Hey everyone, new to the site! Just want to say a big hello to everyone.
Im 33 years old and been diagnosed with HER2 positive.
My tumour is 2cm with around 3 nodes swollen but only one was tested with biopsy.
I had my first chemo session on the 24th july along with the Herceptin injection
Im having 6 rounds of chemo every 3 week… operation ( maybe more chemo ) then radio afterwards.
Anyone else similar age?? Or HER2 positive.
Im feeling positive about it all as no one as said anything bad to me and asked if i wanted to reserve any of my eggs for future pregnancy. I decided not to and just crack on with treatment as i have a 2 year old anyway.
Thanks Jemma. Xx
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Hi @jeml - there’s a HER2 + group on here that’s very friendly. I think it’s called ‘HER2 positive and need some buddies’ there’s also a July chemo starters group and a younger women’s group- so lots of support for you going forward. I wish you the best of luck, it’s a tough journey but sounds as though you’ve already started and hopefully your chemo is going well? Emma x
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Hello Emma and thank you for replying to my post! Yes im having my second round next wednesday! Bring it on i say. I know its a tough journey but i just want it to go quick as possible.
After my first round of chemo my breast swelling as gone and feels like my other breast so taking it as a good sign.
Are you going through treatment ?
Which one is the younger group?
Thanks, jemma x
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Well now of course I can’t find the younger women’s group! Hopefully one of the moderators will be able to provide a link for you
@Shi - are you able to help at all?
I finished my chemo last month and am due to have surgery on Friday. It was a fast growing tumour but the chemo shrunk it considerably and it sounds as though yours is doing the same- which is great news! Emma x
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Best of luck to you! Im sat with my mum at the minute and we both wishing you the best.
Was yours also HER2?
Did you feel any relief or different after the first round of chemo then?
Mine was swollen like an egg and i noticed a difference a couple of days after.x
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Hello @jeml I am 38 and was diagnosed HER2 positive in May. I’d definitely recommend joining the HER2 positive group on here, lots of people and chatter on there and lots of useful information too.
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Hello and thanks for replying!
Not happy to see other younger people obviously going through this but happy i am not alone either.
How you getting on? X
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Hello JemL,
Im 31 now- 29 when initially diagnosed and was very similar to yourself- Her 2 positive and chemo, surgery, radio and herceptin.
Thats great that you can already feel a difference in your lump! I did too but think I only really noticed it after the second/third one so that’s definitely a good sign 
I had an ultrasound after 3 cycles and it had shrunk a good bit- ended up with nearly a complete pathological response to chemo at the end of the 6 cycles. I found chemo the hardest part- I really struggled with side effects but it did its job!!!
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I’m getting on ok. Lots of ups and downs and twists and turns. I started chemo at the end of June and have now had 3 cycles. I am moving onto another type of chemo this month which will be weekly. Then surgery and radiotherapy. How are you coping? It is utterly dreadful, but it is nice to connect with other people who are going through it and share information etc x
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Its shocking isn’t it! You never think its going to happen to you and specially with being young.
Do you mind me asking if you had any node involved too? They tested one node but said 3 showed up swollen.
I have my good days and bad days but my 2 year old gets me through it all.
My bad days creep in and i worry that waiting for my next chemo cycle ’ what if it goes in another node ’ stuff like that.x
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jill1998, Bernard are you able to add the link for the younger women please 
Shi xx
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Im not too bad at minute, i have a 2 year old and she is a big distraction…she is currently using me as a climbing frame as we speak.
I was scared about having chemo… i just never thought it would happen to me. But after my first round i not scared now… i know what to expect and try and keep on top of my side effects.
I found the injections the hardest… a few days into them i had sickness.
Im glad i joined now… i feel less alone x
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It really is. Nothing can prepare you for it. I am node positive too. They biopsied 1 node and it came back as positive for cancer. I have 2 kids aswell, aged 5 and 8. They definitely keep you busy and can be a welcome distraction. My 2 bring some humour to the whole thing aswell which is needed x
I have said exactly the same thing about my little one.
They offered to refer me to gyne so i could have my eggs frozen… but i decided not to bother i just wanted to crack on with treatment.
I think we just need to take each day as it comes. Will be glad to see back of 2024 though, my grandad passed last week too. Its just been non stop!
Are you having chemo every 3 week? X
Welcome to the forum @jeml
I am so sorry to hear about your diagnosis, but glad that you have reached out here.
The thread that people have been mentioning here about HER2+ is this one: HER2+ and need some buddies - Welcome and how to use the forum / Introduce yourself - Breast Cancer Now forum.
The younger women’s group that has also been mentioned can be found here: Latest Connect to people like me/Younger women topics - Breast Cancer Now forum. There are many discussions on there from emotional support to local resources, which may also be of interest to @jeml, @fhs92 and @rrey.
We have face-to-face and online groups that offer tailored support and the chance to meet people who understand what you’re going through, in a space that’s just for women aged 20-45. You can find out more about these here: Younger Women Together | Breast Cancer Now.
Please know that the forum is here for you.
Sending our warmest,
Lucy
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I’m 32 and just recently diagnosed. I don’t know all the terminology. All I know is that I’m stage 0 and having a lumpectomy on August 22nd. From there, the decision will be made what to do. I have an 8.5 year old son and a family history of breast cancer on my maternal side. Never thought it could happen to me this young.
Not at all- Yes I had at least one positive node when they did the initial biopsy. By the time I had my surgery (after chemo) they said they found microscopic traces of cancer in 1 maybe 2 nodes but I had a complete auxiliary node clearance anyway due to my age and because they had found cancer there initially.
Yes it’s such a shock- I had no family history either. I also had a different cancer as a teenager (apparently totally unrelated I must just be unlucky 
). You are very much in the early stages so just take one thing at a time. Emotionally I found everything didn’t hit me until the end of my active treatment so just be kind to yourself!!
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I had a lumpectomy and just wanted to reassure that it was so much easier than what I had built it up to be in my head! The recovery was pretty easy- I also an auxiliary node clearance at the same time with mine (which I’m assuming your not having- stage 0 is great news!).
In my experience totally doable. You’ve got this!!
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Hi, I’m 36 and HER2 positive. Was diagnosed end of March and started chemo mid April. Was originally for 4xEC fortnightly and 4xDocetaxel with Phesgo injections every 3 weeks but I now only need 3 Docetaxel due to having a good response at my midway scans. My tumour was about the same size as yours (no node involvement found) and I started feeling it going down fairly quickly. Plan is for lumpectomy and SLNB and take it from there. The pathology results from surgery will dictate how long I need my Phesgo injections for and how many radiotherapy sessions I’ll need. Have been told it could be 20 but won’t be decided till we have more info. I don’t have children but didn’t do any of the fertility stuff either.
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Sorry to hear about your diagnosis stage 0 is really good though and hopefully they might give you mascetomy due to family history.
Glad it was found really early for you x
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