Thanks Lola. I realise everytone is different but it sounds really promising. Thanks for the info re mouthwash. There seem to be so few on this treatment that it’s nice to know that someone is there to ask. Good luck with the rest of the treatment! x
We were laughing this evening about how I look. ive noticed while we have been walking around town that people stare at me with the bald head, and then smile a bit. I thought it was like a sympathy smile but after looking at photos of myself taken last week while we walked the dog on the beach, I’m thinking maybe they’re intimidated by me. Maybe they think I’m a bouncer or something… I’ve uploaded my photo so you a see what I mean x
Good evening Angels,well done Angie for getting there today and good luck to Moira for tomorrow. I’m sure someone else finishes tomorrow but chemo brain is well and truly with me tonight.
welcome Christine, I agree with all that has been said by the other Angels, you will get great support throughout your treatment on here.
I was finally released this evening, this time I think I am just on licence! Mel so true about those bloody extras…good news is that it wasnt a Pulmonary embolus ( lung clot), they ruled that out aft a scan? Not so good news is that it is cardiac related. Prior to starting FEC I had an echocardiogram as I have my high blood pressure, this showed mild aortic stenosis, but the scan also showed today that I now have tricuspid involvement. This is proberly caused by the cancer plus the FEC. Good news is that I have finished my course of FEC or it now have to be cancelled. Also I am triple neg so I would have had to have the Herceptin stopped aswell. Fortunetly that won’t effect me now :). I will be having another echo in 2 weeks and will then find out where I go next.Good news though is I am at home and all worm and cosy I and feel good.word of warning though Angels, any chest pain or shortness of breathe, report it ASAP.
thank you for all the good wishes, much appreciated.
all your weddings sounded just great, ours was really small and personal, just champagne and beer plus an Indian Buffett, with just close friends! Then phoned the family next day to tell them. This way we got the wedding we wanted instead of trying to get everyone from everywhere there on the day. Debra your wedding day will be lovely, don’t worry about a few delays. Th fact you want to stay with this person forever is good.
i am now going to bobo’swill as I can almost see the sleep fairies waiting for me.
Hi Angels,
Just a quick post because I should be tucked up in bed - due at the chemo unit at ten o’clock.
Firstly, Mel, your chemo brain is working overtime! I’m not back at work - think you’re confusing me with Roz who is extremely brave chemoing and working at the same time!
Congratulations Angie, look out for Mel and me tomorrow.
Hope things are going ok with you Philomena.
Kim, looks like our paths will cross at Jimmy’s. Looking forward to meeting up!
Wishing you sleep fairies - especially you, Amber.
Moira xxx
Philomena, so sorry to hear of this diagnosis, wish it could have just been something simple for you. I hope the treatment for this is nice and simple, have they given you any indication as to what they’re going to do next? Take care x
I’m glad you have been released Philomena. I’m sorry your extra isn’t a great one but I’m sure those lovely doctors will sort you out. Take it easy and try to get some sleep tonight.
Sorry Moira and Roz. My chemo brain is certainly working overtime today. I got up at 8 to take my steroids , then took another at 1, only to remember at 5 that I should have taken 4 each time. That meant 3 taken at 5:00 and another 3 at 10:30pm. No sleep fairies for me tonight! Be warned my chemo brain may be enhanced aftera night of no sleep so you may have a confused, babbling idiot joining you on the platform tomorrow. 
Thank god this is the last lot to take. I’ve not got a great track record with steroids.
I’ve been thinking about this spa idea. How does everyone feel about wearing swimming costumes? I’m not a great lover of water but feel I should probably face my weariness of wearing a costume with only one boob. Some of the mastectomy costumes look ok,but has anyone tried one and do they show mx scars?
Hi all
judy - rude boy, nice pic, your bum dont look big in that. you do look like a bruiser, but a nice girl bruiser, i hope you not got dockers on too. 
hope your bloods are good tommorow, you can have my seat if you dont throw me out haha
philomena - what a day! hope youre feeling okay. just what you dont need, add ons.
Kim - i was told tamoxifen for 5 years but possibly 10, or if menopause started i would change to another drug. research has found 10 years more beneficial it seems. I hope its 10, every little helps as they say.
Mel-A - keeping a seat warm for you 
Moira - keeping a seat warm for you too
amber - hope youre feeling better, chin up wifey. 
Kate - what are you up to apart from pressing the wrong buttons… 
okay i hope.
Pauline, Mel , how are you?
Rozz - how you gettin on at work?
well, im maxxed out on steroids, whos the greedy angel with all the sleep fairies, i’m waiting to crash, i can feel it starting so we’'ll see what tommorow brings.
angie xx
Hi Philomena,
Sorry to hear about your awful day and diagnosis, thinking about you and keeping everything crossed for when you go back. I’m sure they will sort you out. Hope you can rest now and have a good sleep. Take it easy and try not to worry.
Lots of love,
Lori xx
Hello Angels,
welcome to the platform Angie, the station master will be getting worried with all us baddies sitting in his station!
Philomena, sorry to hear you have a heart problem, hope they sort you out soonest and get you on the mend.
i was told in April that I would probably be on Tamoxifen or another drug for up to 10 Years. My ONC says research has shown that the combination of drugs for 10 years is the ‘gold standard’ treatment now so its likely that everyone ER+ will get 10years of drugs but the number of years on each will change depending on age and menopause status.
I’m now on day 9 of my last chemo and I feel great, the tiredness hasn’t gone but at least I’m catching enough sleep at night to get me through the day now whereas Monday I slept through the day and night!
Have a good day, hope the sun will shine for you, it’s forecast for 29 degrees and nny here so I’m off to do some washing!
Kate
x
Happy Yorkshire Day everyone
Philomena - sorry to hear about your diagnosis, hopefully they will sort it out soon.
Moira - definitely looks like we’ll be at Jimmys at the same time we will have to arrange to meet up whist we are there
Today I’m going to plant up my herb garden and then get down to some family treeing before my ancestry subscription runs out. Hope everyone. Has a good day.
Moira, Mel and Judy hope your last dose goes well and have a great time doing your happy dance when it is all over
Kim x
MorningMorning Angels and a happy Yorkshire day to all you Yorkies
Angie it was me that had all the sleep fairies last night, so lovely being back in my own bed, best nights sleep in ages.
again thank you all for all the kind words and wishes, you know how much these mean :). Can start looking at things today with a clearer head. Not sure of full prognosis yet but have my mapping for rads next week on Tuesday. Unfortunately as its left sided it is directly over the heart and tht can cause further damage, so I will know more then. I’m not going to worry about it until then, but I really hope that I can have the rads as being triple neg it’s my last line of defence.
well it’s looking like its going to be a real scorcher here today. Wll be sitting at the station for you Moira, be your tired today.
kim I did my herb planting last week and they are all growing brilliantly.
onwards and upwards Angels xx
Move over ladies my train has just arrived - woohoo!
I was chatting with a lady in the chemo ward who was having herceptin. She said there are no SEs with that and its tons easier than the chemo, so if any ladies are about to embark on that route there’s a bit of good news for you.
Philomena I hope they get you sorted quickly and you can go ahead with your rads as planned. Don’t worry about hogging those sleep fairies -it sounds like you need the rest more at the mo. You’d better let your OH stick with the brews from now on if it causes heart problems, even if the shock of it affected the wrong person -lol. Take it easy. Xxx
Glad your doing ok Kate. Xx
Good luck tomorrow Judy xx
happy Yorkshire Day ladies
well Done Mel, any sign of Moira, I’m doing the happy dance for you. Had bloods taken this morning so hopefully I will be there with you tomorrow.
just received an appointment for Monday to see the surgical team to discuss surgery, I cant make it as I’m got to take my mum to see the Parkinson’s doctor on Monday morning at Bridlington hospital, so I’ve cancelled it and made an appointment for the 12th. Oh I am so not looking forward to surgery, I know you all say chemos harder but I’m not looking forward to it.
take care philomena, your head must be in a whirl with all that’s going on with you.
Kate, I’m pleased that your doing to well and your all finished with the chelike there’s hope for us all.
kim, I used to do my family tree, I keep looking at it when a new census is released, how far have you managed to go back?
enjoy the sun ladies xx
Afternoon Angels,
Angie, Mel A and Moira - Another big Party On The Platform this week. Congratulations.
Philomena - Good to hear your out of hospital and positive. Let’s hope things start improving after having your last chemo and further results show improvement now it’s over. All the best sweetie. Sandy and Geoff. xxx
Judy - Skeggy is teaming with tourists at the weekends. They need more people on the doors. Howa fixed? Lol.
Kim - Hope you get to meet up with Moira. When I met with Philomena it was fantastic and emotional all at the same time. Like meeting a long lost sister.
Mel A - Vagas and best friends? WOW. Sorry to hear your dad had this blasted disease too. Good to hear your chemo buddy has no se’s from Herceptin. Hopefully it means that it’s just the Docetaxol that’s hurting me at the moment as like Lori and some others I have nearly another year on Herceptin. 
Off to buy a clematus for the garden. (retail therapy).
Pauline, Mel and anyone else having had recent cycles hope your all enjoying the sun without too many se’s. 
Sandy x
Skeggy is good for me on a weekend sandy but I may be bouncing in brid through the week, we get some tough nuts in brid through the week and it needs a badass to sort the out! Lol
it was funny when we were coming back from the doctors this morning, the car in front just stopped at the lights and they were on green, I’ve no patience anymore and I’m sat in the car, Andys driving, and I’m cursing away and shouting at the car in front, andy said I should have opened the car door and got out, they would have soon moved then, they’d have burned rubber to get away from the mad looking bald bouncer lady marching up to there car.
Hello Platform!!!
Hello Angie, Philomena, Mel, Kate, Pauline, Amber, Linda and Lori. Is that Diggywiggy as well? Who else have I missed?
Well I made it. Bloods better that the last twice! What did I do right? Felt more than a bit emotional when the nurse said ok, off you go. Actually shed a couple of tears 
. Had to have it in my nodes arm because other hand is still sore and swollen. Didn’t think to ask how long before the lymphodoema sets in if it’s going to.
Celebrated with a bottle of Lucozade and a bag of Tangfastics From Smiths in the hospital reception. Don’t want to tempt fate so no champagne on ice for at least a couple of weeks.
Feel a bit in limbo now. Hang on, thats a dance as well! So my happy dance will be the limbo. How low can you go? Not very!
Philomena, hope they sort you out as soon as possible. I can understand you wanting rads - at one point they thought I was TN so I researched that quite throughouly. The good news for TN is that it responds really well to chemo, so at least you’ve got that under your belt.
Judy thanks for making me laugh out loud. The thought of a bit of road rage!!! If ever we come over to Brid I wouldn’t have to ask how I would recognise you .
As for weddings, me and OH got married at Carlisle Register Office with two witnesses then had lunch out. Still going strong 35 years later. Don’t do fuss.
Feeling nice and calm at the mo.
Happy, happy Yorkshire Day,
Moira xxx
p.s. Good luck for tomorrow Judy x
Judy - I think the station master on our station is requesting help managing the dancing that is going on! Perhaps you can do that in your spare time? I have the image of you stepping out of the car and smoke filling the air from the tyres of the car in front…won’t be long before your hair grows back and you’ll have to find a new job!
Welcome to the platform all you new arrivals, hope you feel as good as I did the day I had my last chemo, since then its just got easier and easier to think I’m 2/3rds of the way through treatment, surgery done, chemo done, rads to go. I’m not considering my final reconstruction as treatment, I’m seeing that as a new look me!
I was told by my ONC earlier this week that Sage tea helps with hot flushes, has anyone tried this and if so does it taste as bad as I imagine? I walked into town earlier but no-one sells it here so I can’t try it yet!
For those of you just heading towards surgery, I had mastectomy and expander implant on 21st March. I had no pain at all and love my ‘new temporary boob’, with the padding from both cups of the asda comfort bra in my mastectomy side (and none in my natural boob) I’m more or less equal and really comfortable. I then had my portacath fitted on 11th April and chemo started 17th April…I have to say I was scared what I would think when I woke up but the lack of pain and knowing I had a great pair of surgeons I was fine. It was odd the first time I looked and saw I was lopsided but I had been told to look and the nurses were great. When the dressing was removed a week later the scar was so neat it made me feel okay with my look and since then my scar has faded significantly and I’m really happy with their work. I won’t be having the ‘tummy tuck & new uplifted boobs’ until 1 year after rads ends so I’m thinking Jan 2015 is a good time - no driving in snow to work for 8 weeks!
Hope you all have some sunshine - its 30 degrees here so a tad hot!
Kate
x
hi girls day 2 last tax whoohoo !!
failing fast i’m afraid but not anything like the last two so i’m feeling positive.
happy yorkshire day all you puddings xx
welcome moira and mel, get comfy.
going back to sleep now, catch up later.
angie xx
Cycle 5 docetaxel 2 day 14
afternoon Angels I so enjoy all your posts Judy you are a scream. So great there are so many of you on the platform and Judy tomorrow too, I will not be joining you until next Friday so please keep a place for me. I have been feeling much better this week, can’t wait just to get it over with.
Philomina hope the docs look after you and you get your rads as planned.
I took my mum back to hospital appt today for results if her second surgery, thankfully the tissue was all clear and she does not need any further surgery she has an appt on 12/08 with Onc to discuss treatment but looks like no chemo, radio therapy and letrozol tablets. So glad she does not need chemo don’t think she would have coped well with this .
Hope the sleep angels come to all of you on steroids and s/e are minimal take care Lynn x
Well done Moira - feels great to be off that train doesn’t it. I’m glad I’m not the only one to shed a tear as I left the hospital. I went from a big cheesy grin, then overwelmed with emotion and blubbing. Fortunately it didn’t last long. I got back from hospital to find my daughter had been picked up from drama by her grandma due to being sick and a temperature - poor thing.
Happy Yorkshire day folks. I’ve never heard of it before. What’s the story behind that?
Lynn I’m glad things are looking as good as they can be for your mum. Your experience and understanding will be a godsend to her. I’m sure you will absolutely brilliant in helping her through it. I’ve found one if the benefits of me going through this is that its helped me gain an insight into some of the things my hubby lives with all the time with his MS e.g.fatigue and nerve pain. Some things have to be experienced to fully understand them.
Judy I’m loving your angry bouncer stories. You sound like a force to be reckoned with at the mo. Good luck with your last chemo tomorrow xx
Does anyone who’s had reconstruction regret having it done? I’m wondering if I’m just being a wimp opting out or whether I just need more recovery time to consider it properly. At the mo I feel like I’ve been through enough.
Good luck with the SEs and sleep Angels. Take care xx