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Essex Girls!

1,106 REPLIES 1,106
ann-m
Community Champion

Re: Essex Girls!

Hi Ella,

First of all welcome, but of course, you’d rather not be here.

This is an old thread, so do have a look at the ‘recently diagnosed’ & ‘going through treatment’ boards, where you will be able to get support & chat to others where you are now.

When you start chemo, you can join the monthly chemo thread for August - in ‘going through treatment,’ where others will be in the same place as you, as well as others further down the line.

We’re from all over the place, but there will certainly be others in the Essex area here. 

Sending hugs

ann x

ella
Member

Re: Essex Girls!

Hi there,

 

i've just received my initial diagnosis of BC, HER 2, lubular, grade 3, waiting to have MRI and CAT scan, start chemo ASAP at Broomfield. I want to get my head in a peaceful place as a possible as I begin chemo, keep imagining others symptoms, waiting to know whether it has spread or not is the worst thing.  It would be good to connect with Essex girls on here, for support.

 

Hoping for the best x

Janee1960
Member

Re: Essex Girls!

Hello fellow Essex Girls! I am new to this so please bear with me. I was diagnosed with IDC Stage 3 Nov 2014 had lumpectomy followed by rads now on letrozole. Seeing surgeon on Monday about another lump absolutely scared stiff. Does the fear never go away??? xxx
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Re: Essex Girls!

Im having my op on Friday at Diep Flap reconstruction at same time as they take the lump out.

Doctor is not sure if I will need Chemo depends on the test of the lump.

Guest user
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Re: Essex Girls!

That brilliant news hun, have you heard whats next then ?

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Re: Essex Girls!

Got some good news today - its hasnt spread into any of my lymph nodes 😉

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Re: Essex Girls!

Hello - I saw the consultant Mr last Wednesday, also the BCN that day and on Friday.

Ive just phoned her and waiting for her to phone back.

Lily200
Member

Re: Essex Girls!

Hi,
I am not clear from what you wrote as to who you have seen. You can ring the breast unit and speak to a breast care nurse any time to enquire. Which consultant did you see?

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Re: Essex Girls!

Just wanna know how long to wait for appointments.
I was diagnosed last Wednesday and though Ive seen the Nurse and she said she would get onto the doctor/surgeon I havent heard nothing. I think its the waiting for things to start that is making me nervous, sick and tired.

Lily200
Member

Re: Essex Girls!

Hi,
I know its crazy that they hit you with cancer and then before you stop reeling you find out there are other things to think about beyond that. Wishing you as much luck as is possible given what you already have. Hang in there. I tend to try to think I'll worry about bad news when it comes as either I am wasting my time because I haven't got it or I just wasted the good time before they told me. Easier said than done I know but try to do some nice things with the boys as it will be harder to find time when it all starts as it rather takes over your days.
Lily

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Re: Essex Girls!

Thank you Lily - that has made me feel a little better, Asked the nurse on friday what BC I had but wasnt on the forms yet. Will let you know once I know. Its just the waiting game I cant handle and the not knowing if it has spread.

Lily200
Member

Re: Essex Girls!

Hi Rainbowwitch,
I am under Broomfield hospital for Bc and there are a group of us that meet up, all with different dx although many of us are on the tablet stage now. I am really sorry to hear your sad news and know exactly how it feels. It used to hit me on waking every day like a train station announcement. But we are in a centre of excellence with a very high success rate which is closing in on 90% they say. If you had to have this b disease, you are in the right postcode to get really good treatment. Private and NHS have the same docs and we are really well looked after. In some areas you would never get a CT scan and we all have full scans. Expect to be sent for a bone scan next and chest x ray and full blood tests. They are scary I know but they spend a lot of money to get the full picture so you get the right treatment.Appointments will be falling through the door for all the checks as they really get on with it. Concentrate on just the first thing you have to do and take all offers of help as I went to the hospital 5 times in one fortnight. The prof who does oncology is a legend and is a really good consultant to look after you.You will also have a consultant surgeon. I had surgery, just the tumour removed and you can't even see where the scar was,it looked fine as soon as I woke up. I had sentinel node biopsy then chemo then 15 rads at Colchester and now on tablets for 5 years. I didn't think I would get through it all and just looked at the one next little thing I had to do. Theshock stays with you. Let me know when you have the dx of what type of BC, any nodes involved .
You can do this. Let me know if you have any questions
Big hugs to you
Lily x

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Re: Essex Girls!

Hiya Rainbowitch, sorry you have to join us hun. I'm receiving my treatment at Basildon for surgery, and Southend for radiotherapy. Mr friend is actually on of the cancer coordinators at Broomfield, she is lovely and I'm sure the whole team are great too. Don't hesitate to talk to your BC Nurse they are lovely and can listen and help all along the journey.

Jo_C
Member

Re: Essex Girls!

So sorry you've had to join us Rainbowwitch, you are in the worst place at the moment whilst you wait for treatment etc to be sorted. I am local to Broomfield Hospital but havent really been there for treatment. I know there are a few people on here who have though, hopefully they will be along soon to help.

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Re: Essex Girls!

Hello - On Wednesday I found out I have breast cancer, scared scared scared. Head is all over the place at the moment, need to have a CT scan soon to see if it has spread (hope not) seeing the cancer nurse again today to get more balls rolling. They say the op will be done at Broomsfield Hosp in Chelmsford - anyone been there??
Im 44 and a mother of two wonderful boys, one of whom is autistic, so fighting this all the way.

Lily200
Member

Re: Essex Girls!

Hi,
Linda so pleased the latest results were good and keeping my fingers crossed for lots more of those for you
Lily x

lindsyloo
Member

Re: Essex Girls!

Sorry I have not been around for a while, been having holidays, and mooching.

I went to see onc last week, he said no evidence of disease currently, whoooo hoooo. He did also warn me that because of my history, i.e. 3Dx in 3 years, it is is still highly likely to return, but hey ho, its not showing its ugly head at the moment, and that is the best I can ask for. And like he says he has been proved wrong before he can be proved wrong again.

Hope you are all well, and we really must get a night out or lunch out or something arranged

Linda
xxxxx

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Re: Essex Girls!

Hi Trudi
Welcome to our group, sorry that you find yourself here - being so close to the start of treatment means that you must be struggling to take it all in? It might be a cliche but the best advice at the moment really is to take things one day at a time. Losing your hair is a horrid experience, but once its gone & you get to grips with your other side effects you'll see that life is possible during chemo. Concentrate on the important things - spending time with your family & friends & remember that it may semm like you're stuck in a never ending nightmare but one day it will be over. My diagnosis was very similar to yours & I've just had my first yearly mammogram - all clear.
Take good care of yourself

X

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Re: Essex Girls!

Hi all,
I am 42 live in Chelmsford and have been diagnosed with grade 3 32 mm invasive ductal carcinoma.
I have just had my first chemo session, I am having AC followed by Tax 4 sessions of each every 3 weeks.
Next hurdle is loosing my hair followed by days 10 -14 when my white blood cells are at their lowest.
Any advice will be much appreciated.
Trudi.
x

Jo_C
Member

Re: Essex Girls!

Hi All, lovely to hear from you. I've not had a MRI and it sounds like I am not missing much.
I am not at work at the moment so should be able to meet up with whoever is around over Easter. Sorry I couldn't meet up with you today Linda and Kath but would love to meet up with you soon.
Hair has just started to come out so its all fun fun fun here
Take care
Jo
x

Tolliebelle
Member

Re: Essex Girls!

Hi Saphy

I too had an mri scan and like you had to lie on stomach with boobs hanging down. I did get through it but not sure how it was THE worst thing I have ever had done so I know exactly how you feel. The nurse asked me if I wanted music via headphones as this would supposedly drown out the sound of the machine but they just competed against each other the whole time it was a nightmare I did ask them to turn the music off as my brain could only cope with one noise at a time but the machine is really loud. Having said that the nurse was very patient with me I kept pressing the buzzer every time the machine noise stopped asking if it was over yet!!! Unforfuntately it wasn't but they were happy to let give me a minute while I composed myself for another go! If you do have to do it again really make sure you are comfortable before they start anything my forhead in the cup thing wasn't really comfy at the start and it just got worse as it carried on and they kept telling me I couldn't move it was hideous I was in the machine for nearly 2 hours (buzzing all the time made it last longer but I felt I had to to stop for just a minute)

Sorry I haven't got a more positive story for you I swore to anyone who would listen that I would never have another one EVER EVER again and cried buckets while telling them about it!!!! BUT looking back as unbearable as it was I probably would now do again if needed to make sure everything was OK I would suggeats talking to someone before hand and asking them to bear with you and take it slowly.

Good Luck

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Re: Essex Girls!

Hi everyone and thanks for your nice welcomes, well the MRI was a complete disaster, it was at the Brentwood Diagnostic Centre if anyone knows it, very nice place.
Firstly I had an MRI many years ago on my back and sailed through it, so I thought this would be a doddle, how wrong am I eh, I didn't know that I'd have to get a needle stuck in me with fluids to light me up like a glowworm, so they had a bit of a game getting the needle in and I had to lay down for it so that my arm would stay still long enough, I now have the mother of all bruises on my arm, then they stuck me face down, boobies hanging down, then they fed me into the longest, tightest tube, I went into shock and they had to drag me out by my feet, I've not cried like that for god knows how long.
So I've not had it done, I told my breast care nurse who said she will talk to the specialist and contact me tomorrow, but it may put my operation back a bit.
Christ my emotions are all over the place, is this normal? Has this happened to anyone else? Does anyone know what happens next or will they right me off and leave me too it?
Sorry to ask questions but my head is buzzing.

lindsyloo
Member

Re: Essex Girls!

Hi Saphy, welcome to our exclusive club. You are not too far from me I am in Billericay. Good luck with your treatment.

Jo Hope you are well and maybe meet for coffee today, I know Kath has emailed you.

Lily I have now finished rads at Romford, feeling ok, and things looking as good as can be expected, no evidence of spread but my ever optimistic onc still thinks it will come back but I intend to prove him wrong.

See you at 12-00 Joy x

Am looking forward to meeting up with everyone again soon

Linda
xxxx

Lily200
Member

Re: Essex Girls!

Hi,
sorry I didn't spot all your posts as it was out of site by the evening I guess. Just wanted to wish you all well with your treatments and to say we would all be pleased to meet up with you. A lot of us are through treatment and back working with everything crossed at check ups so day meets can be tricky. However, easter hols are coming up soon and will try to plan a lunch meet during the week 18 April and post on here when I hear from everyone.
Hi again Kath, how are you? Linda would be nice to meet again and how are you getting on with your Colchester trips? Jo hope the side effects pass before too long, are you on FEC? Our group have had almost everything going so there is usually someone with help or sympathy on the side effects. Saphy good luck with the mri and hope results of that are as good as possible. I am on femara too, having had surgery, 7 months chemo and rads. I have just had my 3 year mammos and waiting for results (fingers crossed).
Lily x

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Re: Essex Girls!

Hiya can I join in please, I am newly diagnosed 17th March, am taking Femara and having a lumpctomy on 18th April, MRI tomorrow on other breast as they have found something but its too far back to get a good picture, I've been told that I should be getting radiotherapy after the operation.
I am 54 years old, 55 in May and I live in Wickford and am getting married on June 18th.
Oh and I'm scared but I will get through this (allegedly). I am hating all this 'not knowing', it is driving me mad as I'm sure it does everyone else, how does everyone cope with it all?

kath12
Member

Re: Essex Girls!

hi jo & all lovely essex girls
i'm now meeting with linda tomorrow (tues) so have mailed you jo
i had an onc appt today & so far so good...........hoping everyone else well as possible
love n hugs
k

Jo_C
Member

Re: Essex Girls!

Oh sorry Linda I missed your post.
Yes I would be really grateful if you could keep me informed of the next meet up please and I am sorry I missed out on lunch last week.
Sorry to hear it has spread again but very pleased you have finished your course of rads and are feeling well again now. This BC really is the pits.
Take care
Jo
xxx

lindsyloo
Member

Re: Essex Girls!

Hi Jo

I think we are due a meeting soon so we will keep you informed when I know what is happening, and if you want I am meeting another lady from here in Chelmsford for lunch next Thursday and yo are more than welcome to meet up with us.

I have a complicated history, I was Dx over 3 years ago, had WLE chemo and rads, but it came back Nov 2009 and I had more Mx and more chemo. unfortunately for me it spread again last year so I had another lumpectomy and have just finished another course of rads, am getting over it now, and I feeling well.

Take care and will speak soon
Linda
xxxxx

Jo_C
Member

Re: Essex Girls!

Hi lindsyloo, Am feeling surprising ok, a little lightheaded but apart from that fine. I am having my treatment at home which is great but doesn't allow me to meet up with others in the same position, so any meetings I could be invited to would be good.
Thanks for replying, what stage of treatment are you at now?
xxx

lindsyloo
Member

Re: Essex Girls!

Hi Jo
Sorry I have only just seen this message. You will have already started your chemo, and hope you are not feel too bad. Where are you having your treatment?
This is a lovely site and we occasionally meet.
Hope we heare from you soon xxxxxxx

Jo_C
Member

Re: Essex Girls!

Hello, I am a newly diagnosed Essex Girl, my care nurse told me about you, I hope you don't mind me joining in but am feeling a bit lost and overwhelmed by it all at the moment. I am due to start chemo on Wed 23 Mar and dreading it. My world seems to have stopped for the time being and I can only admire you all for your positivity.

Lily200
Member

Re: Essex Girls!

Sorry Linda, I hit submit before remembering I meant to say we all enjoyed meeting you too and you are of course welcome to join us any time. There is also a very nice support group one wed a month at the Helen Rollason centre in Lawn lane Springfield and during the day they offer alternative therapies and people to talk to.
Good luck with the rads and I am sure you are fed up of the journey already. Hope it is not getting too hot yet. I felt like I could jump in a lake to cool off at the end of mine yet others seem to tolerate it. Thought I would be ok as I have dark hair and don't burn in the sun!! We haven't met this week after all.
Hugs for the week ahead
Lily x

Lily200
Member

Re: Essex Girls!

Hi,
sorry I can't personally help you with the recon as i had a lumpectomy but some ladies in our group have.Unfortunately they don't post here. I can tell you broomfield recon is rated really high in the UK and now does ops for people for about 3 counties and parts of London. You can ask/be invited (not sure which) to a BRA meeting where volunteers show your their recon to ladies approaching these ops, so might be worth getting the date to go.
Good luck
Lily

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Re: Essex Girls!

Hi Ladies
I met the scary Mr. Niranjan yesterday who has advised me to have a DIEP flap reconstruction at Broomfield, Chelmsford. The prospect of changing hospitals is a little unnerving (I've been treated at Essex County hospital in Colchester)& I don't have much info about this procedure at the moment - what have I just agreed to?!
Any help or tips you can throw my way would be much appreciated,
Thanks

xx

lindsyloo
Member

Re: Essex Girls!

Hi Ladies
sorry for being away for so long, treatment going ok but slowly, I loved meeting you all and looking forward to the next time.

My love to you all

xxx

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Re: Essex Girls!

Absoloutely nothing...just there is less of you now!!

I'm off to buy loads of 'pink & whites'

X

Lily200
Member

Re: Essex Girls!

New me hmmmm what was wrong with the old one???
See you soon
x

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Re: Essex Girls!

Ooooooh I haven't been on here for a long time!
Just calling in to say lovely to catch up with old friends last night and meet new. I just wish it was under different circumstances :0).
Was lovely to see the 'new' Lily! LOL LOL
Lindslyoo and Gill hoping all goes well with your treatments and sending lots of good vibes your way.
Stay in touch ladies....X

Lily200
Member

Re: Essex Girls!

Hi,
wish I had seen you there!! Yes so sorry but work went crazy and we have a new puppy and OH needs rescuing quite often!! Good luck with rads - start the aqueous cream and I found vests really comfy as a bra rubbed the area. Trip to the marsden is a gret idea as they are the experts and most people on here found them very supportive and down to earth too. WIll def catch up
Lily x

lindsyloo
Member

Re: Essex Girls!

Hi ladies

today was wonderful, I met two lovely ladies Kath (again)and Oscar. We are all very different people joined together by this s****y disease.
The meeting was pretty surreal when we met outside M&S there was a lady singing for breast cancer and she was singing about climbing the highest mountain, we just stood there hugging and crying, I think the whole of Chelmsford must have thought we had gone crazy 🙂
Thank you ladies

As for me, I am about to start rads next Tues went for planning last week, and my onc is contacting Marsden to see if there is any other treatment in the way of chemo which may be helpful

I hope we can all meet up soon

Linda
xxxxxxx

lindsyloo
Member

Re: Essex Girls!

Hi

I will go to see onc on Wed armed with all my information. I dont want nasty treatment but if it works then I do want it.

I am looking forward to meeting you all, I am free most evenings so let me know.

Love
Linda
x

Lily200
Member

Re: Essex Girls!

Hi,
Linda isn't it avastin that is the big drug that hits vascular invasion although it is only for private patients and there may be other restrictions on it I believe. Is it your appointment on a Saturday? If so good luck and keep us posted how you go. It just takes the right one, so all the time they have other options (and it seems you have a lot to me) you have more things to try. Right now you need to build yourself up with good food, happy things to do and plenty of rest to get as strong as possible for any chemo they may offer so you start at a high point. Also definitely ask to have the flu jab!!!!
Margeurite hi to you, how are you doing? Are you back at work now as I remember it was quite a stressful place to work. I have told the others and they are hoping to meet both of you again if we get around to a date and you can manage it.
Lily x x

lindsyloo
Member

Re: Essex Girls!

Thanks Marguerite, I will ask, my main problems are that I have had a DVT and am very prone to infections, I do not feel too bad on chemo, I managed to work through it and had very little time off.

Lily I am going to go in and tell them I want everything, I know I am at risk but to me the risk of cancer returning is the greatest risk, seems this is now the 3rd time, and they are all high grade with vascular invasion. obviously chemo is doing its job and keeping it away from the major organs and the bones so I am prepared for that,

well will see what Saturday brings

Thanks for being there
xxLinda

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Re: Essex Girls!

Hi Linda, just a thought... dont know what your reaction was to chemo last time... But I had an allergic reaction to tax (docetaxol I think) and was switched to abraxane. This is a new chemo drug, primarily given to those with secondaries (I believe because of cost), but has very little side effects.
Worth asking about.
Will be thinking of you on Wednesday
Marguerite
PS - Hi to Lily200 and Sharon2

Lily200
Member

Re: Essex Girls!

Hi Linda,
how are you feeling about your results? It is never good to hear all the figures and facts but hoping you can find something in there to give you a spark that things might have been even worse if not found so quickly. I am not sure what to say as I can't tell how you feel about it yourself. Hormone positive is good as it gives you more options but sorry it is not a primary as that is another thing to deal with. From what you say they sound ready to go with a plan thankfully and that you have rads and chemo and hormones still on the list of things they can offer, so a wide range. I didn't think you could have rads in the same place, hence the tatoos but maybe they wouldn't have gone that deep before? Or maybe it is further over? Clear margins are fab as no more surgery. You mention that they are concerned over your last reaction to chemo so if you want to do everything it might be an idea to go in and be direct about what you want and ask to at least try it. Maybe xeloda tablets are next? As long as chemo is not risky I wouldn't care how bad I felt, if it was giving me a leg back up the ladder.I really will get on to meeting up, we have been sending texts but no day fixed yet as everyone was all over the place. So maybe fix one and see who can manage.
Big hugs and hang in there
Lily x

lindsyloo
Member

Re: Essex Girls!

Hi Ladies

saw the surgeon for the results today, 1.5 cm grade 3 ductal carcinoma ER+++ PR neg HER2 neg metastatic not a primary, fed by one large blood vessel. Margins were clear. I have to see onc next week but surgeon mentioned more rads, but I had rads there 1st time round, I didnt think. they gave it in the same place twice, surgeon said possibly not more chemo because of previous problems!!! I want everything thrown at it again.

Oh well best wait to till I see onc before jumping to conclusions

lindsyloo
Member

Re: Essex Girls!

Off to get the histology results today, then we can get a plan sorted.

lindsyloo
Member

Re: Essex Girls!

Thanks Lily,will let you know what happens xxx

Lily200
Member

Re: Essex Girls!

Hi LInda,
Good luck on Thursday if I don't get to post
Lily x

lindsyloo
Member

Re: Essex Girls!

Thanks Sharon and Lily

Im feeling ok at the moment but am still sore and the wound is very swollen but apparently normal

It would be great to meet up next week, any evening is good to me

xxxxx