I told him I was no keen, I am lucky as we get free prescriptions in Wales.
Heatherellis
Tamoxifen Hi
I live on south coast and been prescribed Tamoxifen as er +/pr+
Had high grade DCIS which required mastectomy as fairly widespread.
Once menopausal surgeon has advised will change to arimidex.
Squeaky
Hi Beverley
Ive just posted exactly the same question on other site…why arnt we on it???
Have been in touch with another lady the same age as me under simon pain, whose dcis was tested for er-/+ she has been offered tamoxifen…she has also had a diep!!!
Not very consistent are they…i managed to get ruth to show me path report and mine defo wasnt tested…its all high grade tho…and i now have this small lump on the left!!!
Think im going to email Simon pain!!
Anna x
Tamox Hi Beverly,
I was dx with invasive DCIS in March 06 which resulted in my having a mast and tram flap recon after 2 WLE’s with unclear margins.
Then I found out I am er, pr and her2+ so had chemo, then rads and now on herceptin for a year.
I started taking tamox in March and will be on it for 5 years, I’m pre meno and live in Cleveland.
Michelle.
Thank you all for your replies. I seem to have heard of more people on Tamoxifen who have had DCIS than those who are not. I’m slightly worried as I had widespread high grade DCIS with microinvasion. I think I’m going to have another word with my consultant.
Thanks once again.
Beverley