Hi All
Thought I would check in to find out if my side effects of the infusion are normal. I had my first infusion yesterday, didn’t feel great last night but this morning and now I feel terrible, feel like I’ve got full blown flu. I’m shivering, got a temperature, I ache and I feel nauseous. I feel terrible. But I suppose it’s doing it’s job of prevent any return of cancer in my bones. Thankfully I am not back at work yet, but plan to be in May xx
Hi Sunflower14,
just seen ur post, sorry to read ur one of the unlucky ones who get the " flu like symptoms ". Are you having chemo at the moment too ?
i had my second zoladronic infusion in january but i think i’ve been lucky both times and just had a few aches n pains.
flu like symptoms apparently so i was told by my nurse, are a very common side effect but should only last about 3-4 days.
if you can just rest and self medicate. Hoping u feel better soon.
mini mad xx ??
Hi Sunflower
Sounds like you have the classic reaction but it shouldn’t last long and the first is meant to hit the hardest My first treatment was disguised by chemo (I felt s*** full stop). I’ve had two treatments since then. Both times, I had mild but noticeable fatigue for about 3 days.
Be wary about the cumulative effects, as my muscle and joint pain is constant now and it ties in with the timing of the infusions (we’ve eliminated the anastrozole) so don’t ignore aches and pains that don’t go away. This is still a chemotherapy and needs monitoring.
Hope you feel better soon xx
Hi Sunflower14
After my first Zometa infusion I was so poorly…high temperature, headache, felt weary and unwell, for about 3 weeks!
I mentioned it to the nurse when I went for my second infusion and she seemed surprised that i’d been so unwell, said it wouldn’t normally affect you like that and it was possibly a coincidence and I’d had a bug!
I was fine following my 2nd infusion except for a headache for a couple of days!
Hopefully you’ll be fine after your 2nd dose xx ?
Hi All
When I had my first infusion I experienced a very high temperature, shivers, and ached, but luckily it only lasted 24 hours. I phoned the hospital and nurse advised to take paracetamol on the morning of the infusion and continue taking it for 24 hours. So that’s what I’ve done and I’ve had no problems. I’m due for my sixth and last infusion in August 2020. It’s been a long journey but so, so glad I’ve made it through. My colleague at work who had bowel cancer wasn’t as lucky and she died last year [redacted] RIP xxx
Good luck everyone and stay safe in these uncertain times xxx
Had my first infusion in December and I was exactly the same. I had to put myself to bed.
I am having my second one tomorrow over an hour rather then 15 minutes this time. The Chemotherapy nurse suggested if I was unwell on my 1st one have it administered with more fluid and drink loads before, during and after.
When the nurse calls you before your next omelette her know it made you I’ll.
Regards Clare