After a diagnosis for DCIS In March and a very difficult ( Covid delayed ) route to a simple mastectomy I finally had my pathology results last week . They found a larger area of DCIS than anticipated 90mm and sadly a 2mm invasive ductal cancer that is HER2 positive and hormone receptor negative . Clear lymph nodes .
I was advised on 11th May that the MDT recommendation was no further treatment and was elated . I was simply expecting to wait my reconstruction.
However yesterday my nurse contacted me and said the oncologist now wanted to see me and was referring me back to the MDT meeting tomorrow . she seemed surprised at this as the original recommendation was in writing and mentioned he had now done a Predict test .
i am now waiting and worrying to be contacted further. I thought I was done for treatment but who knows now . Is this usual ?
why would they change their mind ? I cannot sleep or focus on anything . I have no further appointment - they anticipate it may be by telephone -and must simply wait.
is this usual ? What can have changed since the last MDT meeting ?
(I am 58 and post menopausal .)