Oh no, Claire, I’m so sorry to hear that your gut feeling was right! At least the lymph nodes are clear and it’s hormone receptive. I wish you all the best for your treatment and after, you’ll make it to the other end, with the lovely support of your family and these amazing people here.
Nicole xx
Don’t know if I have posted this correctly. I am also recently diagnosed. I had chemo last wed and had really bad chest pain Sunday night. Ended up in AE. I felt really ill and they thought I had a blood clot one lungs! They did loads of scans which said no blood clot. But chest infection! Happy with that. However they did a ct pelvis and abdominal. Now am panicking waiting for results!!! It just seems one thing after another.
Debbie if you want advice and support re chemo in particular if you go to the going through treatment section and go to chemotherapy monthly threads and post on October or September threads you will get a lot of good advice and support. You can post here too obviously or on the recently diagnosed threads.Jill.
Hi Jill. I have been reading all threads. Chemo is tough but I am ok with that. It’s all the unknown waiting for results. I am so scared about the results. I had a WLE and sentinel node. Node clear grade 2 lumpectomy. I was told by my surgeon I didn’t need any ct scans but when I went to AE they were shocked and ordered one!
Claire and Amanda. I am also WHH
It’s highly unlikely it’s anything sinister they are just playing safe ,there is a lot of anxious waiting in this game isn’t there?I didn’t have any scans, did they explain what they were looking for?
No. When I went for ct chest to check for blood clot they told me that I was having chest abdominal and pelvis. I asked why and they just said it’s been requested. I just thought I was on the road to recovery and I feel like bam! Not so fast lady! I am such a worrier and just can’t sleep. My poor husband. I making everyone depressed
It’s very hard to think about anything else when you have such anxiety provoking uncertainties,you cant keep scaring friends and family to death either can you,that’s why it’s good to talk on here you can be really honest about how you are feeling without upsetting people/seeming like you are hysterical all the time!!!There are a lot of us talking on the Just Diagnosed and wanting to talk thread,all at slightly different stages but very supportive ladies,some going through chemo.
Debbie i think its standard to have scans when you have chemo, i may be wrong but it seems to be the norm, a friend had bone and Mri before starting treatment and she had no node involvement either like you, they prob were requested simply as you hadnt had any, i would ring your BCN today rather than upset yourself anymore fretting about it, you do just wish they would just leave you alone dont you!! Xx Jo
If I hadn’t of gone to AE I would not of had scans. The bc nurse said I didn’t need them. Also my surgeon said I didn’t need them. So just major panicking now why another Dr requested them in AE. I guess we are all the same at thinking the worst as we all have rubbish track records!!!
They are not Cancer specialists at A&E so just following procedure i guess, concentrate on what youve been told by those that are treating you, they are the experts! Xx
Yes Claire that’s what I thought last night. To make matters worse I work there at the hospital too! A little bit of knowledge is extremely dangerous. I am a total mess.
Jobey thank you. I need people like you to put things into prospective. Thank you. Just can’t help the niggling thoughts though. Still having trouble accepting this is happening To me.
Yep me too Debbie, im 3 months post treatment and kind of feels like i imagined it all!..almost ? the horrors that run through your mind though are pretty tough going, im sure all will be fine ? Xxx
Claire, I’m so sorry to hear your diagnosis is what you feared, at least now you can move forward with a treatment plan. The idea of chemo is what scares me the most as well, especially as I’ve not yet had children. I’m off to the hospital this afternoon for my results, and I like you already have a gutt feeling as to what they will be, I’m just praying to have the strength and to be able to hold it together. I’m meant to be going to gatwick tomorrow night and flying out to Egypt on Saturday for a week and I’m still in two minds as to what to do for the best, but I guess I’ll wait and see what the consultant says. By the sounds of it, you’ve been really looking forward to your holiday, and I imagine it would do you good to relax somewhere different before you start your treatment. Sarah xx
Hope your scan goes well Claire.
Hi Debbie, I have had a WLE and nodes for a grade 2, invasive duct all and have had not scans at all. I has initial appointments at Kent and Canterbury and surgery at WH. Only complaints I have, is that I am three weeks post surgery tomorrow and still don’t have results, path labs can’t keep up with the workload, apparently! The waiting is excruciating, it really is!
How did did you get on this afternoon, Sarah? I really hope you got the all clear!
Hope the Mir wasn’t too bad Claire, another box ticked!
Amanda x
Hi Claire, unfortunately it’s as I thought it would be, grade 3 Invasive ductal cancer in the right breast, with some lymph involvement. I have one that I can feel is swollen which was tested and showed cancer and apparently the scans showed a few others that looked slightly enlarged in the right side, however the consultant said this showed that they were doing their job with trying to stop the cells spreading. They don’t know anything about hormone receptors yet as because they rushed me through they haven’t had the full results in. I’ve been lucky as in it was only 10 days ago that I felt the swollen lymph node under my arm and it was only last Friday that I was having the initial consultation with the nurse consultant and am thankful that they have taken into account my health anxiety. This is my worse fear come true though.
I know that I’ll have to have chemo, but they don’t know yet whether it’ll be before or after surgery. I’ve got to have a pet scan in the next week or so to see if it’s spread through the lymph system, though the consultant seemed to think it should be contained to the right breast and glands. If it’s contained then he may operate first with chemo and radiotherapy after. He’s thinking I’ll have to have a mastectomy though as the lump is right under the nipple, which will have to be removed as well and he thinks the breast will be too miss shapen with a WLE. I’m scared about the scan though as I’m now paranoid in case they find something more horrific, but they said it is standard procedure.
I broke down when I got the news, and have had a few wobbles since. However, I feel strangely calm at the moment and my appetite has come back a bit more, so much so that I went and bought an expensive bottle of red which I’m drinking now. Have decided to cancel the holiday as I just won’t enjoy it, the consultant said he’d write us a letter for our insurance, not that the money really matters in the big scheme of things. My husband and I are going to go away locally for a couple of nights instead, just so we can have a change of scene. Sarah xx
Claire, when will you get your mri results? Xx
Oh dear Claire, poor you…still, you did do in the end and you should be proud of that!
It is difficult to accept help and the way this horrid disease makes you feel so scared and vulnerable is hard to deal with! My husband comes along to everything, and at home, if I have meltdown (which I do once or twice a week!) my husband, either of my daughters and even my daughter’s boyfriend get to hand out the tissues and the hugs!
It can be lonely, you are the one going through it but you family and friends will want to support you and you have the forum here as well.
Amanda x