Hi there,quick question if anyone else is in a similar situation, started on tamoxifen and i was fine,added in zoladex,again no issues,switched the tamoxifen to exemestane and really struggling with achy joints,fluid retention,tiredness and zero motivation ,feel about 80 . Consultant has switched me back to tamoxifen alongside the zoladex. Im worried that im making the wrong decision to take a step backwords,any words of advise please?x ive got a review in 2 months to see how things are going . Im 43 and was diagnosed oct 23,had chemo ,radio,and surgery er8 + pr8+ her - x
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Hi there
I’m on Zoladex and Letrozole and if I don’t “settle” my onco has said we can look at tamoxifen
From what I understand there’s a tiny extra benefit of an AI vs Tamoxifen but not much
Think this why we can move around and see what we can tolerate
Not gonna lie- hormone treatment is hard !
We are striping ourselves down to 0 levels of oestrogen
Even a post menopausal woman has a tiny amt from fat and adrenal glands
I would do whatever is best suited for quality of life
Like you, has surgery chemo radio but this is a whole other level
I thought it was the “easy part”
X
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Also we are thrusted into this state in the matter of weeks
Menopause takes years
I feel so uneducated in this area of treatment which is quite brutal
Sorry rant over …. guess it’s “my hormones” or lack of 
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I agree it is brutal,my consultant said the exact same today about usually you have 10 years of gradual build up to being post menopausal where as with this treatment its pretty much instant and a total shock to the body.
It really does suck after all the other treatment to be left dealing with all this but on the other hand i am grateful it is there as an option,just hope its worth it🙏
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Agree
I keep reminding myself there is a reason for this and I am hoping my body settles and
/ or I find ways to mitigate the side effects (which I did with chemo) 
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Hi. I agree there’s a small percentage in it with an AI vs Tamoxifen. I am 44 now and ER and PR positive and swapped from zoladax and let to tamoxifen only. My Oncotype was 10. I made the decision based on my life and kids. You never know if it’s the right one but we can only hope. Go with what you feel is best for your after you have all the facts x
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