Anyone due to start chemo in April? - Awesom April Angels

Fiinal Cycle Day 10

Evening Angels,

What a lot of news and excitement.
Congratulations and well done to Moira & Mel A I think I’ve gotta feeling, Tonight’s gonna be a good night! Know what you mean about the tears, I was the same it’s weird kind of sense of relief too. Judy, Kim & Lynn we’ll be there waiting for you all.
Judy you make me chuckle, have all these funny pics in my head.
Philomena, sorry to hear your news, hope things get sorted, try and stay positive we’re all here for you, sending you a massive hug
Angie, how’s that babe, loved the new photo. Hope s/e are not too bad
Kate can you send some of that sunshine up here, it’s been pouring rain all day
Pauline, where are you? You ok?
Well glad to say I’ve turned the corner after a horrendous day yesterday, hopefully that’s it now at least it didn’t last as long as last cycle, thanks for your support its so encouraging. Oh home tonight woopee
Sending sleep fairies and minimal s/e to all xxxx

good evening angels
2 last tax
keep nodding off, but i still havent crashed into s/e state yet, though its coming i can feel it.
went out and got my shopping done today, stocked up on fresh pineapple a few chunks every couple of hours, keeping the mouth very lovely i must say, no carpet on my tongue this time. Eating loads of crap though, choc mousse, biscuits, lemon anything, cake is good. what a fatty i am now. put on nearly 2 stone, thats bad.
moira - glad it went well, it is a very strange, deserted kind of feeling isnt it, when its done. i kept a link because i have a macmillan nurse, so i asked who i see now if i need anything and she said ‘i’m it’ until you finish completely! so how amazed was I, she’s so good, i 'm so happy about that.
kate - are you going to share the sun at all? Ive got washing waiting too, glad youre ok, that tea sounds a bit dodgy. like it should be in a chicken!
Kim - is yorkshire day real? have i been away too long?
Philomena - youre welcome to the fairies, hope they havent filled your bed up though. Cant they make a sheild to protect the heart areas for rads, ive heard of them doing it on brain areas, thats why i ask. hope you feeling okay.
Judy , - road rage too!! my word lady, you make me giggle
Lynn - thats good news for your mum, the treatments are so hard arent they. Glad youre feling better, not long to go now, hopefully judy’s hair will have grown a bit and she wont be so badass and let you in .
Mel-A - when i came out, the first thing i did was work out when i can go back to work. i didnt mind while i was in there, when i got home i was a bit lost.
Amber - glad youre feeling better, day 10, still a long time isnt it. Ive got to go to inverness from thurso on the bus by myself on day 12 so i hope i’m ok by then,
Pauline, sandy, maisiecake mel , hope you all good.
anyone going on live chat at half 8?
angie xx

Evening Angels, welcome to the finishing line and looking forward to seeing you Mel tomorrow.
I’ve been pinching the sleep fairies again today so feeling really refreshed.
Angie, the heart shield sounds good! I’m sure they ll have something up there sleeves for the rads, I have every faith in my consultants to get it all sorted, if not Ill get Judy down to give them a talking to… :slight_smile:
Kim and Moira you really should meet up if you have the chance. As Sandy said our meeting was great, felt like meeting someone you have known forever.
Mel and Judy will see you on the platform tomorrow, things are now starting to move really fast now, so exciting.
Sleep tight Angels xx

Well done Moira, your celebration will be a bit like mine, lucozade and crisps is my kind of celebrating, I’m not really into booze anymore, I just can’t hack it. might start listening to inferno, dan brown tonight, I forgot, did you like the book?
Kate it’s so good to read how well and positive your feeling now the chemo is over, I’m confused though over the boob, I was told that I couldn’t have immediate reconstruction as I would be having radiotherapy and that, that could ruin the reconstruction. Am I right in thinking they’ve done the mastectomy then put the blowy up thingy in, and have they blown that up to create space for them to fill with either your own tissue or a silicone implant? I’m not sure what to do over the reconstruction at all, definitely want it done but don’t know if I would want to see the tummy tuck scar as well as the scars on boobs. Mind you, I’m such a tub of lard now, I could do with a tummy tuck … At 48 it’s a lot harder to shift the flab! Kate I can so relate to being scared with that first look at the boob scar, I think that’s what I’m dreading most, I’m such a wuss!
Weve had the sun in .bridlington too kate, it’s been red hot here today, they’ve forcast a scorcher too for tomorrow… Least I can hang my bald head out the car window like a dog on the way home from chemo.

has anyone had the reconstruction using there own tissue, and if so, are you happy with it?

Angie, don’t you be hogging the sleep fairy s, I want some for tonight now I’m back on the steroids, mind you they’ve taken the aches and pains away… First time in 3 week, I feel quite normal, even my dad couldn’t pi@@ me off this afternoon, with his moaning after I’d been shopping for him and mum, put it all away, and then cooked his dinner … god I hope I’m not turning into my dad with all this moaning! Angie I’ve gone from a size, well about 11 to a size 14 clothes and then they have to be a generous cut… Larry arse is my middle name.

Amber, I so hope I follow in your tracks, day 10 and feeling godo sounds good to me, I’m pleased for you.

Mel-A I’ve seen Yorkshire ?day mentioned on .facebook. Has anyone done the I’m going to Miami in ten months thingy on Facebook, where you use your birthday and month to say your going abroad, for cancer awareness … I’ve put it on my status and keep getting messages saying people are so jealous,I’m going away… wish I was. Let me now if I’m rambling and I will post the link so you know what m on about.

Lynn that is such good news for you and your mum, she must be so pleased and you so relieved for her, best of luck to her she deserves it. How are you on day 14, are you feeling ok now?

sleep well ladies, make room on the platform for Lardy Arse tomorrow.

Pauline and Mel, how’re you doing?

Philomena, just give me the nod and I will sort your consultants out.
We took mum to the supermarket this evening, I pushed her in her wheelchair while andy pushed the trolley, but while we were going round I was starving cos I’ve started on the steroids today and we’d not had tea, so we opened the box of mini donuts and ate them between us as we walked round, we payed for the empty box when we checked the shopping out ( I blamed mum for eating them all to the checkout girl) im rambling again, but anyway, what I was saying, you should have seen the looks we got as we walked round eating them but they would look at me at look away, i thought it was so funny!

Judy love you , you are nuts can just see you with your baldy out walking around the supermarket eating the donuts !! I am feeling good still tired and I have a sore hand like a burn where the last chemo needle went in. Just so relieved my mum does not need mx or chemo she is fairly healthy for her age but can be frail at times just don’t think she would be able to hack it. She also has memory problems which are getting worse it needs to be addressed dont know where to start, as she thinks she is fine she says all her friend forget birthdays. I said but they don’t forget their two daughters middle names!!

Just a quick one.
Judy, having just read your posts, I reckon the steroids have kicked in big time Afriend of a friend has recently had double recon with the tummy tuck. I’ll find out how it’s going.
Lynn, lovely news about your mum
Philomena glad to hear you sounding so upbeat
Amber good song choice
but
for the first time since starting chemo I have actually been sick. It’s just not fair!
Hoping to get some sleep through this hottest and stickiest night of the year and wake up feeling better.
As for Yorkshire day, I’m no expert, only been here 34 1/2 years. It just sort of appeared out of nowhere a few years back. Biggest bit of celebrating I saw today was Lesley Garrett, Brian Blessed and collection that may have been a choir singing ‘On Ilkey Moor bar t’at’ on the local BBC news.
Moira xxx

Useless - I’m going to bed. And annoyed- was going to try thelive chat and missed it!

Well I’ve not been on here for about 6 hours and you’ve all filled another page with your stories…sorry we had sun today but its gone somewhere else tonight and isn’t expected back for a couple of days…hope its gone to you all.
judy, yes I have an ‘inflatable’ implant which is temporary due to the risk that rads may deform it…Quasimodo is going to be my middle name I think! This can then be replaced by another implant or muscle and tissue from my tummy a year after rads ends. I haven’t made a decision what to go for yet but my cosmetic surgeon wants me to have the tummy tuck option as he believes that gives a better end result…I’m 47 so a free tummy tuck sounds great but its a long operation and recovery period so I’ll have to see later on.
i have a date for my rads planning session, 27th aug…which means we get to go to Cornwall for a week, plus ‘up norf’ to empty my mother in laws house a bit more… I’m so excited, two weeks away, staying in 5 different places! :slight_smile:
oh I’ve also got a date for my portacath to be removed…that really is the end of chemo for real, 23rd Sept. It’s all happening now and makes it feel like normalty may not be too far away!
Hope you are all doing okay and that the sleep fairies have done their job for each of you tonight!
Kate
x

Lynn I’ve got the burn from the injection site and up my arm for about 8", it’s awful isn’t it.

Moira you poor thing, have you got ant anti sickness drugs you can take, hope you feel better tomorrow.

kate, I’m getting quite excited now after reading about your reconstruction, so have they filled the inflatable up yet or does that have to wait till after radiotherapy. I think the tummy tuck op a year after does sound ok now, if they put a temporary inflatable boob in for a year. Sorry for all the questions kate but it was just after the diagnosis in march when they were telling me about the surgery and it went in one ear and out the other. I do remember him saying that using your own flesh rather than silicone mplants gives a natural look that droops the same as normal boobs, which at 48, I think would be a good thing over time.

Hi all
just logged on for a quick catch up to find you lot have been posting like mad- must be steroid mania.
Congrats to everyone off the train and it’s so good to read people talking about rads and recons etc- feels like we’re moving forwards!
Philomena- sorry about your news , hopefully they’ll sort you out soon. stay positive.
Judy- if you hadn’t paid for the empty donut box I don’t think anyone would have argued with you!
Mel A- Thanx for raising the issue of spas and swimming costumes. There may be quite a few who still have reasons not to want to be out in a swimming costume. PICC lines, mx, scars, lack of hair- what does everyone think?
I’ve come back from Cornwall to have another CMF dose tomorrow. If it goes well and I’m alright I’m going back again on Sat to finish my holiday- only done pasties so far still have fish and chips and ice cream to go! Finding sore throat and mouth much more of an issue with this than epirubicin. I’ve got Difflam which is great for mouth- going to ask for gelclair for ulcers. Anyone had anything that helps more with throat? it’s v sore and with another dose on top think it will be crap.
looking for sleep fairies now as appt is 9am tomorrow
Oh and eyebrows are growing back and sadly moustache
love Mel xxxx

mel I’ve got a Difflam spray which looks a bit like an inhaler, I got it from the chemo unit after the first session, it has a long tube attached so you can spray it at the back of your mouth and its Great for the sore throat. Here’s a link to it
https://www.google.co.uk/search?q=difflam+spray&client=safari&hl=en-gb&source=lnms&tbm=isch&sa=X&ei=DuX6UZOPCY2O7Qb8v4CQBA&ved=0CAkQ\_AUoAA&biw=1024&bih=644#biv=i|0%3Bd|MzAyRsCldJq0SM%3A

Yes Mel, I know all about sore mouth, have not had the sore nose yet though. I feel very tired though. I am waiting for a ground placement soon so the the airline will continue to pay me,
how are taking the tablets, do they make you feel? I hate taking them. Do you take all 3 at once or space them out.
I have been focusing on my garden with my Mum helping. It is something to focus on.
thinking about you.
Debra. xx

Judy
the implant was partially inflated during the surgery, then another 100ml put in just before chemo and maybe a little more before rads, but once rads planning is done it stays as it is until I then decide what and when I want the new me. The cosmetic surgeon did say ibe could stay for up to 5 years but then may go hard so ideally before that. when I woke from surgery I had a ‘mound’ so I wasn’t flat which I think made it better for me and my small brain to cope with! :slight_smile: As I said before there is very little difference between the two now and if he doesn’t inflate more next week I won’t be upset as I’m quite comfortable now with the asda bra solution.
We have thunderstorms here today so hope someone has the sunshine! I’m off for lunch with a friend then home to pack for a weekend in Southend on sea, never been before so hopefully we will find something to do and somewhere nice for dinner Saturday to celebrate end of chemo! :slight_smile:
Kate
x

Just a quickie
The hair is coming back slowly but surely :slight_smile:
Judy I couldn’t remember the name earlier to post but boots do a fixing spray to hold make up in place called ‘fix me up’. It’s about £6 a bottle but it does hold my drawn in eyebrows in place for most of the day, whereas like you they were coming off really quickly beforehand. Hope the chemo is going ok today. See you on the platform. X
Not long for you now Kate :slight_smile:

Hi Angels,
Also took a picture earlier showing my hair growing again. Eyebrows and eyelashes only seemed to thin out very recently so are lagging behind, but even had to wax my legs the other day! Hair on head is rather fluffy and although it appears like a dark shadow in a different view it looks white - or maybe more correctly grey!! Always did have to have my roots done though :wink:
Difflam spay sounds great. Hadn’t heard of that but did gargle with the regular difflam mouthwash at first sign of a sore throat and that did help.
My visit to the hospital and the compulsory IV penicillin the minute I walked through the door resulted in a nasty afternoon of the runs on Wed. A bit frustrating as I had a camel hump, and not an infection or even a temperature, but they were going for the safe approach. Anyway, over that now and looking forward to a good few days before my last infusion.
Carol

The hairs looking good Carol. Not long until you’re joining us on that platform :slight_smile:

Cycle 6 docetaxol no 3 … LAST ONE!

make way on the platform, Lardy arse coming through, last chemo done and dusted, but I now weigh over 11 stone, took my photo in the chemo chair to save as a memento, not tht I’m ever likely to forget the experience, but who knows with the way my brains functioning.

thanks for all the reconstruction info Kate, you’ve really put my mind at rest, I hope I can have the same as you. I’ve been told surgery may be as soon as 3 weeks as they like to do it quick after the last chemo. I need to get some cool cotton pjs, I was thinking it would be cold weather by the time I had surgery.

Love the baldy pictures mel and carol, you both look super cool and pretty, not butch like me. Mel I may look for some of that fix me up as I’ve wiped one half a brow off in chemo unit. Mind you I have about 3mm of white hair on my head now so I’m getting there.

ive celebrated with vegetable pasta and iced lemon drink in the hospital restaurant, not very glam but I wild horses couldn’t have dragged me away till I got the veggie pasts, it’s to die for. It’s very warm here today, may go dip my feet in the sea later on. I’ve got steroids in liquid I’m to take for the week so I’m hoping the aches and pains stay at bay for at least the week.

take care ladies, hope you all have a lovely day.

Judy
welcome to the platform…getting crowded isn’t it! :slight_smile:
fromt fastening PJ, tops and if you can get them bras are required after surgery. i could lift my arm so could have managed to put a loose t shirt on but front fastening was so much easier and that meant I didn’t have to stretch past comfort level…but within a week I was doing the exercises as per the BCC DVD for week 6 so recovery was quicker than they ‘schedule’ in the DVD. My cosmetic consultant said to do as much as I felt comfortable with if it was more than they expected and so I did. I left the hospital bra less and wore camisoles rather than bras for a couple of weeks as it was more comfortable and i wasn’t going far!
Kate
x

hi all
very tired today but okay, trying to forage for food that i can taste
welcome aboard judy, feeling good?you look very nice today, i’m not scared now.
you pretty ladies with the bare heads, i darent do that, i look like darth vader with no mask on.
cant think properly, so post more when my brain cells come out of steroid land.
angie xx