Booked a place on the upcoming event for Younger Women with Secondaries Together event in Manchester?
Feedback has said how helpful it was to talk on the Forums beforehand and this thread is a chance for you to say hello and “meet” others attending the event. I will check in regularly and if you have any questions do let me know and I will do my best to answer them.
Hello everyone! I’m Jadi and I’m 29 coming from Nottingham! Looking forward to meeting you all. I can only attend the Saturday workshops so I’ll be fashionably very late… but! Very excited to meet everyone! See you there! Xxx
Hi everyone, my name is Nicola mcsherry and I am 40 years young. I am traveling from Belfast and plan to stay for the whole weekend. Looking forward to meeting you all xx
I was diagnosed with primary in 2005 when I was 27 and got secondaries in 2015 in my spine…after a back operation I’m on zoladex, letrosole and denosumab and am doing okay…
not met any other woman with secondaries and feeling at a stage now in which I want to talk to others…
Hi Katey. I was originally diagnosed with primary in 2014 then secondary in September 2016, still feels very new to me. if I’m honest I feel really well, I’ve extensive bone mets and in no real pain just stiff off the anastrazole. Xx
I was diagnosed with primaries in 2010 aged 37. Almost got to the 5 year stage but was diagnosed with lung and liver mets in May 2015. Bones joined them last autumn.
I’m on zoladex, denusomab and had 6 months of cape (July-Dec 2016) but having a break as doing ok for now. As long as no one wants me to walk up a hill!
Really looking forward to meeting some ‘real’ people with secondaries, although the online community is very supportive.
I’m Lindsey and will be coming from Leeds and staying at the hotel from the Thursday night. I live in Leeds, but get my treatment on the Wirral (Oncology stuff) and Chester (breast unit/surgical team) as that’s where I’m originally from, my parents are there… and the Leeds hospital misdiagnosed me, so not much faith in them!
I just turned 35 in April. My primary diagnosis was Nov 2015 and I had chemo (docetaxyl and cyclophosphamide), skin-sparing mastectomy and axillary clearance on my right, then radiotherapy. My secondary diagnosis was kind of at the same time; they saw “suspicious” lesions on my spine in my first CT and MRI scans but weren’t sure until after chemo… they reacted to it, so that confirmed they were related (March 2016). I’m now on Tamoxifen and Denosumab, and just had a prophylactic mastectomy on my left side this March. My last CT in October, MRI in Nov, and bone scan in April showed everything to be stable at this point… and so my Oncologist has now said she won’t be ordering routine scans going forward, which is a bit terrifying as they have been a bit of a security blanket!
Really looking forward to meeting people in similar situations. I’m really only just facing the whole secondaries thing, as it was so close to primary diagnosis that all the aggressive first treatments have been going on and it hasn’t really been addressed (other than to put me on Denos). I’m at the “moving forward” stage and finding it a bit of a challenge xx
Hi Katey and everyone how are you all?? Not long to go now til our meet up! Diagnosed with liver and bone mets in Dec 2016 after primary in 2013 had no. 7 Tax chemo on weds so just riding out the side effects. Had vertebroplasty week before that too in spine so hoping I’ll be bionic by the time next weekend comes around xx
The countdown is on! Only a couple of days left! Excited and nervous in equal measure. I’m not that far from Manchester so travelling over on Friday morning.
Hope you all have a good time on Thursday evening, those coming from further afield.
Hi all. I’m Emma I’m coming all the way from Rayleigh in Essex! So I am staying over on the Thursday too. I have no idea what time I’ll get there though. Hopefully not too late and if anyone’s still up I can join you for a hot chocolate. ? I was initially diagnosed with primaries in 2007 and recurrence in 2012. Secondaries came in the form of extensive liver and bone mets in June 2015. Looking forward to meeting you all. Xx