Good luck for today xxx
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Hello. It’s confirmed, a triple negative cancer. It’s in the lymph nodes but my CT scan isn’t til Monday.
Can I have a handhold. Even though I expected this, I’m devastated. And terrified for my CT scan. I keep thinking of my beautiful tiny kids.
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I am so so sorry darling. We are here. X
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I’m so sorry hun . I’m a week ahead of you in the process and this is the really hard bit but know they are doing everything quickly behind the scenes. Try to ignore google things have come a long long way and a lot of that info is out of date. Trust the doctors they know what they are doing. I’m here whenever you need someone feel free to message me Direct. We are all here for you xxxx
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So sorry this is huge to get your head around. This was my same diagnosis 16 years ago TN stage 2 node positive and things have advanced a lot since then.
Thinking of you xxx
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There is treatment.
You are not alone.
Hugs x
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Is this normal, to feel completely riddled with cancer? Every pain I have I’m convinced it’s spread everywhere and they will tell me there’s no hope. It’s torture
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It is a normal but horrible feeling. Mine isn’t TN but I have node involvement. I was absolutely terrified waiting for my CT scan and then subsequent bone scan as the CT flagged some bone islands which were thankfully benign . The unknown and waiting for results was the worst feeling ever. I got my results yesterday that all was ok and i burst into tears and my nurse gave me a big hug.
I had so many aches and pains in the lead up to the scans but nearly all have gone in the last 24 hours. We focus on our bodies more once diagnosed and hold on to so much tension and anxiety.
Big hugs to you x
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There is always hope…… but I think its normal to feel how you do….. I was the same, a slight headache meant it was in my brain rather than the fact as a busy mum running round after my son (who has a disability) its normal to get the odd headache! And if you are tense, then more likely to ache so its a vicious circle. Try to be kind to yourself and take one hour at a time. All the waiting is the worst and it will seem much easier a bit further down the track. I’m lots of us will hold your hand virtually.
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Yes agree with Bella I’m aching all over but also remember you had biopsy’s and they will take time to heal so you will be having some pains from That x I’m at the doctors tomorrow to get something for the anxiety. I wouldn’t wish it on anyone x
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So glad it was all ok for you Bella.
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I am so sorry you have tnbc and that it’s also been found in your lymph nodes. You are now in the really horrible phase of waiting for your CT scan and results. It really is the most difficult bit. Your worst fears of it being everywhere are unlikely to be realised. It’s fairly normal to experience aches, pains and random symptoms at this stage. Hopefully they will settle when you know what you are facing.
I was diagnosed with tnbc in 2022. I found it had spread to my liver a few months later when I had a CT scan for another reason. It hadn’t been in my lymph nodes. But I am still here. Mine was PD-L1 positive, so I was able to be treated with pembrolizumab alongside chemo. I achieved a full remission and it has remained stable. There’s always hope.
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Thank you so much all. Thank you. It means a lot to here your stories. I need that xx
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Thank you @linz1314 x
Yep my left (definitely clear it’s been MRIed) breast twinges way more than the right one that’s had a lump removed from it. It’s like a jealous sibling!
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So sorry to hear your update @wildthingsare.
I have TNBC myself and have been through the “oh my god it’s going to be everywhere” phase but luckily my scan results have shown it isn’t so far!
Hopefully you feel a little comfort in knowing you’re not alone in this and you’ll probably find once you have your treatment plan in place, things will start to feel a bit more settled.
Massive hugs to you. x
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Not TNBC but a 7cm tumour which they seemed pretty worried about spread - the couple of weeks between diagnosis and getting the CT results back were the absolute worst part of this. Worse than chemo. The number of things I were convinced were now symptoms of metastasis: hip pain, chest aches/tightness, birthmarks, headaches… I had a full panic attack about tightness in my chest, caused by me clenching my body and guarding my cancer side.
No matter what happens with the CT results, and statistically you’re likely to get good results, you’ll not always feel like this. These feelings will pass, and get easier, and you’ll take everything one step at a time.
There’s a lot to learn and absorb, you don’t need to do it all at once, and everyone here is incredibly supportive and here to help.
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@wildthingsare I am very sorry to hear the news confirming your fears. The CT scan waiting is nothing short of hell - please know you are not alone and things will improve. I cannot explain how much having a treatment plan will help mentally and the thought that you’re on the pathway to getting rid of this cruel disease.
What you are experiencing is normal. I had pins and needles in my hands and feet until my results - convinced it was a trapped nerve in my spine from bone mets or brain spread. With hindsight it was probably psychosomatic. Terrible migraines I’d been having were spread to the brain in my analysis. It was torture…
I’ve just finished my neoadjuvant chemo (which you will probably have first with TNBC) - there are lots of threads on here for each month of chemo starters to guide you along the way. My experience has been nothing like as bad as I expected.
I am keeping everything crossed for you with your next stage of results. If you want to reach out to a fellow 30 something with young kids just message me. It is a minefield at the beginning trying to get your head round everything.
Despite the absolute trauma that this diagnosis brings, the community you encounter is amazing. It gives you such perspective on life too. If your experience is anything like mine your kids will help get you through the tough days because their very existence is a reason to get through them. Sending so much love, you’ve got this xxx
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Hey lovely I was 37 when diagnosed with pleomorphic lobular cancer that had spread into my nodes I also have children. I felt the same I was diagnosed December 2024 and I am now cancer free just wanted to give you some hope and send lots of love and strength x
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Hi all, just reaching out again for some reassurance. I have my CT scan tomorrow and the nurse has said she’d phone with the results on Tuesday, even if it’s ‘difficult’ news. This is the hardest thing I’ve ever had to do. Do I just keep putting one foot in front of the other right now? Trusting that I’ll get through it?
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