Hi,
I’m posting this message for my sister. She was diagnosed with breast cancer in July and told a week later it had spread. She is 31yrs old and has secondaries in her lungs, liver and bones. She is desperate to talk to someone of a similar age, going through the same as she is.
thanks
Shiona
Just thought I would bump this up and also say how sorry I am for your sister and yourself.
Lots of ladies on here have secondaries and will give you lots of support and information and help. Please hang on.
BCC can also help with publications and they have a help line. Please see the publications as they are quite factual and helpful and free.
God bless xxxxxxxxx
Hi Shiona,
I am so sorry your sister has had such terrible news, but she will find lots of support and understanding from this site. There are many women who use the secondaries forum diagnosed in their 30s and 40s. I was diagnosed age 37 with primary and secondaries to my lungs, and felt very isolated to begin with. Is she also getting some support locally, from macmillan nurses etc?
Best wishes,
Nicky
bumping up
bump
Your sister may like to join in the live chat for secondary cancer on Thursday at 8.30 -9.30pm. She could ask a lot of questions there and get a lot of answers.
Please dont be shy as everyone is really friendly.
Best wishes.x
Hi Ladies
Sorry to interrupt your conversation but just to confirm that Secondary Live Chat takes place on a Tuesday evening from 8.30 to 9.30 pm.
Thursday chat is a general session from 9.00 to 10.00 pm.
Just for clarity.
Kind regards.
Louise
Facilitator
My sister has received publications from the Lavender Trust which she is finding good. I’ll let her know about the live webchat on Thursday but she has 3rd chemo session that day - so not sure she will be up to it.
Nicky, she has received help from her Health visitor, her chemo nurse. As far as I’m aware she has not contacted Mcmillan but I’ll point her in that direction.
She feels isolated and is convinced there is no-one of a similar age to her with the secondaries she has. I am sure there is someone.
Thanks for all your support.
xx
Thanks for that Louise I read it wrong - but good to know correct day.
I do hope it helps. Please contact BCC helpline and they can help too. Have a look at some of the threads and see if there is something tht you can join in with to get info and support.
I had mx and am on Tamoxifen and get first check up December so dont know too much about this to help.
xxx
Hi Shiona,
I’m glad your sister is getting some support, and you are obviously a wonderful sister. I think you may get more replies on the secondary forum-i know i don’t often go on to younger women. Please let you sister know that if she wants to pm me, she’d be very welcome.
nicky
Thanks for all your messages. I’ll try posting on the Secondary thread as well.
Thanx
Shiona
Hi Shiona
I’m really sorry to hear about your sister’s diagnosis. I was 39 when diagnosed last year with bc and liver and lung mets. I remember my disbelief as we are fed the message that the high risk group is the over 50s and to be diagnosed in your 30s seems impossible.
I found BCC’s Peer Support service really helful in those early days - basically they will try and match you up with someone to talk to with a similar diagnosis (but who is further down the road than you) and who can support and advise you. I found it a real help practically and emotionally and think it’s something your sister could consider at this point when she feels so alone. The forums are also a great source of support, despite the horrid reason why we are on them.
Wishing you and your family all the best.
xxx
xx
I have posted this on behalf of new user Laura
Regards Sam
hi
i just want to say im so sorry to hear about your sister. I am 25 years old and have breast cancer and secondary liver cancer, i know how she feels because i didnt think it could happen so young.
I also dont know anyone my age going through this.
I have 2 young children aged 2 and 5 and am bein told how to tell them their mummy is never going to get better.
Please let your sister know i am here if she would like to talk, thankyou.
best wishes
Laura xxx
Hi I was originally diagnosed in 2003 with bc and did chemo, radiotherapy and herceptin finishing in 2006. Was diagnosed with secondary bc in lungs in March this year and have had 4 lots of chemo that didnt work and i am now on 5th lot of different chemo that is keeping it under control. Have the added problem of 2 boys aged 13 and 9 and my 13 year old has aspergers syndrome so change is something he does very well. Also have a husband who has been through it once before and is burying his head so that he doesnt have to go through it again!! Just wish i new how long i had left so that we could plan stuff. Feel like i am wasting my time in hospital every week where all i want to do is, well i dont know what i what to do but i dont want to be in hospital every week thats for sure!!