hi, thanks girls your comments were really helpfull, im going to go ahead with it, i do believe already that i am at a high risk from what the doctors have said, so it wouldnt bother me one bit, i think i would be happier as it would assure me i would be checked out sooner in the future, I have two lumps already in my right breast, they were fine but they are quite big and sometimes its hard to check…sorry i hadnt been on here sooner Dianne but mam was just really bad, her depressants wernt working and she kept on saying she wanted to die, she had me in tears and she wasnt even bothered,ive had a tough couple of weeks and to top it off ive lost a day at work, as my shop is struggling, but it helps me to spend time with mam. ive learnt to cope with the depression tho, i just keep telling myself its not her!, she is back to normal now tho i think the uped the dose…anyway enough about me, how are you doing Dianne? x x
Hi Lesley, So glad to hear your Mum is feeling a bit better. It will get easier when she gets used to going for the treatment. I’m glad the anti depressants have kicked in and I think you’re doing the right thing with the genetic testing. I had it years ago, but it didn’t really prove anything at the time, it was quite a new idea then, but it’s come on leaps and bounds now. At least it will settle your mind one way or the other.
As for me, well I saw the onc on Friday and they’ve stopped the chemo as it wasn’t working. (Bearing in mind that I have secondaries in my liver and spine) so don’t go panicking thinking that will happen to your Mum. However, it’s not as bad as it sounds. Before I started this chemo, I was taking a tablet called Arimidex for about 5 weeks. (It halts the cancer) In that time, my liver function improved by 50%, so they’ve done some tests to see how receptive I am to it. They mark them out of 8 (8 being the best) and it turns out that I am an 8, so he’s put me on them for the forseeable future and hopefully it will keep this monster at bay for a while. I’ll worry about the se’s later!!!
Because I don’t have to go to the Hospital every week, we’ve decided to go on a week’s holiday, so I’ve been frantically looking for the last day or so which is why I haven’t been on this site. I’m hopefully booking one today to Rhodes, so I’ll let you know how I get on.
Take care of yourself hon and I’m sending you and your mum lots of love and hugs. Dianne x x x
its amazing what they can do now…isnt it. Im so glad the medication is going well for you, and i hope you manage to get booked up, you deserve it. Have a lovely time, and tell me all about it when you get back x x take care x x
Hi Lesley, We have managed to get booked up for next Wednesday to go to Rhodes for a week. It all sounds lovely, 5 star hotel etc, so let’s hope it lives up to it. I don’t really care anyway, it will just be nice to get away.
I do hope your mum is feeling ok today and that you both had a good weekend.
Take care of yourself hon and keep in touch. Lotsa love, Dianne x x x
HI, mams had a tough couple of weeks with the chemo, shes been extremely low. She spent some time in St Claires, but she has just had an appointment and everything is going well with the chemo, she is getting six lots and she is on her 3rd so really she is half waynow…the only thing that was worrying me was, they had to drop the dose of the chemo as mam couldnt handle it, she had to have a blood transfusion. Will dropping the dose effect mams treatment much? x x
Hi Lesley, How lovely to hear from you, I was wondering if everything was going ok as you hadn’t been on the site for such a long time. I’m very sorry to hear your mum has been so poorly. I know that lots of people have to have blood transfusions when they’re having the chemo. I’m sure that they wouldn’t drop the dose if they thought it was going to be detrimental to her health. They may just give her an extra one or two. Why don’t you call the Macmillans or contact someone on this site who will be able to give you good advice. If you go with your mum to her treatments ask the nurses there. Don’t be frightened to ask questions to set your mind at rest. I do hope that your mum is starting to feel a bit better now and that you are doing ok as well. Take care sweetheart and be kind to yourselves, have some little treats when you feel like it to keep your spirits up. You’ll both get through this and come out of it stronger. Bye for now pet, keep in touch. Lotsa love, Dianne x x x
Hello Dianne,
thanks for your last post! x x mams doing really well now, the doctor is really pleased with her progress, she has three lots of chemo left now and he said these last three will be easier.
how did your holiday go? and how you doing?..im getting married this october…very last minute lol…ive been with my partner 8 yrs now and i didnt want to wait any longer, so its giving my mam and dad something to look forward too…lots to do tho x x x
Hi Lesley, lovely to hear from you and delighted that your mum is doing so well, that’s really great news. Also that you are getting married, it will give her and your dad something lovely to focus on. Congratulations.
My hol was super, very relaxing and I had no problems with the flights apart from aching a bit which is a side effect of the tablets. Only 5 weeks now until we go on our cruise. Can’t wait.
I’m away this week visiting my parents until Friday, so I’ll check back in then.
Take care of yourself and your lovely mum. Lots of love, Dianne x x x
Hi i havnt been on here in a while just read your message been really busy with the wedding im becoming a bridezilla! mams doing fine at the moment she is having a good week very happy and cheerfull but thats going to end soon so she will be down again when she gets her chemo next week but its going to be her last chemo YEYYY!.so your going on a cruise? LOVELY! where you going? and is it royal caribbean. you will probably get this message when you come back…judging on when you sent the last 1…Well i hope you have a wonderful time! and im jealous on all that lovely food you will get mmmmm yum! x x x x
Hi Lesley, Just saw your post. I’ve just got back on Saturday from the cruise. It was lovely and we had a really good time. Didn’t eat everything tho cos I have a loose tooth which just happened as I was going away. It’s a side effect from one of the tablets I take (bummer!) Went to my youngest grandchild’s christening yesterday. It was a lovely service and a super day.
Glad to hear your Mum is doing so well. Hope her last chemo went well and the se’s aren’t too bad. You must be so excited now about the wedding. Hope all the planning is going well. It’ll be worth it on the big day.
Take care sweetheart and keep in touch. Lotsa love, Dianne x x x
Hi not long after i sent that message mam got taken into hospital, with serious infection in her hickman line and her peg and also a urine infection which sent her loopy,she was telling dad to get out and she didnt love him, she also thought the nurses were plotting against her. She has been in hospital now for 12 days, she has recovered and is hopfully coming home tomorrow, but will not be able to have her last chemo as they have taken the hickman line out, she is over the moon about it, but im a bit scared… will it effect her not having the last 1? the nurses have explained its not like antibiotics where you have to see the course through, and they say she has done well to get through what she has, but im just worrying because they had to reduce the dose slightly in the 1st place!
glad your cruise went well, shame about the tooth tho!, plans are going ok, iv just cancelled my hairdressers tho as they were ripping me off, so im relying on my aunts to do it for me eeeek!but other than that i think its going ok!
What happens with your teeth then will they fall out? its crazy what medication can do!
x x x loads of love lesley x x x
Hi Lesley, So sorry to hear about your poor mum and those horrid problems. I’m so glad it’s been sorted out for her. I honestly don’t think it will make any difference not having the last chemo. They wouldn’t say that it’ll be ok if it wasn’t true. If you remember, I only had 12 weeks instead of 18 and I’m just on the tablets now and I’m doing fine. Don’t worry pet, they’ll keep checking her with blood tests and scans and they can see from that how she’s doing.
My teeth are a bit better today. Somone suggested that it’s probably an abscess as there is a little red lump on the gum. I have an appointment with the Oncologist next Wednesday so that he can check it out, but to be honest I can’t really see what he can do. I’m going to the dentist on the 5th October but it’ll probably have sorted itself out by then. They don’t feel quite so loose either, so maybe I was panicking over nothing. Let’s hope so as I certainly don’t to lose them if I can avoid it. I’ve always had good teeth and looked after them, so I’ll be royally pissed off if they start coming out!!!..
Sorry your hairdressers were ripping you off, I hate that when people take advantage of you because they know how special it is. I’m sure your aunts will do a great job and you’ll look fab. Are you on Facebook? If so, I’ll be able to add you as a friend and see the pics.
Take care sweetheart, loads of love to you and your Mum, tell her I’m thinking of her and sending loads of love and hugs. Dianne x x x
hi mams out of hospital now and really low, i tried taking her out today to see my dress, she got upset,and very depressed and wants to die! ive had a bit of a bad day today, sitting feeling sorry for myself …and now selfish for saying that…lol…
That would be great to add you as a friend on facebook! ive been meaning to tell you i signed up to this with mams name so her names lesley and my name is Lucy so sorry i didnt tell you sooner i just felt a bit silly cos id left for too long lol…im soo silly! i would love to add you as a friend tho. it will be easier to talk to you aswell x x loads of love … lucy! x x x
Hi Lucy, You daft thing, you should have said about the name, it doesn’t matter anyway. If you go onto Facebook, look up Dianne in Louth and there I’ll be!!
So very sorry to hear your mum is feeling so low. I do hope the wedding plans will cheer her up a bit. It might an idea to see the GP and ask for anti-depressants. There are lots of ladies on this site who take them and apparently they really help. If her state of mind is not good, it can affect the way the treatment works, so she needs to get some help. Don’t leave it too long pet, try and sort it sooner rather than later. And you’re not selfish, you’re a wonderful and loving daughter and I’m sure she knows how lucky she is to have you. It’s only natural that you will get down from time to time. People always forget about the ‘carers’. They tend to concentrate on the patient and their supporters are left out in the cold. It’s not intentional, it just happens, I’ve seen it over and over again. My husband has supported me through this dreadful disease with all it’s horrid knock-on effects both times and yet everyone always asks me how I am, nobody ever thinks to say ‘And how are you coping Dave’.
Anyway hon, you take good care of yourself and I look forward to hearing from you again and seeing you on FB. lotsa love, Dianne x x x
Hi Lucy, got a message from one of the ladies from BCC who has kindly removed my surname because of security reasons. I’m pm’ing you with it so you can find me on Facebook. Hope all is well today. Lotsa love, Dianne x x x