I have an appointment at LRI on 17th April to see the Oncologist so from reading on these forums I gather I have to then have a planning meeting so doubt I will start radiotherapy before May. I was also told I will need to take tamoxifen for 5 years too but that is something I need to discuss with the Onc as not sure I am prepared to do that with all the side effects. My tumour was low grade slow growing and I had the letter that they send to your gp and it said my prognosis was excellent. I'm 64 so feel at the moment that I would prefer to do the radio and take my chances rather than going on tamoxifen.
I have been very stressed out like most of us and feel that being on tamoxifen will only add to that by me worrying about cancer of the womb or blood clots
So pleased you have finished your journey and can enjoy your life
Yes I live in Leicestershire too
Enjoy your holiday when you go, you deserve it
We normally go to Devon early May every year and hopefully will be having a holiday too when I get my treatment finished.
Brilliant news Podge
Did I read earlier that you are at Glenfield Hospital? That's where I go.
I have been discharged from the Breast care unit and will also have mammograms every 18 months for 6 years but I am waiting to start radiotherapy.
Mine was tubular cancer 9mm and they got good margins and nodes clear.
I am 5 weeks post surgery and my underarm is pretty much ok now but mine was still quite sore at 3 weeks stage.
Good luck for today
All that you both have said, is what i understood at the hospital too. However, 4 weeks after surgery I developed a "slug" - well that is what it feels like, under my arm. It has been scanned - but even now, 5months down the line it is still there, although more of a twiglet now. the scan radiographer explained it as "a post operative reactive lymph gland". It was not infected - but it is a lump that wasnt there before, so i wondered if I should ask to have that checked at the annual check up really.
That is what I had removed and given the all clear too. But other glands in the arm area did swell up afterwards - post operative swelling.. It would just be noce to know it is still all clear!
That is what i am curious about. Surely, if they have removed it all plus lymph glands, then the lymph glands shpuld be checked along with the chest wall?
Happy mothering sunday to you all. - hope you have a lovely day. And get spoilt a bit.
Remember to do things at your body's speed - I did too much in the beginning cos I did not feel poorly. But it caught up with me.
But I am heading back to work after Easter - at present with excitement and dread in equal measure. excitiemt that life is going back to normal and dread - cos I have enjoyed the time with family and friends!
And making new friends through sites like this and local support too.
Well done both of you... keep positive. Remember DCIS is non invasive so the outcomes usually are good. I was quoted lots of statistics, but if i got concerned i rang the hospital and heard them again!!!
Hi Podge 1,
I had my op at the beginning of November - so am now nearly 5 months down the line. Seems like yesterday - but I did too much and everything swelled up - well my implant area and upper arm. That knocked me emtionally then too as I had to stop everything which slowed movement and strength development completely... BUT, with ibuprofen, physio exercise, gentle exercise (courtesy of the Cancer Care Get fit dvd once i was allowed), some counselling and STOPPING when i was tired, I am getting there. Due to go back to work full time after Easter - which is 2 months later than I originally thought.
Do take care of yourself - we only live once!
Well done both of you - keep smiling and taking the pain killers when you need them. Other learnt fact - take notice of your own body and stop if you need to. Pushing does not always help post operative stuff. slow and steady wins the race I reckon - now
I had my drain in a hospital carrier - plastic. Only advantage was it was enormous (usually used for all your clothing pre-op). My friend had a oerfume bag - Prada dont you kknow!
I was in 2 nights not one - it was good to have had a chance to get used to the drain. I was not shown it before, but had seen a friend with one.
If you are haing immediate reconstruction - it is wierd after, as you "look" the same - but bandaged, and it all feels sore. Just take small steps though afterwards
Hi ladies. If u want a heart shaped cushion then next do them. Been a godsend for me after Wle and slnb as I carried it under my arm resting my shoulder so it didnt stiffen and 10 days on have full use and movement. Hope all goes well for u. I get my pathology report today so will find out if I need chemo before my double mastectomy in a few months. X
Getting there - I have struggled post op - when all the support goes and have felt very vulnerable and fragile; and that gets you both physically and mentally. wierd
I think the more people you can meet the better - although, just like this website, we are all unique and are own journey. Only the hospital - if they know - can put you in touch with someone the same as you.
I was lucky enough to meet Liz - the same diagnosis, same op, same recon, same dominant arm and even same job - the difference? Age - she was older than me and now retired. Neverthless, realy useful.
Anything with buttons down the front - track suit tops, cardigans I suppose even shirts - but i feel the cold
the consulltant chose mine - he said he'd weigh and measure what he removed, look at the shape and work on the best match. I did leave it to him! His expression was "I'll see how you fall on the table"!!! But i knew what he meant - i think.