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Diagnosed with breast cancer

23 REPLIES 23
suzanne14
Member

Re: Diagnosed with breast cancer

Thank you xx

Poacher65
Member

Re: Diagnosed with breast cancer

Hope everything goes well next week. Rest up xx

suzanne14
Member

Re: Diagnosed with breast cancer

Hi

glad everything went well for you, had my surgery 10 days ago, feel ok very tired and very sore in my armpit after lymph node biopsy.  Back to see consultant Monday for next results and what’s going to happen next.

bug hugs xx

suewom
Member

Re: Diagnosed with breast cancer

It did thank you I went to surgery at about 19:30 last night. I didn’t get any sleep but am able to go home as soon as my meds arrive. Looking forward to my own bed xx how are you doing. ? Xx

suzanne14
Member

Re: Diagnosed with breast cancer

Hope everything went well xx

bookish
Member

Re: Diagnosed with breast cancer

Thinking of you and sending good wishes xx

michelle1972
Member

Re: Diagnosed with breast cancer

So it’s d day... diagnosis day... see you all at 6pm

suzanne14
Member

Re: Diagnosed with breast cancer

Big hugs to you, it’s such a difficult decision, I made the decision to have mastectomy and reconstruction at a later date, got my surgery date today next Wednesday so I’m a state. We will get through this together our surgeries all seem to be around the same time so keep sane, keep in touch we can and will beat this xx

suzanne14
Member

Re: Diagnosed with breast cancer

hi Sue

got my surgery date this afternoon going in Wednesday at 12.00pm seems so real now, no time to think about it, will let you know how I get on big hugs xx

Tulips
Member

Re: Diagnosed with breast cancer

Hi

I have been diagnosed with invasive Breast cancer and found out thursday i need a mastectomy. I was given option of immediate reconstruction. Such a difficult decision to make.

I have decided not to have the reconstruction immediately. Appointment tomorrow with consultant so hoping to get some dates as really just want to get cracking with treatment.

Finding it hard to control my mind.

Sending hugs

suzanne14
Member

Re: Diagnosed with breast cancer

Hi Suewom

thanks for letting me know, stay strong, I agree the waiting is the hard part especially as the decision you have made,  we will get through this together, keep in touch big hugs take care xx

suewom
Member

Re: Diagnosed with breast cancer

Hi Suzanne

i had my letters with dates today so starting to feel very real now. I just want to get on with it the waiting is the worst I am finding. Keep in touch and we will get through it take care xx

suzanne14
Member

Re: Diagnosed with breast cancer

Hi Suewom

Thanks for your messsge I too am now waiting for my surgery date, somewhere in the next 3 weeks now, I think I will be in the same situation as you, I am opting to wait for the reconstruction surgery get the mastectomy over and done with, cope with that and then see how I am feeling regarding the reconstruction surgery. I saw my Macmillan nurse yesterday and got my foam boob for after my surgery, she helped me a lot, so if you can make an appointment to see yours ASAP if you haven’t already.  Big hugs to you stay strong and positive and stay in touch we will get through this together xx

suewom
Member

Re: Diagnosed with breast cancer

HI Suzanne

I have not yet had the mastectomy i have surgery on 15th april. i have not been given the option to have reconstruction straight away and i think this is because of covid but my consultant has said that he would be happy to refer me at a later date. I haven't yet decided if this is something i will opt to do - i will think about it later on when the surgery and treatment is out of the way.

take care

suewom xx

suzanne14
Member

Re: Diagnosed with breast cancer

Oh bless you, that is so harsh, I knew deep down after having to have 2 separate double biopsy’s it it was still a shock to hear the c word, a lot to take in, trying to speak to people who I know that have been through this.

try and stay positive hard I know but if you need to talk just message me, I’m seeing my Macmillan nurse this morning, on my own so I can talk and express freely big hug to you xx

suzanne14
Member

Re: Diagnosed with breast cancer

Hi Seabreeze

thank you for your message, I’m seeing my Macmillan nurse today, I appreciate your personal experience and it is a lot to take in

suzanne14

Pandabear
Member

Re: Diagnosed with breast cancer

Dear Michelle, 

Just wanted to reach out and offer a big virtual hug. 

You are probably in a bit of shock at the moment having just been diagnosed, but do come back for further support and questions. All the ladies on here are lovely, and although you wouldn't want to be part of this clan, it has been a comfort to hear from those who have been there too. They just "get it". 

So do let us know how you are getting on. 

Take care X 

michelle1972
Member

Re: Diagnosed with breast cancer

I was diagnosed today... well told extremely likely “ you knew when you came in... didn’t you”

 

I wish I had answers for you... I’ve been told to only read this website x

Seabreeze
Member

Re: Diagnosed with breast cancer

Hi Suzanne14,

I'm not familiar with the specific type of bc you have been diagnosed with, the mucosoidal (typo alert!)....however in case it helps your thinking....

I was diagnosed with invasive ductal carcinoma in 2014. Yes, you are right that if the margins aren't clear it is possible they may need to do another operation, however I think (and perhaps it's a question to ask your onc/surgeon) that the surgery may be less extensive/intrusive than a mastectomy? Plus the vast majority of margins are clear after the first round of surgery since specialists make the decisions on how much to remove. 

For me....I felt extremely uncomfortable being really quite lopsided, you can get prosthesis to fit over the smaller breast but I had an extremely rare skin reaction to this. Hence I had a reduction a couple of years later on the larger side. Now - there are days when I actually 'almost' forget I ever had bc and I don't think I would feel that way if I'd had a mastectomy, even if I'd had an implant or implants. While it is an extremely personal decision, another thought in my mind was that even if someone has a mastectomy, I think (and again perhaps another q for your medical team) it is possible to get a recurrence behind the implant in the chest wall? I might be wrong on that so do check, and clearly there are risks whichever route you decide on, but for me I would have been worried about what might be going on below the actual implant. You could also ask your surgeon about whether there is any statistical difference in quality of outcomes... for my diagnosis I was told breast conservation surgery plus radio had roughly the same outcomes as mastectomy.   

Additionally, the reduction op, while of course you still have to get over the anesthetic, the actual surgery is far less invasive than for the lumpectomy (since they don't need to be so careful as getting in behind the lump avoiding any risk of spread of any cells) and as such the recovery is much, much quicker and easier (and far less pain too).   

I hope the above helps - more than happy to answer any q's you might have. My scars have faded well too.

At the end of the day it is what feels right to/for you that counts in this this bc journey. I appreciate it might take a while to decide what is right for you... which is where we all come in with our experiences!  

XXX Seabreeze      

suzanne14
Member

Re: Diagnosed with breast cancer

Hi Suewom

Sorry to hear you are also going through this as well, thank you for your advice, mastectomy is the way I am leaning, as lumpectomy is only 80% that they get all the tissue, then they may have to go in again to get anything left, that’s 2 surgeries already, then breast reduction in time on other breast, who says it might not be mastectomy after all that? Do you mind me asking did you have breast reconstruction at the same time as your mastectomy I’m hearing stories of infections and to have that done separately at a later date

appreciate your help

suzanne

suzanne14
Member

Re: Diagnosed with breast cancer

Thank you for the reply and support, have had a lot to think about, family are so supportive and yes I didn’t think I would be on this forum 😃

Pandabear
Member

Re: Diagnosed with breast cancer

Dear Suzanne,

firstly welcome to the forum, although I am sure you never wanted to be here, but I hope you will find support from all the lovely ladies, which I did. 

Next....breathe.......take your time.  You've got this.  Take time to think about what is best for you, and what you feel you can cope with.  Ask lots of questions from your team, the surgeons, the breast care nurses.  Ultimately it is your decision, but we will be here to support you whatever you decide.  

Just getting your head around diagnosis can be challenging,  and I am sure that you will find the next few weeks a whirlwind, so take care of yourself, eat well, and rally all the support that you can from friends and family.  

Do let us know how you get on, and feel free to come back and ask questions, as you learn more about the future plan for yourself.  It becomes an education in itself, learning all the terminology etc.  

Big hugs x 

suewom
Member

Re: Diagnosed with breast cancer

Hi Suzanne14

i too have recently been diagnosed with breast cancer and was given the option of a lumpectomy and radiotherapy or a mastectomy and chemotherapy because it was her2+. I don’t think anyone can make the decision for you but I can tell you my decision and reasoning if that helps. I have decided on a mastectomy because in my mind even though I was advised the outcome would probably be the same, I wanted to try and remove anything and everything I possibly could. It is such a terrifying time and I was talking to a lady last night telling her before diagnosis I thought breast was breast cancer and didn’t realise about the receptors. I hope you make the right choice for you and take care xx

suzanne14
Member

Diagnosed with breast cancer

Hi, got diagnosed yesterday with mucinous breast cancer, in shock and worried, have been offered lumpectomy or mastectomy need some advice on best option leaning toward mastectomy.