Hi, feeling a bit lonely…just started treatment, and wondered if there’s anyone else in similar circumstances? HER2+, grade 3 inter ductal, liver Mets. No surgery.
Sheila x
Hello Sod6162
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best wishes
June, moderator
Sheila i am so sorry to hear your dx but i found myself in the same situation and i agree its a very lonely and scary place to be.
I was dx early April with early stage 2 bc that had spread to the nodes and i have a lumpectomy and full node clearance the things went downhill. Now regraded stage 3 with 18 nodes positive. Had a clear bone scan but did not get clear margins so was due a seond op.
Now told CT scan not clear and my consultant discussing it Monday at a multi disciplinary team meeting and they wont tell me any more until after that so i am terrified.
I know it has spread but dont know the details so thinking the worst.
Stay Strong xxx
What treatment you having and why no surgery
Tricia xxx
Hi,Sheila,there are a few of us on here with a double whammy diagnose.
We tend to hang out on bone mets thread regardless of what mets we have.
We are a very friendly bunch,slightly mad,full of advice we support each other as we are all in that leaky boat together so we understand.
Huge hugs,Helen xxxx
Hi Sheila, I can’t remember the exact percentage of us diagnosed with mets at time of initial diagnosis but it’s higher than most would expect. I was stage 4 at diagnosis, bone mets, had spontaneous hip fracture when I was in my early 40’s. This was twelve years ago and I still have my primary, it’s very small, mostly scar tissue. It was very unusual then to have any surgery if stage 4. Take Care. X