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Results are in

22 REPLIES 22

Re: Results are in


@Cs66 wrote:

I'm glad you have found  some support here. It helps so much. It is very hard to show weakness and vulnerability when you are used to being strong. I felt the same about my family and just wanted to protect the.m from it all. It's so hard but you will get through. Take support where it is offered. My friends have been amazing.

I can't sleep due to the vast amount of steroidis I have had to take before my next chemo tomorrow! Only one more to go after this though. Thank god!

claire xxx

 

Hi Claire,

Only just seen this! Thank you so much.  X

 

Re: Results are in

I'm glad you have found  some support here. It helps so much. It is very hard to show weakness and vulnerability when you are used to being strong. I felt the same about my family and just wanted to protect the.m from it all. It's so hard but you will get through. Take support where it is offered. My friends have been amazing.

I can't sleep due to the vast amount of steroidis I have had to take before my next chemo tomorrow! Only one more to go after this though. Thank god!

claire xxxx

Re: Results are in


Many thanks Claire.  I spent two days crying. I tend to be a strong person but this is the latest of several setbacks in the last year and I just can't bear what all this is doing to my family. Just talking to a couple of people on here has given me hope xx

 

Cs66 wrote:
Just seen your post OAD and I want to reassure you. I had surgery initially in October last year for what they thought were two small tumours in my right breast and a tiny tumour in the left. I had a right mastectomy and lumpectomy on left with sentinel nodes taken on both sides. Results were in and even though I was prepared for bad news it was worse than I thought. A third bigger tumour was found on the right that had gone undetected on mammogram, ultrasound and MRI and there was also a nodule in my chest wall. I had a 12mm tumour in lymph node too.
On the left they found extensive DCIS but lymph was clear. It was back to surgery six weeks later for another mastectomy and full lymph clearance on the right.
The day after those results I was a complete and utter mess and I could not see how I would ever get beyond the shock and move forward. I just cried and cried.
I didn't have the full set of path results until 21st December and I found the limbo of waiting and not knowing very difficult.
I am now about to have my fifth chemo and I feel really positive and strong and determined to get back to normal. I healed well from surgery and the chemo while not pleasant is manageable.
There is lots of support here which has been a life saver for me as people who are going through it understand. My breast care nurse was great too.
Once you have a treatment plan you will feel better as you will know what's ahead. Feel free to PM me. I know exactly what you are going through.
Lots of love
Claire xxxx


 

Re: Results are in

OAD I have sent you a test message see if you get that and you reply from there. Hope your ok. Lou x

Re: Results are in

Just seen your post OAD and I want to reassure you. I had surgery initially in October last year for what they thought were two small tumours in my right breast and a tiny tumour in the left. I had a right mastectomy and lumpectomy on left with sentinel nodes taken on both sides. Results were in and even though I was prepared for bad news it was worse than I thought. A third bigger tumour was found on the right that had gone undetected on mammogram, ultrasound and MRI and there was also a nodule in my chest wall. I had a 12mm tumour in lymph node too.
On the left they found extensive DCIS but lymph was clear. It was back to surgery six weeks later for another mastectomy and full lymph clearance on the right.
The day after those results I was a complete and utter mess and I could not see how I would ever get beyond the shock and move forward. I just cried and cried.
I didn't have the full set of path results until 21st December and I found the limbo of waiting and not knowing very difficult.
I am now about to have my fifth chemo and I feel really positive and strong and determined to get back to normal. I healed well from surgery and the chemo while not pleasant is manageable.
There is lots of support here which has been a life saver for me as people who are going through it understand. My breast care nurse was great too.
Once you have a treatment plan you will feel better as you will know what's ahead. Feel free to PM me. I know exactly what you are going through.
Lots of love
Claire xxxx

Re: Results are in

I'm so sorry that you have clearly had some very upsetting news, as Anita says there is nothing you should feel you can't ask for support with but of course I respect your wishes if you don't feel able to talk about it Xx Jo 

Re: Results are in

I'm waiting for the results of my surgery OAD & I do think you worry that it won't be what they originally thought. I didn't see my surgeon after the op but another lady who had hers before me did & they were laughing & joking. So when I thought about it when I got home I thought maybe that's because mine is bad news. I'm so sorry about whatever you've been told. If you want to share I'm sure we'll be fine with it but that obviously has to be your choice. Anita xx

Re: Results are in

Thank you Lou, I typed a message but for some reason it won't let me send it!! 

 

Jo, thank you but sadly my results were a lot more shocking than not getting wide margins and the need for more surgery.  I was aware of the possibility of that but I wasn't expecting the possibility of a totally different and new diagnosis. 

 

 

Re: Results are in

Of course you can OAD x

Re: Results are in

OAD there are plenty of ladies here who have had to have multiple surgeries to get clear margins, it's not what you want of course but it's not unusual, please don't feel you will upset anyone here by posting about your experience, often it can help as others who have been through similar can offer you lots of support Xx Jo 

Re: Results are in

Hi Lou, do you mind if I message you privately? Just don't want to worry others who might be reading this ... OAD

Re: Results are in

OAD did you have WLE that's what I had first but I didn't get clear margins so had the skin saving mastectomy. I am thinking of you. Lou x

Re: Results are in

Thank you, I don't really know much more as now waiting for more surgery and more results ...

Re: Results are in

That's fab news Lou! So pleased for you. Hope you enjoyed the Prosecco 🍸🍸. Kerry x x 

Re: Results are in

We are here when you feel up to talking love, many ladies here have had a similar experience and now nearing the end of treatment so always someone to share their experience with you Xx Jo

Re: Results are in

So sorry. Let us all know once you feel up to it. Big hugs. Lou x

Re: Results are in

Far worse than biopsy suggested, another cancer found.  Sorry can't type any more at the moment, feeling physically sick x

Re: Results are in

Sorry to hear that OAD what results have you had? Lou x

Re: Results are in

On a diversion ..... Oh my lovely what's happened?? 😕

Re: Results are in

I am reliably informed by my friend who is a Pharmacist that I can have a drink with the antibiotics that have been prescribed. That said I feel tired tonight emotional exhaustion I think so I may save my celebratory drink for another day. Lou x

Re: Results are in

Mine too, bad news here though 😢

Re: Results are in

Great news Lou! Pity about the Prosecco 🍸🍸 Xx 

Results are in

Good news following my skin saving mastectomy and node clearance pathology results confirm no cancer in any of 15 nodes removed or in the breast tissue. So altogether 18 noses removed and only the 1 removed following initial SNB and lumpectomy had cancer. I am now being referred to Oncology.
I am on antibiotics as I may have an infection re implant had fluid drained off and have red area on boob. Back for results Monday and hoping it is just a fluid build up following removal of drain. Very happy though with results would celebrate with prosecco but better not given the antibiotics . Lou x