Hi Geewiz and Belinda and the rest of you wonderful gals:
It’s really great to hear your success stories as successful as one can be with this disease, Keeping things under control while maitaining a good quality of life and for a long time is my one and only goal. I am courious if you gals have made any life style changes which may of helped or could help? iwork full time, workout at least 5 times a days along with doing yoga, fun volleyball swim and snow shoe. I also have two 9 year twins which keep me bouncing around. I also try to eat right but from time to time fall off that wagon but hey you have to live it up sometimes right? I also see a naturopath and take suppplements - my Naturpath provides me a “deep immune” tonic which I think helps. So life is pretty “normal” for which I am blessed.
Keep the faith ladies and take care
Bud
Hi again, gosh all those workouts will really help maintain your bone density, you sound as though you’re doing really well! I was encouraged by my Onc and his team to walk and or swim to help maintain my bones as bone mets can, over time, cause the vertebrae to close in on one another which can then lead to problems.
I’ve been quite lazy over Christmas but now plan to get out and about walking. I try to eat plenty of fruit, veg and always have a couple of spoons of Manuka honey with my breakfast, the 10 or 15+ honey. It really does seem to stop all colds, sore throats in their tracks. Take Care…x
Great to hear all the good news stories on Xeloda! Hope that those with SEs can get them sorted soon. And on that note… I know that sore mouth can be a problem, but has anyone had problems just with their tongue?! Mine feels really sore and a bit swollen, like when you burn it on hot drinks/food, and the centre of it has turned really brown and seems to be getting darker by the day. I’ve got an antiseptic mouthwash from the onc which I’m using twice a day and I’m eating and drinking lots of pineapple, but it’s getting worse. Anybody else had this? Any suggestions about how to calm it down? Today is day 3 of cycle 2, 14 on/7 off. Thanks everyone. Have a great weekend xx
Hi a f hope y ok off to hos tues for my 2nd cycle sorry uve a sore tongue with norm chemo they say mouthwash gelclaire or maybe give salt water a try there is a chemo thread that as loads of tips might be something on there that’s worth a try my onc told me not to use mouthwash as don’t really do a lot but don’t suffer if it don’t settle ring bcn up ask her advice tc Laura
Hi all hope your all ok and plodding along ok I’m off to hos tomorrow to get 2 nd cycle hope se are as gd to me as first I went for lunch today with oh which was nice but omg it is so cold out today I’m sure it will snow well tc all love Laura x
Hi Gals:
How is everyone’s week going and how is everyone feeling? Just finished cycle 2 and so far so good - only small issues like heart burn and hot feet.
Hi all. Currently on cycle 3, soooo tired but have a cold which isn’t helping. Just wondered - how many of you take Ondansetron - I’ve been told to take it for the first couple of days then switch to Metoclopramide. Hate the constipation… Also get terrible heartburn so take regular Omeprazole. Hands & feet all good so far. Tumour markers have reduced after 2 cycles so that’s encouraging.
Best wishes to those of you going through tough times with pain etc, it scares me to read about some of your experiences, but the good news is so helpful too. Last June when my secondaries were eventually diagnosed, I thought that was “it”, couldn’t see Christmas happening let alone my son’s wedding (which took place last week and was fabulous!). I find I need to keep making short-term plans, don’t have the confidence to look too far ahead. Can’t believe some of you guys have gone back to work - I took ill-health retirement, but seem to have lost sight of who I am. Am going to try out the local hospice day-care centre, just can’t believe I’m in this situation, lost the plot twice now when I went for some “relaxation”. Macmillan nurse came today and is excellent, but she seems determined to get me onto anti-depressants, which I don’t want, too many pills to shove down as it is! Should know better maybe (being a nurse/ used to be a nurse…)but I don’t think anti-Ds are the answer, they can’t take away my secondaries diagnosis so I feel I have every right to feel p***ed off at times! Thanks for being here/there everyone x
Hi HappyFeet:
I sure can relate as all of us here can about how the H*ll we got here but here we are and we are all putting one foot in front of the other but it is tough. I guess I just pick myself up and keep going as hard as it is some days. But it is encouraging to see that your markers have reduced so that is a good sign and hope it continues. I share your opinion about not taking any more pills than you have to, I feel the same and try not to take anything more than I have to but in some situations, like when I get heatburn I just have to take something but to date it has not been bad at all. I find that yoga and working out helps me mentally and keeps me focused. I also believe in keeping some of my anger, I think it helps me fight better but I also believe in finding a balance and sense of peace which will also allows me to enjoy life. I am sending you positve and strong vibes to you and all of you who need it - keep the faith and stay strong sisters !!
BUD
Hi Laura
I saw Oncologist last night who told me the cancer has progressed. He has stopped my harmonal treatment (femera) and I will be starting Xeloda on 20th February and I would love to share the journey with you and no problem giving you my email for personal chit chat off line. Still reeling from the shock, which I knew would happen.
Recovered a little today at home with my hubby.
Please let me know how you are and how you are feeling. Sending cyber hugs bit time.
Elaine
Hi Diddy:
Hope you do not mind if I reply as your story sounds simlar to mine - my cancer progressed while on femera. I was totally despressed when I got the news as you always hope that you’ll be on a treatment which will work and do the job of keeping things at bay. Well here I am, just completed 2 cycles of Xeloda and so far so good just starting #3 - I get scanned at the end of the month so we’ll know for sure. I wish you sucess with X.
BUD
Hi Elaine I’m happy to chat to u I’ve sent u a pm hi to everyone else tc Laura x
Hi everyone.went to pick up tabs for 4th cycle on monday and was told to take another 7days break due to hand and foot probs. However markers are down again and over 3cycles they have dropped by 75%. See onc tomorrow and hope she will reduce dose so that se are not so bad. I have bone mets everywhere along eith liver and lung mets. Wishing u all success on xeloda. Hope it carries on working long term for me.
Hugs for all
helen
I am starting with Xeloda this week and having read all the posts would br grateful for any advice of creams etc to keep at home in case of any symptoms.
I notice some of you have pineapple for your sore mouths, is this fresh pineapple or juice?
What is the best cream to have for feet and hands problems?
Is it OK to take imodium?
I’m sure the nurse will tell me all this but I do like to be prepared for every eventuality.
I have found these posts so informative, thank you and good luck all you ladies. xxx
Hi sher
In addition to the information and support here I am posting a link to the the BCC publication on Xeloda which you may find helpful along with more support service ideas :
www2.breastcancercare.org.uk/publications/treatment-side-effects/capecitabine-xeloda-bcc121
breastcancercare.org.uk/breast-cancer-services
Take care
Lucy BCC