Helen,
I’m on the one on the 20th… see if you can get on that one. Maggie’s is shut fri and mon this week… I’ve also booked into the talking heads which is on straight after which is for the head scarfs. be great if you could make that one… xx
Fiona xxx
Hi Fiona
I’ve just emailed Maggies now asking if I can get on the 20th, so I’ll also phone them in the morning to see - It’ll be great if I can get on it with you.
I can’t believe how stupid I am to have missed todays session, I’ve just had a good cry about it when I put Seren to bed, I’m just so cross with myself.
I hope your chemo goes ok - take it easy tomorrow night.
Helen
Hi Girls i am on the scrounge here i am doing the womens 10k in May in aid of the Maggies centre.I know we have all used it and its a great support to patients and their families. I done the 6 week course on stress and relaxation and found it very good and also found you could help other folk going through the same thing.I have put a link above if anyone would like to donate it doesn’t have to be much every little helps.I hope the link works iam not great with computers. Take care everyone
Tracy xxxxx
hi eveyone
Not feeling as bad this morning hope thats it passing now and i can get out the house for a bit !!
Tracy… Thats great your doing the 10k,I have entrered into the 5k race for life again this year, need to get back out training once i feel a bit better. The girls in my work held a charity nite for cancer and gave £500 to the maggies centre its a great place… I was looking into that course yesterday, thats good you enjoyed it, will need to call them.
Fiona and helen it would be good to go on the look good course together!!!
hi sharon that was a good birthday present you got…I got one for going into hospital it was great… You will need to download itunes and then copy all your cds it took me about a week to do it but i didnt mind as it was a god send in the hospital to drown out the noise…how many gb’s was it?
Do you want to meet next week for some lunch or coffee!!!
I am gettin some rheiki done next wed at 4.30pm but appart from that i have nothing on…
Hope everyone is good and keeping well lol
jo xxxx
Hiya Gals!!
Well as you can see I’m not in getting chemo right now!! Saw My onc about lump(which is fine) at 9am this morning and he told me that although he had consented and sent the order to the pharmacy, somehow it never got made up!! aw I didn’t know whether to laugh or cry!! I now go on Friday… I’ll keep to my Tuesdays after that but it has set all my dates back… works in better for my birthday in may, and it’s my Dad’s 70th tomorrow so now I can take him out for a nice meal, so I suppose it’s not all bad.
Glad you’re feeling a bit better today Jo, hope the worst is by…Not sure about lunch next week, but if everybody makes an arrangement I’ll try my best to make it…xx
Hi Tracy, glad you’re doing ok… can’t see the link… has BCC removed it? x
Hope you’re doing good Sharon xx
Love and hugs Fiona xxx
Hi All
Fiona - Poor You, I can’t believe you got sent home without your chemo, that’s so crap – I’d have been in tears (again!). I spoke to Maggies this morning and I’m not able to get on the LGFG session on the 20th, the next available one is on the 11th May, but if there’s a cancellation she’ll let me know. The lady I spoke to suggested I tag along on the 20th and have a look round and do the other session afterwards, so I might just do that.
Tracey - good for you doing the 10k run, let us know the link and I’ll sponsor you.
Jo – Glad you’re feeling better – hope the worst is over.
I’ve got a wig appointment on Tuesday next week, but should be able to make the rest of the week if something is arranged – John’s off, so he can have the kids – ha!
Hope everyone else is OK.
Helen
Hi Girls
Annie here!
Feeling a million times better! I will see if I can get antibiotics preventitivly for my weak week next course!
Getting my bloods done today in preperation for chemo tomorrow, hope they’re OK. Going for birthday lunch at LaTasca now - treat for my sis before Hairyres at 3.45!
I live in sunny Blantyre, live (happily) alone in my wee 2 up 2 down house - mortgage for which, thank god, is paid, with my 3 cats - all sibling. I was laid off on the 5th jan and dx on the 12th! I was working P/T for BeCogent working on behalf of Argos. I loved it as it was friendly, pleasanr and stress free! I can go back to work for BeCogent when I am better, but I have been contacted by a lot of agencies in the past few weeks. I only want to work p/t now, and that is surprisingly hard to find! I love life, my famly (many of whom live in Blackpool) gardening, reading, doing courses (I’m a study junkie, but have little concentration at the moment)love cimena, gigs, reading, music, socialising. I am bored out of my box at the mo., was stir crazy at the beginning but now am too pooped to want to go out. And when I do go out, get so tired and need to come home! And now I am terrified of picking something (else) up!!! Cancer seeps into just about evry aspect of your life. I was sooo determined that I was going to use this time productively. HA!
Jo, I don’t know if this’ll help, but I take crystallised ginger and yogurt coated ginger and I have not needed antirmetics! I’m so scared I’ll get the dreaded constipation - it was AWFUL when I had it. Again, majool dates help there. I get sick really easily, so expected to be barfing all day and all night. Actually, everybody expected that! But the ginger really seems to work. Hope this helps. Even ginger ale might help.
Glad you had such a good day Sharon, and all of the nasty chemo will be flooding out your system as we speak! God you have had some time of it. I am 4 courses of FEC, cannot imagine a long prolonged regime. I am counting the days. It’s great that your surgery is only a couple of weeks away. Will you be getting the recon simntanously? I have not got that far in my thinking! I didn’t even know that Mr Musa didn’t do the recon! And I thought I was well informed. One stage at a time I guess.
My ‘plan’ is chemo, surgery to remove the tumour (mast or lump - don’t know which yet) and the rest of my lymph nodes (2 out of 5 were involved), then poss more chemo followed by rads as there was node involvement. Sounds about the same as most of you guys?
Helen and Fiona, how are you guys feeling now? I don’t know how you manage with young kids - tip the hat to you ladies!! Chmeo going well. I think one can cope with chemo, listening to your body etc, and not as traumatic as i feared. It is doing it’s good stuff to the tumour that have invaded us (does anyone else feel like that, kinda like the Alien, lurking inside you, unbeknown to you?) Anyway, I view it as the ememy and the FEC as my wee soldiers going into battle. Got to expect some collateral damage in battle. It helps me to think that it’s a war already won, and everythig is mopping up.
Carol from Maggie’s Centre called and left message, but I couldn’t answer the phone - no voice. Will call today. Iw as due to see her on day they have reappointed chemp to, so my diary is all shot again. Will call to rearrange everything. Must also get booked in the LGFB session as I have lost most of my lashes so my eyes are baldy (I had long lashes before) and I look unnaturally pale!!! No idea how to make myself look healthy and natural! The infection knocked 7 shades outta me - more than the chemo!
One thing I have started to do is campaiign for better benefites for us. I have never been sick for more than a week before this, and £60.50 a week is desisory. As I own my home, I can’t get help towards anything and being ill has cost me nearly £2000 since Jan, paying bills and cost of living. Savings are all but wiped out now - benefits will increase now as I am ill for more than 3 months next week. I contacted Tom McCabe, my MSP to bring this dreadful situation to his attention - will do the same for MP and MEP. They are all in recess now - get better holidays than schoolkids. I did speak to Kathleen, McCabe’s assistant and she was gobsmacked at what I told her - like everyone, she thought people given the news and treatment we are all getting at least would not have financial concerns. She truly was shocked and NOBODY has contacted them about this situation. So I am taking it upon myslf so to do. Those who represent us have no idea how their actions/inactions repercuss upon us. Care to join me?
I love campaigning. I have never done it on behalf of myself before. But I have been treated shamefully - Fiona, from the hour long phone interview to the form they then send you out that asks the most intimate and impertinant queations to see IF you would be entitlted to £60.50 p/w, with no disablity premium (I was already disabled) under this new ESA. Our representatives don’t seem to know about this new ‘benefit’ I want to make sure that no one else goes through what I’ve been through the last 3 months. Maybe should start a thread with our tales? Even those on company sick pay will suffer financiallhy, but those who don’t have will only get what used to be called SSP and is now the cursed ESA.
I feel less helpless if I can shame those who depend on our votes.
By the way, it takes just 10 letters from constituents for a MP to take something seriously. Not many. Think I’ll also contact the red tops and the broadsheets asking those newly diagnosed with cancer for their experiences with benefits etc. At the time when we need it most, we get next to nothing. At least I have.
Comments would be welcome. I have had 2 fronts to fight - using up my hard earned savings to stave off REAL poverty - my gas/electric bills alone are £135 p/m (thank god I had a couple of grand othewise God alone knows what I would have done)and fighting this horror that ha happened to us. It’s not right and it’s not fair. I am a hard working woman who has contributed all my life to the ‘system’ and have only been off ill when recovering from my 5 hours shoulder operation - I had 6 weeks of intensive physio 1 hour twice weekly once the bones had knitted and the soft tissue damage deminished. That is why I am disabled, do not have full range of my arm nad the nerves were damaged so I have restricted use of my right hand.
Anyhow, I am of the opinion that it’s better to organise not agonise and now that I am not befevered …
Good luck to everyone.
Angela, are you sure you are ready to return to work? The folk at your work sound great, but you have JUST finished treatment after a gruelling time!
Hope to meet you all soon, hope that I never get another infection in my life!!! The past fortnight passed by in a fog of coughing, dozing, headaches, aches, I was a regular snot machine!
Love and best wished to all of you, Pauline, hope you are rid of your line - that sounds scary! Havent met anyone who has had to have one of those. You always sound so upbeat despite everything!! Must get down to Maggie’s - I loved it there but have been too poorly lately.
Must dash - tapas await, maybe will have a half of San Miguels too (had 3 half pints of Guiness on Sat and ENJOYED them)
God bless and feedback on a political campaign of behalf of us and those even more vulnerable? I’ll do the work, but backup from from my peers would be great.
Love you lots like jellytots
Annie W.
Hi Girls
Annie here!
Feeling a million times better! I will see if I can get antibiotics preventitivly for my weak week next course!
Getting my bloods done today in preperation for chemo tomorrow, hope they’re OK. Going for birthday lunch at LaTasca now - treat for my sis before Hairyres at 3.45!
I live in sunny Blantyre, live (happily) alone in my wee 2 up 2 down house - mortgage for which, thank god, is paid, with my 3 cats - all sibling. I was laid off on the 5th jan and dx on the 12th! I was working P/T for BeCogent working on behalf of Argos. I loved it as it was friendly, pleasanr and stress free! I can go back to work for BeCogent when I am better, but I have been contacted by a lot of agencies in the past few weeks. I only want to work p/t now, and that is surprisingly hard to find! I love life, my famly (many of whom live in Blackpool) gardening, reading, doing courses (I’m a study junkie, but have little concentration at the moment)love cimena, gigs, reading, music, socialising. I am bored out of my box at the mo., was stir crazy at the beginning but now am too pooped to want to go out. And when I do go out, get so tired and need to come home! And now I am terrified of picking something (else) up!!! Cancer seeps into just about evry aspect of your life. I was sooo determined that I was going to use this time productively. HA!
Jo, I don’t know if this’ll help, but I take crystallised ginger and yogurt coated ginger and I have not needed antirmetics! I’m so scared I’ll get the dreaded constipation - it was AWFUL when I had it. Again, majool dates help there. I get sick really easily, so expected to be barfing all day and all night. Actually, everybody expected that! But the ginger really seems to work. Hope this helps. Even ginger ale might help.
Glad you had such a good day Sharon, and all of the nasty chemo will be flooding out your system as we speak! God you have had some time of it. I am 4 courses of FEC, cannot imagine a long prolonged regime. I am counting the days. It’s great that your surgery is only a couple of weeks away. Will you be getting the recon simntanously? I have not got that far in my thinking! I didn’t even know that Mr Musa didn’t do the recon! And I thought I was well informed. One stage at a time I guess.
My ‘plan’ is chemo, surgery to remove the tumour (mast or lump - don’t know which yet) and the rest of my lymph nodes (2 out of 5 were involved), then poss more chemo followed by rads as there was node involvement. Sounds about the same as most of you guys?
Helen and Fiona, how are you guys feeling now? I don’t know how you manage with young kids - tip the hat to you ladies!! Chmeo going well. I think one can cope with chemo, listening to your body etc, and not as traumatic as i feared. It is doing it’s good stuff to the tumour that have invaded us (does anyone else feel like that, kinda like the Alien, lurking inside you, unbeknown to you?) Anyway, I view it as the ememy and the FEC as my wee soldiers going into battle. Got to expect some collateral damage in battle. It helps me to think that it’s a war already won, and everythig is mopping up.
Carol from Maggie’s Centre called and left message, but I couldn’t answer the phone - no voice. Will call today. Iw as due to see her on day they have reappointed chemp to, so my diary is all shot again. Will call to rearrange everything. Must also get booked in the LGFB session as I have lost most of my lashes so my eyes are baldy (I had long lashes before) and I look unnaturally pale!!! No idea how to make myself look healthy and natural! The infection knocked 7 shades outta me - more than the chemo!
One thing I have started to do is campaiign for better benefites for us. I have never been sick for more than a week before this, and £60.50 a week is desisory. As I own my home, I can’t get help towards anything and being ill has cost me nearly £2000 since Jan, paying bills and cost of living. Savings are all but wiped out now - benefits will increase now as I am ill for more than 3 months next week. I contacted Tom McCabe, my MSP to bring this dreadful situation to his attention - will do the same for MP and MEP. They are all in recess now - get better holidays than schoolkids. I did speak to Kathleen, McCabe’s assistant and she was gobsmacked at what I told her - like everyone, she thought people given the news and treatment we are all getting at least would not have financial concerns. She truly was shocked and NOBODY has contacted them about this situation. So I am taking it upon myslf so to do. Those who represent us have no idea how their actions/inactions repercuss upon us. Care to join me?
I love campaigning. I have never done it on behalf of myself before. But I have been treated shamefully - Fiona, from the hour long phone interview to the form they then send you out that asks the most intimate and impertinant queations to see IF you would be entitlted to £60.50 p/w, with no disablity premium (I was already disabled) under this new ESA. Our representatives don’t seem to know about this new ‘benefit’ I want to make sure that no one else goes through what I’ve been through the last 3 months. Maybe should start a thread with our tales? Even those on company sick pay will suffer financiallhy, but those who don’t have will only get what used to be called SSP and is now the cursed ESA.
I feel less helpless if I can shame those who depend on our votes.
By the way, it takes just 10 letters from constituents for a MP to take something seriously. Not many. Think I’ll also contact the red tops and the broadsheets asking those newly diagnosed with cancer for their experiences with benefits etc. At the time when we need it most, we get next to nothing. At least I have.
Comments would be welcome. I have had 2 fronts to fight - using up my hard earned savings to stave off REAL poverty - my gas/electric bills alone are £135 p/m (thank god I had a couple of grand othewise God alone knows what I would have done)and fighting this horror that ha happened to us. It’s not right and it’s not fair. I am a hard working woman who has contributed all my life to the ‘system’ and have only been off ill when recovering from my 5 hours shoulder operation - I had 6 weeks of intensive physio 1 hour twice weekly once the bones had knitted and the soft tissue damage deminished. That is why I am disabled, do not have full range of my arm nad the nerves were damaged so I have restricted use of my right hand.
Anyhow, I am of the opinion that it’s better to organise not agonise and now that I am not befevered …
Good luck to everyone.
Angela, are you sure you are ready to return to work? The folk at your work sound great, but you have JUST finished treatment after a gruelling time!
Hope to meet you all soon, hope that I never get another infection in my life!!! The past fortnight passed by in a fog of coughing, dozing, headaches, aches, I was a regular snot machine!
Love and best wished to all of you, Pauline, hope you are rid of your line - that sounds scary! Havent met anyone who has had to have one of those. You always sound so upbeat despite everything!! Must get down to Maggie’s - I loved it there but have been too poorly lately.
Must dash - tapas await, maybe will have a half of San Miguels too (had 3 half pints of Guiness on Sat and ENJOYED them)
God bless and feedback on a political campaign of behalf of us and those even more vulnerable? I’ll do the work, but backup from from my peers would be great.
Love you lots like jellytots
Annie W.
Hi girls sorry not been in touch but having no end of bother with Broadband. After few minutes just logs me out so this will be brief. My daughter was 30 on friday and I had family party for her. It was so good to see everyone and she enjoyed. At hospital yesterday but bloods rubbish so cant start xeloda . Back again thursday so fingers crossed. Dr Y talking about surgery despite being told earlier this was not an option. Dont think he knows what to do with me as what I have is very uncommon. Saw some comments about benefits. Carol at Maggies helped me a lot as i had to give up my work and I’m a widow. She got me a macmillan grant and also DLA. She is best to fill in the forms as she knows whats what.
Sheila
MORNING EVERYONE…
WHATS THE SKETCH WITH THE WEATHER…WERE THE HELL IS THE SUN?
RE-LUNCH DATES…I AM COOL FOR WED OR THUR NEXT WEEK…OR THE WEEK AFTER…
GOT CT SCAN 2DAY…BLESS…JUST REALLY WANT 2 VEG OUT ON THE SOFA.
ALL I SEEM 2 DO IS EAT LOADS NOW…REALLY MAKING UP FOR IT.
HOPE EVERYONE IS OK
PXXX
Hi girls
Feeling really crap, I’ve done something to my shoulder, either pulled muscle or trapped nerve, I’m in agony!!! Went to post something last night couldn’t even type. Had to go to bed lie down on my right side so pain would go away. At one point I couldn’t breath properly as pain was so sore. Got appointment with doctors this afternoon thank god.
Lunch next week good for me except Thurs, that’s when I see consultant, or following week free any day.
Jo - good to here your feeling wee bit better.
Annie - Hope you enjoyed LaTasca, have you tried Cafe Andaluz it’s so much nicer? I’m with you on benefits, I was shocked when told about living on 60.50, also been told will take 3 mths for decission on DLA!! The woman I saw was great, filled out form for me.
Pauline - can’t believe how cold and wet it is, just chill and relax indoors.
Fiona, Helen hope your both well. Fiona hang on in there with chemo just forget it for now and enjoy your dad’s birthday.
Sheila, I was 35 on friday good you enjoyed your daughters birthday, hope you don’t mind me asking but what is it you have?? I have inflammatory breast cancer which is uncommon.
Angela,Tracy hope your well.
Got to go can’t type any longerr
Hugs Sharon xxxxxxxxxx
RE-LUNCH…
THERE SEEMS 2 B A CONCENSUS THAT NEXT WED IS GOOD FOR MOST PEOPLE.SORRY JOE JUST NOTICED U HAVE REIKI AT 4.30PM,SO IF THIS DATE NOT SUITABLE THEN THE FOLLOWING WED?
HAS ANYONE GOT ANY PREFEERENCES FOR ABOUT WERE WE GO AND GET THE SCOFF?
HOPE U R ALL WELL
PX
hi everyone
Feeling much better now gor rid of the horrible sick feeling now !!! woohoo just got the bad taste in my mouth… Had a glass of red wine with my dinner and it didnt taste that bad,so i had 2 have a second…
Whent for a nice walk today with steven and the girls, the girls took their bike round the country park it was good to get out and get some fresh air…
I am okay for Mon, Tues or fri for the lunch not got babysitter for thurs…I like sort of food i am not too fussy…
Annie thanks for the tips on the anti sickness will def try that at my next chemo… I will try anything cheers…Hope you enjoy your tapas, Me, sharon, Angela and Tracy all went to cafe Anduluz the las time we met, the food was fab i love tapas…mmmmmm
Hope all is well with everyone else
lol jo xxxx
Hi.
Hope you don’t mind me joining in saw that you were having a few problems regarding benefits etc. I live in Ayrshire and was diagnosed last year and have had chemo, surgery and radiotherapy.I had never been off work before and was advised to claim incapacity benefit however had great problems with job centre plus and was on phone for ages applying. Got so sick of it all that i wrote to my MP who was amazed at how i had been treated and wrote to the house of commons on my behalf. The response I got was pretty poor and now wish that I had pushed the matter further so totally sympathise with you at the minute and thought that you may find it helpful to know you are not alone.
So good to see that you are all supporting one another this horride disease is harrowing enough without having financial worries as well.
Hi Peeps…
Havin a nice Day, My Dad is enjoying his birthday… Didn’t sleep too well last night, wasn’t sure if it was the steroids or all the carry on with the chemo!!
Lunch is fine with me, Maybe the following week? looks like it suits everybody better. I’ll fit in with whatever day suits. Next Wed (15th) is my youngest’s Birthday so not good for me that day…
Helen, did you book in for the talking heads session on the 20th? it’s on straight after the LGFB… Be good to meet up with you.
I’m with you on the Benefit’s thing Annie, count me in!! I can’t believe all the questions for £60 a week… now they want all my balance sheets for last years business and considering the financial year only finished at the weekend, I don’t have them made up yet and I’m supposed to send it all in to them by 5th May!!! pain in the ****!!! (sorry)!! Hope your Chemo went ok Today…xxx
Hope you are doing well Sheila…Glad you had a good time at your Daughters birthday.x
Sharon, hope your shoulder gets better soon, sounds really painful. How did you get on at the Docs today? x
Pauline, Tracy and Jo… hope you gals are doin fine and chillin out…xx
I’m taking kids and Dad to Kelvin Grove tomorrow,(maybe Dr Who?) I’m taking them into Maggie’s for a look, so they can see where I’m talking about… They’ve all heard me say so much about it…
Anyway…off to cause an inferno with a birthday Cake!!!
Love and Hugs
Fiona xxxx
Hi Girls
I’m OK for next week, can’t do Tuesday as got wig appointment - My eldest keeps asking if I’m going to get a green witches wig, aren’t kids a great support!.
I had a bit of a panic today, for some reason I decided to take my temperature at lunchtime and it was sat at 37.7. I took it again several times over the afternoon and it seemed to fluctuate between 37 and 37.9, although I felt fine. Anyway, I had a wee panic and got an emergency appointment within 10mins of phoning, got checked over and was fine. Doc was great and my temp is now back down.
Sharon – How’s your shoulder now? Did you get anything from the Doc? Hope it starts to feel better soon, take it easy.
Jo – Glad you’re starting to feel better and more importantly are able to manage a glass of wine!
Fiona – Hope your dad had a good birthday. I’m not 100% certain if I actually booked up for the Talking Heads session on the 20th April – I think the chemo must of zapped my brain cells too! I’ll phone up again tomorrow to check. Do you get the train out to Maggies? Enjoy your day out tomorrow.
Annie – I’ve just booked myself on the LGFB session on the 11th May, as the 2 sessions between Easter and May B/Hol are fully booked. Hope your chemo went ok today and you’re not feeling too rough.
Pauline – Hope your CT scan went ok.
Sheila – Good luck at hospital tomorrow. I’m still new to this, so aren’t sure about how complex things can get - take it easy.
Tracey – Thanks for your sponsor link, hope your training is going well.
Hope everyone else is doing fine – if I’ve missed anyone out – I’m really sorry.
Hugs to All
Helen
Hi Girls
Im counting down the days now till im back at work. I just have to get the GP to sign me back on. Next week is my last free week. Its flying by now.
Helen, Its good you managed to get an appointment so quickly, plus It would have put your mind at rest. Glad Everything is ok.
Sharon, Hows the shoulder?
Jo, its so good to hear you are feeling a little better. Make the most of the time. How many more chemo sessions do you have left?
Fiona, Maggies is a lovely place and very supportive. Hope you have a good day.
Pauline, Let us know how you get on at the CT scan.
Annie, The LGFB day is lovely and you will come home with so much stuff. You are totaly spoiled so I hope you enjoy it.
Sheila, good luck… hope everything goes OK.
Tracy, Hope you are well.
Suzi, Of course we dont mind you joining in. I had never been off work untill all of this either… Its a pain in the butt.
Take care girls, and if I have missed anyone, sorry
Angela
Hiya Everyone, Happy Easter!
Tapas were great - LaTasca does great deal Mon-Wed , unlimited Tapas for a tenner. Good choice too. I love seafood and the fried whitefish and calemari was devine. Still don’t have a great appetite but the extra week off chemo meant that I could TASTE. I also LOVE Cafe Andaluz, we had Christmas lunch there and we all thought is was one of the best meals any of us had ever had.
Sharon - how are you? You might know that I had a terrible shoulder injury which took a 5 hour op to recify. That’s why I get DLA! Shoulder pain is awful, no one can imagine. My brother had a trapped nerve in his ahoulder and he said he never experienced pain like it -and he had fused discs in his back that needed operating on. I found one of those wheat bags you microwave helped. Are you sleeping?
Hope the doc could help with more than pain pills. You might need some physio, which helped me enormously.
Helen. I am booked for thr LGFB on 11th May too! I went to Maggie’s yesterday to have my DLA form done by Carol but was late because of transport and left my form on the train! Talk about chempo brain. Getting FECed tomorrow (Good Fri, if you please!) Seeing Carol on 21st. She is great, told her that I am starting a proper campaign on behalf of the newly diagnosed (shw can’t, and has to be careful about reserving judgement) but EVERYONE who is facing this nightmare visited upon us will have to fight the 2nd front of poverty and beaurocracy, at one of the worst nad most stressful time of their lives.
What has really annoyed me is that no one respresnts us, the single, the sick vulnerable. As I said when I called my MSP and spoke to his sec (he was on holiday, of course) was dumbstruck. The OT who visited me was dumbstruck, the social worker who I contacted (at that time totlly distraught) told me that “I was talking rubbish, and that the minimum I would be expected to get was £120 p/w -that was the LAW” She called to apoligise the next day, as she was F*&&*&G dumbfounded.
The Occupational Therapist suggested that I release equity on my home! I told her that that was an outragous suggestion and that anyway, I was not old enough. Got an telephoned apology for that too.
Do ANY of these people know what they are talking about??
So I am disgusted by the help avialable, and the ignorance (probably shared by our political representatives) of the plight of the seriously ill.
I used to to be the Co-Ordinator of Crossroads and I could get these things done for my clients by a simple phone call or letter. AND THAT WAS UNDER THATCHER!!!
Susi (BIG WELCOME, BY THE WAY!!!) I bet your MP was dumbfounded when you told him how you were treated? AND REMEMBER, THESE MEASURES ARE PASSED BY PARLIAMENT AND VOTED ON!
So my dear sisters, I think we have an obligation to inform the public about the facts. Everyone I know is now terrified of becoming seriously ill because they know the struggle they will be faced with.
I will be only too happy to organise a campaign. This might be considered too political an issue for this forum, in which case we will have to organise… Thank you foe your support girls. I think we could do some good here. Wish someone had done it for us …
Jo, hope you’re feeling better. The ‘taste’ is hellish. I lost my sense of smell after my last chemo and all I could smell were farts and smelly socks. That was fun. I have a big bunch of white lillies, the smell of which I love, and cannie smell them …so still hasn’t returned fully. It’s like a lucky bag, this chemo lark isn’t it? On the + side FEC makes your skin really soft! Except for your feet, my heels are so cracked it hurts to walk!!
I am ok for lunch next week, don’t think there are any appointments and it’s not the ‘nadir’ so would love to meet up.
Love you guys
Annie
Hi Girls
Just a quick note - hope everyone is fine.
Fiona - I had a call from Chris at Maggies today and she’s had a cancellation for LGFB on 20th April, so she’s booked me on it and on the talking heads afterwards - so excited!.
It’ll be great to meet up.
Hugs
Helen
xxx
Hi girls - will be brief as twice got logged out.
Hope you are all ok and coping with your stages of treatment.
You will enjoy LGFB - did it last year and it is fun and you get a bag of goodies away with you.
Fiona - I never sleep when on steroids. Try taking last ones early in aftgernoon.
Tracy = well done on 10K will be pleased to sponsor.
Would love to meet up with you all as long as you don’t mind a granny joining your group!!
Love to you all
Sheila