Good luck tomorrow Philomena. Nearly there
Hope you feel better soon Sandy.
Enjoy your holiday in Cornwall Mel. Donāt pick up any bugs
Morning Angels.
the darkest hour is before dawn and this dry sore mouth is horrid. The texture of food feels like grit and is tasteless. When I swallow my throat feels constricted. my appetite is limited so I am drinking a lot of homemade smoothies and fresh juices for the vitamins.
you all sound like you are coping quite well.
Mell, the CMF is delivered by a butterfly fine needle and my injections take minutes. The tablets are not easy to take and I HATE taking them.
I hope the weather remains good, I love taking my Louis for a walk around Lymm Dam we are very lucky to live next to a beautiful place. If anyone lives near Lymm thats where I am.
feeling broody at the moment, I have no children just my King Charles Cavalier. My first cancer treatment took away that chance,
although my job as a long haul stewardess did not help me meeting a partner. I have Trevor now, we were due to be married on the 29th Dec 2012, my 50th birthday But my dad went through chemotherapy so we changed it to the 19th July 2013. We have now decided to wait for my treatment to be over and have a small wedding. I canāt face looking at my dress at the moment it is still in the shop.
Just wanted to share that with you all.
Debra. xx
Duh! Chemo brain, Iād got logged out and couldnāt remember my password!
good luck today philomena, hope everything goes ok, donāt forget your happy dance!
Mel take care in Cornwall, have a lovely time.
off to see the oncologist now, hope s/e are minimal ladies x
Cycle 5 docetaxel 2 day 11
Morning Angels
Good luck today Philomena getting off the train.
Sorry to hear about your breakup Carol This Cancer does not make it easy on relationships, hope you are ok.
Debra must be sad to have passed your date by now on two occasions especially when you feeling low with all the side effects just think how good the the day will be when all this shā¦ Is over with hair and all.
Pauline Manchester sounds good I have only ever been to the airport so looking forward to it. Spa may not accept cancer patients we should check that out donāt want anyone to be disappointed.
Baby Daphne lovely head of hair I think we could all do with some of it.
Mel Cornwall is such a beautiful area we were there a few years ago I loved it even though it rained every day, hope you donāt havmum to get familiar with their hospital keep well and enjoy.
For everyone else hope you are all managing your side effects.
I am over the worst now I think mouth even seems to be healing a bit, I am still exhausted with the least wee thing. Went out yesterday for a couple of hours with my daughter shopping she was getting some cloths for going away on holiday next week. Felt like an old woman having to take a seat in the changing rooms. I bought another scarf, when all this is done I will be able to set up business selling scarfs I now have so many. Lol
Today I have an appointment with cancer support for a therapy session hopefully reflexology girl was a bit general rhyming off a list of treatments available, will let you know how it goes.
Keep well Angels and take care Lynn x
A very good afternoon to all my lovely Angels,
I have been doing my happy dance, or dodgy dancing my daughter would say! Final chemo took much longer than usual as it took the poor nurse nearly half an hour to find a vein! Then had to keep stopping as it was getting painful. My hand is twice its normal size butā¦I donāt care, I have arrived at the station, yippee. Now looking forward to the rest of you to arrive and greet you all with big hugs. Thank you all for the messages of support, really meant a lot to me.
Good luck Angie for tomorrow, and Daphne looks beautiful.
Pauline, hope your soon feeling better. I agree your OH should come, heās been an integral part of your recovery. Think I will bring mine then they can compare notes!!!
Mel, glad youāve got down to West Country again, enjoy.
Amber, Flybe also has flight from Norwich to Manchester so will be flying up.
Debra, I know Lymm from when I lived in Didsbury, my best friend was born there. Hope your feeling better too.
Pauline your doing a grand job in the organisation of our big trip.
Anyway must sign off as chemo brain is kicking in fast, wonāt be able to mention anyone by name for at least three weeks, then no more chemo brain!!! Donāt know what Iāll blame it on after thatā¦ How about Alziemers Lite?
to all of you on the chemo train this week, wishing you all minimal s/e and the sleep fairies arrive early xxx
Yay- another one off the train! Well done Philomena xx Iām looking forward to joining you on Thursday
Good luck with your last one Angie. Is it tomorrow or Wednesday?
Also good luck to anyone else due this week. Final or not. Hope those of you who had it are coming through the SEs ok.
Iām feeling quite giddy about our get together. Is there anything else anyone wants to do? Manchester is great for food, shopping, museums, bars etc. The comedy store is a good night out for a meal and entertainment if you want an evening venue.
Afternoon Angels,
Well done Philomena. You sound really on top of the world. Long may it last!
Amber,I went to Cameron House once, many years ago. Itās absolutely delightful so enjoy!
Angie, whatās a yorkshire lass doing in John O Groats? Iām a geordie lass who has lived in Wakefield for the past 35 years.
Hope you have a lovely holiday this time, in Cornwall, Mel.
How was the Sunderland Air Show, Lori? Took eldest grandson back up to Newcastle yesterday. Weather there was much better than the thundery showers weāve been having in Yorkshire.
Sorry to hear you havenāt been too good, Sandie. Not long now though and youāll be on that platform with the rest of us - even though Iām not there myself yet! Roll on Thursday!
That is sad re your wedding postponements Debbie. Hope it makes the up and coming one even more special.
Moira xxx
hi Angels
had the bloods done for the last time today, ready for wednesday.
I have just had a bag of cheese & onion crisps and they tasted like cheese & onion crisps! doesnt take much to please me just now.
Ive got the same amount of pills coming as i had last time so i dont have a repeat of the horrendous first tax, so iām going to take everything they give me, all the sick stuff and the painkilers ( i dont normally have all of them if i think i dont need to) iām going to make up my den, and iām not coming out until i feel good. this is my chance to keep my feet up for a few days and watch telly in bed. I already have symptoms from the last one, they have never gone away, mouth is just trying so hard to fur up but iām on it, i have to say the fresh pineapple is keeping it fresh and unfurry. I feel like ive been run over by a bus, everything aches, teeth and gums are painful, iām not sleeping, i havent had much taste buds action - that may have just changed though hahaha, toilet problems, piles, snotty nose, sore runny eyes, picc line is sore - so thats me now - wait til wednesday!! Picc line out too, so i can lay in the bath like moby dick!! Note to self, must think about dieting.
mel - eat some cornish ice cream for me, have fun.
Debra - is it Lymm in cheshire, ive been there it is lovely.
Judy - your picture still makes me laugh, pleased you didnt lose your eyebrows, hope you had a good meeting with your onc. Are you still feeling crappy?
Lynn - therapies sound good, what did you have? Ive booked a LGFB at maggies when i go for rads.
Philomena - congratulations on hitting the dance floor, hope you suitably embarrassed your kids haha
Mel-A - looks like your brains doing overtime, its nice to have something else to think about isnt it. i get done the day before you.
Moira - we wandered up here (about 8 miles from groats) and if we had carried on we would have fell in the sea so we stopped here. All my family is in Rotherham, my neice is in wakefield though, not far away. How are you?
Hope you are all feeling okay, eating well, sleeping well and getting well rested.
angie xx
Final Tax Day 7
Congratulations Philomena and welcome to the Party on the Platform, are you still dancing?
Sandy sorry youāre not feeling so good hope out lifts soon
Mel, Cornwall, fish n chips mmmmmā¦ Behave yourself Donāt want you back in hospital ā¦enjoy!
Debra, stick in there girl nearly there, weāre all waiting for you And remember you have the wedding to look forward too.
Angie good luck on Wednesday
Judy hope all is well and appointment with Onc went ok
Nothing major to report here s/e ok, enjoyed a nice afternoon in the sunshine. Lynn, agree that some Spas may not consider cancer patients especially those with node clearance.
Sending sleep fairies and minimal s/e to all xxx
Oh Angie, I know how you feel, this is the first time that Iāve still got s/e from the last session, and next last ones due again on Friday. Ive walked around scarborough today with my bald head, like an old lady, I Can hardly walk my legs ache so much. my daughter was killing herself laughing at how people were trying not to stare at me, but staring all the same. The good news is the oncologist canāt feel the tumour at all so the chemo s worked, Iāve still got to have the mastectomy and radiotherapy but Iām optimistic.
Amber, glad your feeling ok on day 7, fingers crossed it stays that way.
Good luck on Wednesday Angie.
Moira, good luck for Thursday.
judy, - its lasted a long time hasnt it, do you expect the last one to be the same? iām not planning to do anything just in case. are you still dribbling? good news from the onc, i had mx first so ive got used to it now, recon after march next year. Is it your hips as well, i ache like ive rusted up ( ancient old thing ) you sound just like me, bet you ready for friday then? Cant believe you dare go out with your naked head. so brave.
moira - you too, missed that bit about thursday, and Mel A ,
anyone else this week?
angie xx
Dear Angie, yes Lymm in Cheshire. xx
angie, the dripping nose has stopped- it seems to come for about 3-4 days along with the runny eyes, and then just goes. Itās weird like the rest of the s/e how, I wake up with a different side effect, which lasts for a few days only to be replaced with a different s/e. at the moment, the skin is peeling off the end of my fingers, the oncologist just said, itās a s/e along with everything else. But yes, 3 weeks of all these different s/e and the legs still aching along with the veins in my arms, is a bit much now. My hips are fine at the moment, its about the only place ive not had aches and pains. The oncologist thinks it will be the same the next time and that it will take a while to get over. I wish I had, had the surgery now, cos Iām not looking forward to it. Im dreading looking at it afterwards more than anything else. Iām really squeamish and the thought of looking down with nothing there but a long scar, is something Iām just not looking forward to.
oh, nearly forgot, my bald head has bum fluff now, itās all white and about 2mm long, but itās there. It doesnāt bother me going out with a bald head but a poor little girl today was staring at me and I think she was a little bit frightened, poor thing!
Hi Judy, hope the s/e soon reside.when I met up with Sandy the other week in Wells I bought a long be any bag which you stick in the microwave. My arm today is a bit of a mess now and really painful, but this really helps and seriously reduces the aches and pains, hope it might help you.
you ladies living or from Yorkshire! My OH is from rotherham and were up weekend of 16th August to drop youngest for the week. My oh insists that she doesnāt talk with a Norfolk accent !! The out laws are taking us the the Magpie cafe in Whitby followed by the Knicherbocker glory parlour in Scarborough, hope you might be up to meet up for a choc nut Sundae Judy. Iāll come in disguise if you will, lol. Iāve got a very nice pointy with heās hat and a few false noses and moustaches
good luck Angels, onwards and upwards xx
judy - beleive me, the surgery is ok. my scar is very good, U shaped ready for recon, its ok. ive stuck with the foam boob, cant be bothered to go and get the heavy one. Ive got the bum fluff, its bl***y grey. Fingers sound a bit gruesome, i havent had that one. Gobs going again though, that one drives me nuts!
Philomena - small world eh, week in Rotherham, was that a holiday? Quite a few āYorkshire Puddinsā on here.
Louis - yes, what a lovely place, we bought a narrowboat from there, very pretty area.
angie xx
Well the steroids have so far won the snoozing battle. Just had a nice cup of tea with sour dough bread and my homemade marmalade to try to induce or overpower the steroids ! Much easier putting up with this knowing only 2 more days and finished strangely today they gave me a pack of thirty, grat sence of humour.
although I only had the WLE I had a mass approx size of tennis ball removed, my scars are amazing you can barely see them. The breast surgeons today are fantastic Judy and will do a brilliant job Im sure.
Angie my OH thinks our Niamhy gets Yorkshire elocution lesson on her trips to Yorkshire, but really just gets spoilt rotten by her grandparents and so long as she doesnāt come out with any Norfolkese, she will be fine.my other halfs brother lives in Dingwall, just outside of Inverness and knows lots of people from Yorkshire up there. the scenery in both places is wonderful, Norfolk is a tad flat for me,so love going back up north.
sorry about all this steroid induced rabbiting on, just know that I will not have the energy tomorrow. My chemo throat came on early today. Itās so deep at the moment and husky I could make a fortune on the 0898 numbers!
Moira I have spent a lot of time in Wakefield in the eighties and nineties at the Prison service colleges on Love Lane and near Pinderfields doing various courses.Many a great night at New York New York followed by the night club in town ( canāt remember itās name). Pop through every now and then as out laws donāt live to far in a little place called Thurnscoe.
Goodnight Angels, onwards and upwards xx
It is now total silly oāclock time!
the euphoria and steroids are indeed a heady mix! But on the bright side I have done some cleaning and tidying, drank lots of tea as my mouth is soooooo dry, watched some hospital Sydney on Sky+ And seen more operations in the last 3 hrs than I saw during my nurse training. Currently feel I could possibly perform some of the minor stuff myself. Continued doing the happy dance whilst tidying up but it had become more of the last dance of the night!
just sat out in the garden watching the sky lighten, it will be a beautiful sunrise today. What a beautiful time of day! Watched the bats flying home to roost, or whatever they do, and some birds are singing, with a very gentle breeze. I think it will be a good day.
must get back now to hospital Sydney to watch a few more ops before I go to bed. Completely wide awake, but I have slept for England this last week, so donāt feel bad on it.
Xx
Good morning Angels, yes Im still up and have decided to go with it.I have taken my steroids to give me an extra boost as need to go to the dreaded GP this morning. Have had a terrible cough since mid may when I went into hospital with neutropenia sepsis. Although my chest has always been clear it seems to be in my throat. As with any cough always comes at the wrong time and people look at me thinking Iāve got lung cancer!!! Should have senn the Dr at the unit yesterday, but the poor lad was rushed off his feet, so will go and do battle with my own GP at 8. Will also get my eyes sorted as well as have had a kind of conjunctivitis for weeks. Itās been more responsible for my current lack of eyelashes. Hopefully big snooze when I get back.
Have a good day xx
Philomena, I definitely think the steroids won the sleep battle last night for you! The early morning image sounds lovely, bats, birds and sunrises. I was brought up in Wath on Dearne so know Thurnscoe! The nightclub in Wakefield was the blackcat or something like that in the 80ās wasnāt it? I donāt go back to Yorkshire too often these days as my parents moved to Norfolk about 30 years and my grandparents unfortunately are no longer with us.
hope you get some sleep today, I had a good 11 hours yesterday after my steroids wore off properly!
Kate
x
I have noticed on CMF that my throat and mouth are sore nothing seems to help. I find it difficult to eat too canāt taste any food!
it hurts when I swallow too. Anyone else experienced this?
Sorry to be moaning all the time. Forgive me.
Debra. xx