CMF CYCLE 1 day 1
Well done Pauline. You’re there! I’m up for meet up. I live in Birmingham so anywhere accessible is fine by me. I’m a teacher so after January when I hope to go back I’m stuck with week ends and school holidays.
Glad you’re having some better days Rozz.
Debra only 2 more to go I’m So happy for you-- woooooooooo! (Happy noise)
Had first cmf today.Did canula twice definitely having picc line put back in!! Ok so far, not sick and no steroids to take so hoping to sleep when iv ones wear off. Thinking of still trying to make it to cornwall for holiday I swore I would not miss, despite everything. Onc says go if I want there’s always truro hospital- I did say I wasn’t keen to continue my tour of major hospitals of Britain---- he laughed just a bit too much.
Hope sleep fairies are out in abundance and none get impaled on your arrow Judy
Love Mel Xxx
Well done Pauline hope your HaPpY DaNcE went down a storm 
lots of people seem to be gathering in the platform over the next couple of weeks :).
I think that we should definitely leave the group where it is until everyone is on the platform…could look at moving the location then to a more appropriate place.
Who would have thought when we started out on this dark frightening journey that we would make such great friends who have supported each other through all the trials and tribulations and celebrated the highs…however small. I can’t wait to meet up with everyone face to face :). I live between Leeds and Bradford and I’m happy to meet up wherever…have sat nav, will travel haha :). March is difficult for me as have a wedding and a hen party in Benidorm And it’s year end at work. i also have a wedding on the 26 th April… Any other dates are fine by me.
Kim x
Good luck for Monday Philomena, looking forward to you getting off the train!
Welcome through to the other side Pauline great feeling eh?
Thanks for offering to arrange meeting dont be woried about asking for help though. I’m in Northumberland, I think we have already had mentioned Newcastle, Manchester, Glasgow. Might be good idea to get everyones location and see whats mid-way and easy to reach by train, that’s often the most reasonable priced when booked in advance. Just a thought.
Debra hope you feel better soon…only two more to go, the light is getting brighter!
Might head off to Sunderland Air show on Can-Am today, blow away some cobwebs. At least on bike its maximum fresh air with minimum effort as still getting really tired very easily, that and the dodgy mouth/taste is lasting longer this time.
Hope you all have a great w/e with minimal SE’s getting in the way.
Best wishes Lori x
Final Tax - day 2
Hi Ladies, feeling ok today so going out for dinner later before s/e’s kick in. Thanks for all the replies so far for the get together, will come up with a few options once I’ve heard from a few more people
Lori - enjoy the air show, sounds fabby!
Mel - hope you get to Cornwall, you def deserve a break but no hospitals please!!!
Judy - yea, happy dance done followed by champagne and strawberries last night - yum Think I said before that i get sleeping tabs from doc for the 3 nights taking steroids - they are more effective than Nytol and I usually gt around 6 hours - might be worth a bash for your last one
Debra - 2 more to go, wont be long now
Angie - did you get the photo yet???
Good luck for Monday Philomena and to all other AAA’s getting chemo next week (final or otherwise)
Take Care Angels xx
Thank you Angels for all the good wishes for Monday. Champers now in fridge to get to the desired temp, so exited.
glad to hear from you Debra, your almost there 
.
Pauline as others have said, not bothered where it is so long as I can either drive, fly or go by train. Also I should be available anytime as will not be going back to work ( long story ).
i think all the sleep fairies have been misdirected to my house! For the last 5 days I have been sleeping on average 14 hours a day, and when I am awake, just counting down to going back to sleep.
Judy, my first attempt today to draw in my eyebrows were a very good impression of yours, all I needed was the mustache and I would have been your double! I’m now down to single figures on the eyebrows now and barely any eyelashes.I have also had the snotty nose and weeping eyes from day two of Runny I think both are due to lack of hair to stop it. Some days have felt like sticking tampons up my nose to stop it, and everyone thinks Im upset.
Hope you all have a good weekend with minimal s/e and I am sending these sleep fairies back, ther very good Xxx
hi
well done pauline , do you feel different? hope you dont get blitzed with s/e’s.
my new grandaughter Daphne Scarlett with her eyes open in my new pic. taking up all my time but by long distance video and such like - john o groats to nottingham.
Just a wee bit cute.
judy - ive been taking a hay fever pill and i have no more dribbles. its good. ive got loratidine and its ok to take on chemo with painkillers.
philomena - i have a few sleep fairies too, they arrive every afternoon.
hope you are all as well as you can possibly be
angie xx
Philomena - eyebrow stencils are the way forward, they are so good I will continue using them when my eyebrows grow back good luck for Monday.
debra - Hang in there only 2 more to go and you will soon be off the train
Judy - Hope you have better luck than me . I borrowed one of my mum’s audio books but kept falling asleep, but the book kept playing…could never find whereabouts in the story I was 
Mel - fingers crossed that you get your holiday in Cornwall with no detours to any hospitals!
Lori - enjoy the air show. We’ve had a couple of hours at the local Beer Festival, we had a great time I even managed a couple of halves of Rhubarb beer … which was delic…despite the sore mouth.
Hope the sleep fairies visit everyone tonight especially those on steroids
Kim x
Angie - our posts crossed. Daphne Scarlett is absolutely gorgeous
Hi Pauline, I would love to do the get together! Why don’t we make it a Spa weekend? After all, we deserve it after all we’ve been through! Any date is ok for me and I am close to Burnley/Halifax/Rochdale - I suppose right in the middle then, haha! I think it would be fab to have a bit of pampering - just an idea
Hello Angels,
I must get onto the site a bit more often - I have missed so much in just a few days!! Had about a week of s/es, feeling very very tired, and then broke up with my boyfrind. However, last couple of days have been better so have been out and about a bit and meeting friends for dinner. Great fun, except I think I need to take a bit of control as the pounds are creeping on with the lack of normal exercise levels and so much of my current existence centering on coffee shops and meals out.
Congratulations Angie on baby Daphne Scarlett - a lovely photo!
Congratulations Pauline on arriving at the platform party - and all others that have already danced their way there. I expect to be joining you on 8th August.
Loving all the songs too, it would be great to create a playlist of them all.
I am up for the get together - any location, dates ok with me - I am near Loughborough, Leicestershire. Manchester would be fine but if we need to be further north for our Scottish contingent I am happy with that too. Spa day also welcome idea - I love them!
More stormy weather last night, was wide awake about 2am but then about 5am managed to get off to sleep and only woke a 9, that’s not how its supposed to be
Carol xxx
Angie - Daphne Scarlett is beautiful!
Carol - I’m so sorry to hear about your split. Not what you need when you’re going through all this rubbish. I hope you’re coping with it all ok. I’m glad to hear you’re getting out and about. Leave the dieting until after chemo. Not long now. When you’ve not got much energy meals out are perfect to get out of the house and sit down. I had a lovely meal out last night and I’m just about to go out for a curry with some friends. I’ll make the most of it before the SEs kick in next week.
Not long to go now Debra. Where abouts in or near Manchester do you live? It would be lovely to meet up.
Have a lovely day xx
Helo Angels,
Congratulations to DiggyWiggy and Pauline for helping to fill that platform. Lots of good music too! Best of luck for tomorrow, Philomena. Let’s know how the last hunt the vein session goes!
I’m happy for the meet-up to take place anywhere, though a spa weekend does sound perfect. Think it should be pretty far North because Angie and Amber will have the furthest to travel. It’s ok for me in the middle of Yorkshire and handy for the mainline trains anywhere. I can do anytime other than 10-20 April next year when my oh has arranged to take all the family to Disney to celebrate his 65th birthday. Glad he’s decided not to grow up.
Sorry to hear you’ve split from your boyfriend, Carol. think BC throws everything off-kilter. Stay strong x
Moira xxx
Final cycle Day 6
Hi Girls,
All going well so far, few more tingles but haven’t needed painkillers, the usual furry mouth! How I long to taste a glass of wine!
Good luck for tomorrow Philomena and to all on the chemo train, will be on the platform to meet and greet.
Angie, Daphne is so cute, she’s gorgeous and what a head of hair! Hope all is well.
Carol sorry to hear of your break up, the last thing you needed! Try and stay positive and we’re always here for you.
Had appointment with my Onc yesterday, all fine for planning meeting 7/8. Have to get prescription for Anastrozole from Gp to take for 5 years. Asked him about any do’s n dont’s after active treatment and he said just to get back to a normal life and book a holiday on prescription, what a nice man! Spent the rest of the day with my son, dil and two youngest granddaughters. Got a lovely surprise from them, a break at Cameron House Hotel Loch Lomand with a champagne cruise as a post treatment treat.
I don’t mind where we meet up as Angie and I are the most northerly it means travelling wherever we go. Iam 4 hours north of Glasgow so as long as there’s train station or airport nearby I’ll be there, no restrictions on dates. Good idea Pauline to meet up for travelling.
Good luck to all next week, sending sleep fairies and minimal s/e xxx
Final Tax - day 3
Had a lovely meal out last night with friends and lunch with mum and daughter today. Pains just starting and have been loading up with co-codamol since yesterday, think I’ll need to pop a dihydracodeine tonight! Can already feel taste buds going so might need to pinch a bit of hubby’s Indian meal tonight to get some last minute flavours
Meet up - so far around 16 of us looking to go which is fab. Think it is looking like Manchester tbh as very central and easy to get to for most I think. We can sort out nearer the time about spa etc but given our numbers it may not work out unless we go to a very large hotel with a very large spa. (we’d likely take over the place!) Also spa may not suit people receiving ongoing hormone treatments as may have lines in etc. If we do settle on Manchester then we have a couple of AAAs located there so perhaps you ladies can help me with suggestions for venues and let us kno if spa would be an option given numbers etc!!
Angie - Daphne is gorgeous, I bet you are beaming
Carol - so sorry to hear about the break up, hope you are holding on ok x
Amber - Cameron House, lovely! Glad you are feeling quite well and great your Onc is prescribing a holiday. Is it on the NHS lol??
Philomena - see you tomorrow on the platform - it’s a great feeling. I had a picture of you in my head with tampons up your nose during your 14 hour ‘nap’ lol
Good luck to anyone else with cocktails this week
Take care AAAs
Pauline xx
I’ve had a quick look online and Park Inn is in Manchester city centre, so it should be easy to get to for everyone. It offers spa days and offers are available online for groups of 19 or more, however if you are staying there as a guest you can access thepool and saunas etc anyway and could always book a massage treatment separately if you want or are able to have one.
www.parkinn.co.uk/hotel-manchester
I’ve just had a quick look, but I’ll keep an eye out for others. I’ve not been for a spa day before so I’m afraid I can’t speak from experience but I will ask around
That should say groups of 10 or more.
Flybe do a flight from Inverness to Manchester for aprox same price as the train which would involve 2/3 changes, is this exciting or am I easily pleased at the moment! Xxx
hi all
just had liver & onions, broccoli and cabbage, bloods tommorow! They will be good!
I cant commit to a trip yet, work for me in season is difficult, unless you all come to my hotel?? Bit of a trek to John o Groats but worth it 
and i think thats when i get my boob job, so i’ll see nearer the time.
Carol - hope you’re looking forward, bad time for relationships I think. I’m finding it hard too.
Pauline - ive got the dodgy mouth before i even get the last one!! the magic enzyme in the fresh pineapple is working, i have it every couple of hours, a few bits.
Amber - how sweet, i love loch lomond, what a thoughtful boy.
Moira - i’m from yorkshire, where are you
Mel-A - your curry sounds nice, i hope you have working taste buds.
hope youre all ok Judy, Kate, Mel, Rozz, Louis, lynn
Baby daphne’s doin fine, mums recovering well and my son is the proudest dad ever - thankyou for all your kind wishes.
angie xx
Evening Angels. Cycle 6 day 5.
Haven’t felt great past few days but just wanted to send Philomena big hugs for tomorrow and best wishes for your lovely family who I know are right behind you. X
Pauline - Could you count me in for meeting up too. When and where no problem. I will be bringing OH too as he has helped me every step of the way. Absolutely can’t wait and the Park Inn sounds good.
Moira - Thanks for offering to wait for us slow coaches on the platform.
Mel - Hope your ok or are you enjoying a Devonshire ice cream.
Will catch up with you all on the flip side of these horrible SE’s.
Lv n Hugs, Sandy
Good luck for tomorrow Philomena, hope it all goes well.
CAROL thinking of you, stay strong.
I have made it to cornwall and am so pleased I have. Great to see friends even if I’m asleep most of the time. Feel like I’ve got a cold but assuming its Ses. Looking forward to beach, ice cream, fish n chips and hopefully sunshine!!
Love mel xxx