Anyone awake with worry?

Sorry to hear this, it’s worth mentioning these side effects to your team to see if they can help. Is the skin really dry? Docetaxel can also cause nerve damage - I wore Suzzipad cold therapy gloves and socks during my docetaxel infusions, got them on Amazon, basically you put little ice packs in them and it’s like cold capping for your hands and feet to try to stop the chemo going there and so protect from nerve damage.

I hope you’ve managed to speak with someone about your mood for some therapy and/or medication that may help you through this horrible time? 🫶🏻

Thank you - were these helpful? I find it so surprising that the teams at the hospitals don’t mention / suggest any of these things.

I spoke to the oncologist etc last week and explained no more. They suggested a dose reduction but I am totally traumatised. X

I didn’t have any issues with my hands or feet, but obviously can’t tell if it’s because of the gloves or if I just didn’t get that side effect. My team didn’t mention it either, my brother works in oncology at a different hospital and his consultant recommended them. When I was wearing them a few nurses told me ‘docetaxel doesn’t cause nerve damage’ but it does, so I just ignored them!

I’m really sorry you’re feeling so awful. I really agree with what’s been said above though, please don’t give up you have such a long life ahead and while this is truly awful, it’s only a temporary period to get through. Can you make an appointment with your GP on Monday? My GP were very understanding when I was struggling. If they say they have no appointments you just say you’re a chemotherapy patient and you’re struggling and hopefully they’ll be able to fit you in - mine always have.

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That’s a good idea about the GP. I hadn’t even thought of that.

I have had that experience too - i had a huge rash after my first treatment of docetaxel & the team told me it was because i had been sweating at night. Ended up in a hospital in Devon (i am being treated in London) & they said it was a renowned side effect. X

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@sbee just checking in, how are you doing? Did you manage to see your GP? 🫶🏻

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Aw, @sooz1 that is so kind! Thank you so much for your message.

I haven’t just yet, but will. I had an appointment with the oncologist & the bcn this week which was a bit of a challenge to say the least - but they have given me additional medication to support this time & agreed to reduce the dose by 25%. I said i could get to 6, but 8 was unlikely so are going to re connect after this.

Crossing everything that it’s not as brutal this time.

How are you doing? Xx

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I’m glad that you’ve had a meeting with them and they’re trying some medication changes. Keeping everything crossed that it helps you! Each one is a step closer to the end of the chemo, you can do it!

I’m ok thanks, I’m waiting on some scan results so just trying to keep my mind busy and not think the worst, it’s difficult!!

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What was the scan for if you don’t mind me asking? Sending so many hopeful and peaceful vibes to you. Xxx

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Aw I had a CT scan before my surgery to check on a lung nodule (which had disappeared) but it picked up something on my spine that they wanted to look at in more detail :crossed_fingers:t2:

Keeping everything crossed for you, hopefully you have lots to keep you busy over the coming days /weeks xx

The waiting is so hard.

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3am this time. Anyone else else awake?

Anyone else?

Dear sbee,

So sorry you have had a restless night, let hope you can get a few hours rest throughout the day.

Nights are the hardest time, with our brain doing overtime and the clock not moving. Wish I could take your pain away. Try to eat some breakfast, take good care of yourself

Much love Tili :rainbow::pray::rainbow::pray:

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Thank you. I wake so much during the night and with night terrors. X

I’m so sorry sbee, maybe a call to your GP they may offer some medication to help you sleep.

Biggest hugs Tili :rainbow::pray::rainbow::pray:

Good morning sbee,

How are you feeling today, hopefully a you had a restful night.

We are all here for you with love and support. Tili :rainbow::pray::rainbow::pray:

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Thank you. I’m not so great as I’m meant to be at the hospital today. This always makes me feel worse. X

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Hi sbee, hope you managed to get to your hospital appointment today, if so how did you get on, hopefully you were able to get some answers.

Sleep tight, we are here for you. With love Tili :rainbow::pray::rainbow::pray:

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Hello. I wasn’t able to go, I get myself in such a state that I can’t keep doing it to myself.

X

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I get horrendous hot flushes at night and ache a lot since chemotherapy. Is this a thing?

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