I'm being treated at the Churchill too. Just found out today I have to have chemo, so waiting for oncology appointment. i hope I won't find it as tough as you did.
Hope the radiotherapy goes ok. I met someone at Maggie's at the Churchill who has been having RT & she said it was fine but takes a long time for them to line you up before zapping! Fingers crossed for you.
Feeling better already, lets hope all the love and hugs we send eachother will help us stay strong - we must always remember we are not alone 🙂 x x
Sandra x x
Good morning all you lovely ladies
good luck for those of you getting your results x
I'm still waiting for an appointment to see oncologist to make decisions re having chemotherapy
will be thinking of you all
love and hugs
Yes can be a lonely experience. The only people who really understand are those who have been thru the dreaded Cancer or are going thru it now. Family and friends are caring and full of optimistic advice but they dont really know how i feel. This forum is a godsend. We are all in in together and its great that we can help eachother through each stage.
My appointment is 24th too! I hope all goes well for you. Fingers crossed for good news for both of us.
Let me know how you get on.
Thank you for all your comments Ladies,
Really helps to know you are all out there..... pathology results tomorrow!! Had to visit hospital yesterday because of large Seroma under arm. The Breast Care Nurse was wonderful, full of empathy and understanding and yet positive and cheerful. They do an amazing job. I felt much more comfortable once the fluid was drained but still quite sore.
I think we are all having the same fears and anxieties. My emotions are like a yo-yo, I can feel optimistic one day and then have convinced myself that the Cancer has spread another day. I want to know my results tomorrow so I know what the next couple of months have in store for me but if its bad news then I wonder how much more stress I can cope with before I buckle and have a complete breakdown. Everybody has commented has positive I am, and like others on the forum I wonder how I am being so brave?? I suppose you dont understand how you will cope until you are put in the situation. Being pessimistic isnt really an option because it would seem like giving up and I dont want to go down that road!!
One day at a time, I will get through today and hopefully sleep okay tonight and prepare myself for results tomorrow.
Sending all you ladies my best wishes too.
I had surgery on the 8th June and I'm going back to see the consultant tomorrow for results. I hate waiting for results but also hate not knowing what is going happen next and when. Friends and family ask what now I know I will have radiotherpay and tablets but not when it will happen. Still feel like its happening to someone else , due to go back to work on Monday - but to be honest I don't know how I feel about that too. Feeling confused!
Ive jiust finished my rads, but reading what you said, i felt same as you, she told me when doing biopsey it was more or less sure to be cancer and my first node was suspect, So by time i got results i knew really,in fact i think i always knew, i found a lump. bniut i never felt ill, once, never have, My first surgeon gave me worstcase senario, chemo the lot , didnt like him, changed.second one much better, and once lump removed, and all nodes taken things improved as margains clear,other nodes clear, first borderlime chemo my choice, then oncologist said, not needed, just rads and tamoxifen. So it can easily get better, but you never think it will, and you seem in a dark place sometimes and other times feel pefectly normal .Keep us posted.
Apologies for all the typos - I would like to blame the surgery but it's more like "should have gone to specsavers" !
Overthinking is definitely an occupational hazard of this cancer patient job but doesn't do anyone any good. It is especially difficult to avoid though, when you can't distract yourself with your usual activities. Hopefully you will feel better once the drain is out. Luckily mine was removed before I was discharged the day after surgery (just as well since I kept catching it on things whenever I was out of bed). I know exactly what you mean about the mixture of emotions. It is a huge leap into the unknown, as you say.
If it's any comfort to you, I found what turned out to be an invasive cancer but, like you, also had calcifications on mammo, which proved to be DCIS (pre-invasive). So I had the tumour & the DCIS removed. It's good that your cancer is Grade 2 rather than 3. The high grade of mine worries me, as I was told that the type of cancer I have is 'sneaky' & good at getting out of the local area. That's why chemo is likely I think, as well as my age, (50 this summer), which the medics seem to consider young!
Anyhow, I wish you all the best with your post-op recovery & further treatment.
Hi Nico I am just browsing the forum. I too am waiting for Path results on 30th June. I have a constant headache through over thinking and I feel that even though I am reading things from the information BCN gave me when in with the Specialist I am still totally confused, Mammogram showed "calcifications". Biopsy/Specialist appt said "afraid it is a cancer and you will need surgery (wide excision etc) and Lymph Biopsy and deffinately Radiotherapy" I hardly heard anything after this.
I have had my Surgery 15th June so six days now, was given a copy of report that is sent to my GP-- "Grade 2 invasive cancer with High Grade DCIS" what the heck have I got, I have cried, and can do if I think too deeply about it but it doesnt seem as if it is real and very serious - this is the news no one wants.
I dont feel anymore "worried" at times than when I had had my Knee Replacement Surgery - it was just a case of getting over the pain of it- but this is more serious so I should be terrified?? why am I not? or has it not hit me yet? It does feel like limbo or a dream and they have made a mistake I dont feel ill found no lumps cant believe I might feel very poorly at times from now on. I am dreading Radiotherapy and like you deffinately dont want Chemo. but we all have to get through this however we can.
It is the unknown, everyone is getting on with it in a different way but this site will help you let off steam as they all feel what you feel whereas family etc can only say things but dont understand properly.
I still have the drain in from hospital- not sleeping well at all and d/n has changed dressings again today as I am getting a little sore where the drain is in, she feels it will be gone tomorrow but they have said that since 3rd day its now 6th day! I am usually out and about every day and find being in the house on my own so long and boring - my husband still works (i am 68) as I am also partially sighted I find it hard to have any hobbies to occupy my mind until I get drain out and can get out.
See, this site is brilliant I have let off a bit more steam and am now ready for Sunday evening meal husband has cooked. God luck with all of your treatment and for a sucessful outcome.
Thanks for replying. Feel less lonely already! Sounds like you've been through a lot, so well done for keeping positive. I'm very pessimistic by nature but am trying to overcome that because I think I'll need my energy for other things, whatever happens next. I'm sure it will help to know exactly what the next step is, as uncertainty is the worst thing for me.
Hope your first chemo goes ok. Who knows, maybe I'll be joining you in the July batch & we can get through it together.
I had a mastectomy on 22nd April and only now feeeling human due to haematoma and what I considered to befairly severe seroma issues but start chemo on 1st july to be followed by 15 lots of radiotherapy. It is hard to stay positive but I feel quite scred bout it all but try to be a half glass full person so lok ofr the positives - hard to findsometimes. I agreeit does feel quite lonely sometimes - my breast care nurses are brilliant and this forum is useful sokeep going.
Hello SARN66 (& everyone else on this journey no one wants to be on)
I'm new here & glad to have people to share all this with. Is anyone else being treated at the Churchill Hospital in Oxford?
I had surgery (therapeutic mammoplasty & SLNB) for Grade 3 invasive micropapillary cancer on 8/6 & am going back on Wed 24/6 for results & treatment plan. All this waiting is so hard. I have been told that I am 'at high risk' of needing further surgery ie a mastectomy. I really hope I don't need it. Hope I don't need chemo, though it's likely I will. Dreading the future but fed up of being in limbo. Does anyone else find it a lonely experience?
Hi - I had lumpectomy on 8 June, but unexpectedly had all the nodes removed as well which has hampered recovery for me. They analysed my sentinel nodes during surgery, found cancer and then took all the nodes out. I had my histology results on 18 June, and the cancer was not in any of the other nodes. It was in the blood vessels though so now have CT and bone scans before chemo, radiotherapy, herceptin etc etc. I posted a question about fluid accumulating after removal of the nodes but no responses so far!
Glad you are back to work soon, are you having any further treatment?? I was originally told that I would have op and then about 4wks later would have 3wks radiotherapy treatment. But I know this will depend on my lymph node study result. I am now worried that it may have spread to lymph nodes and this may mean chemo instead or as well as. Did you have a treatment plan pre op too and was this the same as your post op or did it change?
Sandra x x
glad op went well, I didn't have any big swelling issue's my op was on 25th may and pretty much feel over surgery and going back to work on 29 june.
had my meeting with surgeon yesterday for results, take someone with you that can make notes and take in more detail than you probably will be able to and you can ask for a copy of the path report
did they give you any indications before what the plan might be?
good luck and keep chatting here, helps soo much. One of the threads I use is just diagnosed, great bunch of boobie brigaders there
After 5 weeks of waiting I had my surgery last Thursday. First few days I felt sleepy, light headed but didnt have much pain at all. Yesterday noticed swelling under armpit and a bit more pain, GP said I had small heamatoma but breast care nurse was happy to leave until I see her next week unless it got a lot worse over wknd. My bruising has changed colour from black to green, Incredible Hulk comes to mind! lol!
Anyone else experiencing swelling post surgery?
The next big hurdle is my appt next Wed to find our results of lymph node study, fingers crossed for a good result. I should be getting good at this 'waiting game' but it doesnt get any easier does it?
Anybody just had their post op appt?? How did it go?
Thanks for your continued support