Hi, I was diagnosed a week ago with TNBC and I don’t think I’ve stopped crying. I am scared belong belief and my anxiety levels have reached maximum capacity. It’s only small, had a mag seed put in today ready for the op. My mum had ovarian cancer and my sister breast cancer. I know I’ve done the wrong thing and read Dr Google but I’m terrified I will get ovarian as well now.
I just feel completely helpless.
Sorry for the long message. X
Hello @lillibet1 - Of course you are worried beyond belief. We all have been at some stage but it’s only small, they’ve found it and you are on the pathway. Our statistics are excellent now. You can be tested for the genes that cause breast and ovarian cancer so that your medical team can give you preventative treatment if you have these. Dr Google is not your friend. If you ask me, Doctor Google should be struck off! He took me to some godawful places and has done to millions of others and will continue to do so. Stick to this site, MacMillan and Cancer Research UK. Don’t go on the others. A lot of the information is out of date.
I was where you are back in November/December 2023 and I can’t tell you how different I feel now. I feel positive and happy again and you will too. You are in the worst bit at the moment. The shock, the waiting and the fact finding is like torture. Anyone will tell you who has been there, that this is the very worst time. Once you are on the treatment path you will feel so much better and in control.
I am giving you a great big virtual hug right now and I want you to breathe and remember that ours is the common cold of cancers. It’s all treatable. You are on the path. You will get through it one day at a time. You will find lots of sisters on this site who will go on this journey with you and you will never have to do it alone.
Love Salbert
x
Hi @lillibet1,
I’m sorry you’re going through this. It is a horrible and scary time, but as @salbert says, it does get better. Have you got people you can talk to about how you’re feeling? (Obviously you have all of us, too!) If anxiety levels are unmanageable, maybe get in touch with your GP for some temporary relief? In the meantime, distraction is your best friend Feel free to ask anything on here. Definitely better than Google
Sending strength and positivity x
a good book that helped me was surviving triple negative breast cancer by Patricia prijatel a 2 x tnbc survivor please do try and keep off dr Google but if you are tempted then Joan lunden and Robin Roberts are tnbc survivors and Google md Anderson in Texas. Take it a day at a time, do ask about genetic testing you should be given this as a tnbc if your not offered it push for it if you do carry a brca gene you can have further preventative surgery too we won’t bombard you the shock of receiving a breast cancer diagnosis can take a while to sink in because all of a sudden you will have a raft of appointments and everything is unknown. What I will say is your team have seen it all before and your treatments will be tailored specifically to you day at a time, be kind to yourself breast cancer now is here for you and everyone on the forum is ask away everyone will listen and try and help as your treatment plan gets out in place we’ve got you as much or as little as you need Shi xx
Thank you so much, I feel like o have more pain in my good breast than the cancer one but mammogram says it’s ok. Xx
Thank you so much, so good of you to help me. Xx
#lillibet1 my daughter was diagnosed with tnbc in early Summer. At just 30 years old and with a young baby. She is well into her chemo and although invariably is having good and not so good days she is staying positive. The first month is the hardest, when all the testing and waiting for results can be excrutiating. However once you’re on the rocky path up the hill it will feel better. Stay strong xxx
Hello Lillibet,
I am so sorry that you are going through this but trust me when i say, this is the toughest part. The waiting around, being unsure about everything, having a million questions, is unbearable but know it does get better💖. When i was diagnosed with TN I was the same, i went straight to google and convinced myself i was a goner. That is far from the truth. Our statistics are ever improving. I am part of a FB group “triple negative breast cancer UK and Ireland (TNBC) support” and there are women on there who have not had a reoccurrence in 20+ years.
Please stay off google, it really is not our friend and will send you into a really deep hole. The best person to reach out to right now will be your breast care nurse.
Does getting stressed make your cancer worse?
I fear I’m exasperating mine. Xx
Lillibet do speak to your team they might be able to prescribe something do ring the nurses in hear too and also the someone like me option day at a time it’s a lot to process be kind to yourself there are no right or wrongs do it your way you will find your drum beat Shi xx
Hi @lillibet1, I was also diagnosed with TNBC, and underwent surgery, chemo & radiotherapy to fight it, back in 2011! It’s only natural that you are feeling anxious and tearful but you will get through this not with the dreaded Dr G, but with your breast & oncology teams and with family & friends and with us! Try not to overload yourself and take everything one day at a time. Sending hugs
Thank you, it’s so hard to stay away from google but I’m trying not to now as it did send me into a stressed state of anxiety.
I’d had more random pains than I’ve ever had since diagnosis but I’m hoping that’s the stress of it all.
I’m due to go for a wide local excision and lymph node biopsy on Thursday so I’m keeping my fingers crossed.
Thank you for reaching out it’s good to hear from real people and not google. Xx
I had a mag seed put in and it really improves your chances of them getting it all out. x
Hi @lillibet1
Welcome to the forum. I’m sorry that you find yourself here, and that you’re experiencing a lot of anxiety. With everything you’ve been through, it’s no wonder.
The advice people have already posted is wonderful and I hope you find the support you’re looking for in the forum. Please know that our nurses are a call away (0808 800 6000), and of course the forum is always here for you too.
Thinking of you,
Lucy