Anyone from East Kilbride/Glasgow area?

Hi Girls,

Having a rotten time!! Started yesterday! After the Heartburn, I started to suffer really bad trapped wind! Felt like I had sledgehammer between shoulder blades and sternum, then as the evening went on I developed flu like symptoms. I’m aching all over and can hardly stand up. Been onto Beatson and I have to go to docs to have bloods done this afternoon. Temperature ok at the mo! Thank goodness.

Thought I was doing so well. Just wish it would hurry and pass. I hope it’s not an infection.

Huggs
Fiona xxx

HI GUYS…

LUNCH BUNCH…I AM FREE WED ,THUR THIS WEEK.(BUT I KNOW THAT DOES NOT SUIT FOLKS)GOING UP 2 OBAN ON FRIDAY…FISH SUPPER RUN…FORGOT 2 TELL FOLKS I AM OCD ABOUT FISH…GOOD QUALITY HADDOCK …U CANT BEAT IT.WILL B BACK ON MONDAY NIGHT.FREE ANYTIME THE FOLLOWING WEEK.BUT U GUYS GO AHEAD AND PLAN LUNCH FOR THIS WEEK IF IT SUITS U’S…CAN ALWAYS MEET UP WITH U ANOTHER TIME.
ITS DIFFICULT TRYING 2 SUIT EVERYONE…CAUSE WE HAVE ALL DIFFERENT APPOINTMENTS AND STUFF.
FEELING MUCH BETTER…GREEN TEA IS MAKING ME HYPER…BACK TO MY MAD FAST WALKING…THROUGH THE STREETS OF KILLIN.FELT A BIT GUBBED THOUGH COMING DOWN THE LOCH ROAD.TERRIBLE PASSENGER IN A CAR.ITS USUALLY ME DRIVING ALL THE TIME…WILL B TELLING OH ITS ME DRIVING ON FRIDAY…HE DRIVES LIKE A MADMAN!!!

FIONA…GET THE DOC 2 COME 2 U.TAKE VOLTY/BRUFEN AND COCODAMOL.U NEED 2 B A STEP AHEAD OF THE GAME HERE ON THE PAIN FRONT.COUPLE OF SENNA FOR CONSTIPATION.
SHARON…GLAD U R FEELING BETTER…GOOD LUCK WITH APPOINTMENT ON THURSDAY
HELEN…R U AT WIG SHOP 2DAY?
JO…U HAVE BEEN PRETTY QUIET…RU OK
TRACY…MINE STOPPED IN JAN AFTER 3RD FEC…NO SIGN SINCE…NEVER 2 RETURN ONCE OVARIES COMEOOT.
ANG…HOPE U R OK.
ANNIE…NEED 2 ROLL OOT MORE JOKES…
SUZIE…HI ,HOPE U HAD A NICE WEEKEND.
SHEILA…RU STARTING TREATMENT AGAIN THIS WEEK

BIG HUGS 2 ALL
PXXX

HI FOLKS…
JUST HAD A CALL FROM PS THIS AFTERNOON…FURTHER APPOINTMENT ON THE 23RD APRIL-THURS FOR ME.ITS BIG DECISIONS THEN…THESE PS THEY CAN TALK FOR SCOTLAND.

Fiona

I think it’s the herceptin, I was also like that when I first got it, even now my muscles in my thighs always feel tight and are sore when I try to walk, it all part of the SE.
Hang on in there girl, know it’s hard but it will pass.

Keep strong
Sharon xxxxxxxx

HI EVERYBODY…

HOW R U ALL 2 DAY…WISH THE SUN WOULD COME OUT.I THINK HOUSEWORK CAN WAIT 2DAY.
FIONA…IS IT UR SONS BIRTHDAY 2 DAY? HOW R U FEELING NOW?

RE.LUNCH DATES…DOES NEXT TUES ,WED.FRIDAY,SAT,SUN SUIT PEOPLE???

BIG HUS 2 U ALL
PXX

Hi girls wish the better weather would come. It’s so nice to sit in the sun, Really cold today. Was going out but cant be bothered. feeling really sick and tired with Xeloda. Saw your comments about Hairmyres BC nurses. My daugher is nurse there - on maternity leave. on her previous ward she did 1` day week on oncology day unit. She agrees - says there rubbish and just not interested in their patients.
Sharon - you seem to be having such a rotten time. Hope things will get better for you soon.
Lunch date - any day next week except Tuesday. Hope we can get something organised hard to get date to suit everyone.

Hi There!

Still feelin rough! Had bloods done yesterday and got antibiotics. Got losec for stomach pains and co codamol for flu symptoms. Had a bad night last night, 4.30-7am rolling about the floor!( I think I’d cope better with D&V) Gastric pain like nothing else! Now on double losec, ranitadine, gaviscon, and some other pill to keep it all away from my stomach! Feeling very sore and winded! Pain makes me scared to eat, red hot searing pain through the ribcage. I’m trying to eat little and often.

My Baby is 12 today. Can’t believe 12 years ago, wriggling about in the middle of the night havin a baby. Still doin it 12 yrs later for a different reason!!! Not going to be able to give him the birthday I wanted today but he’s very understanding and knows we will when I feel better. Too busy playing with his pressies anyway. X

Hope all you girls are doing good. I’m doing my best to keep up with events. My iphone is a god send, I can still surf under the covers!!!

Hugs

Fiona xxx

HEY FIONA…

SORRY U R FEELING CRAP…BUT HANG ON IN THERE.
SAY 2 DOC NEXT TIME AT BEATSON ABOUT ALL THE SE U HAVE HAD.
I HAD 2 LOTS OF TAXOTERE REDUCED…ONE BY 10% THE OTHER BY 20%.
MY FIRST LOT OF TAX WAS PRETTY HELLISH 2…REMEMBER 2 TAKE THE STEROIDS.
LOTS OF CHAMOMILE 2
THINKING OF U
PX

Fiona - I have had 9 lots of Taxotere twice and just finished another 6. It really is hard going - but hang in there. Lots of rest. I lay on couch and watched tele or slept. All the best
Love Sheila

Hi Everyone

I had my wig appointment yesterday and decided to go for the third one I tried on, so they’re ordering it in my colour. I’ll need to go back and get it fitted, thinned out and trim slightly – so I’m quite excited about it and definitely think I’ll wear it. Isn’t it weird trying on different hair styles?

I saw my surgeon this morning for my 6 week post surgery check-up. I felt so much better after I saw him as he was able to answer a couple of basic questions the oncologist couldn’t – like why was there 2 lumps on the scan and only one reported on in the pathology report?. I was reading part of the oncology report as he reading it and picked out the sentence ‘Helen appears very upset about what has happened!’ – and I felt like saying ‘of course I’m bloody upset’, how the hell do they expect us to react when we get such crap news?

Fiona - God you sound like you’re having a really hard time, take it easy. I feel a bit of a fraud that I’ve managed to avoid most SE’s, I’m just tried and thirsty, although I noticed yesterday that my face and skin is looking a bit ‘dehydrated’ and is starting to age; I’ve suddenly got noticeable crows-feet – argh!!!. Did your son enjoy his birthday?

Sharon – I’m really glad the pain has started to ease. Not long now till your surgery, how are you feeling about it?

Pauline – I think we’re all so lucky to have you; our own forum nurse – you’re advice is so great and reassuring. Is Green Tea good for you? I hope you have a great weekend in Oban and you get to drive ! enjoy your fish too.

Tracy – How was the hummer? I hope your daughter and pals enjoyed it and you had a great time too. I’m not far enough into chemo to comment on periods, but I’ve just had my first one post chemo and it was as heavy as hell, but I can’t complain as it was actually the first one I’ve had for 19 months (pregnancy and breastfeeding).

Angela – Is it next week you’re starting back to work? I hope you’re making the most of your last week off.

Annie and Sheila – How are you both feeling now?

Jo – Did the kids get loads of Easter eggs? Mine got loads and are slowly munching their way through them. Back to school / nursery Monday so at least we get a rest!

I think I might be entering the ‘hair falling out stage’ as I epilated my legs yesterday without any pain! Although I haven’t noticed any hair falling out yet. I know I wore the cold-cap, but at what stage does your hair usually start falling out, just so I’m prepared?

I’m not sure if I’ll be able to make lunch next week as I’ve got my second cycle of chemo on Tuesday and not sure if I’ll feel up to it –I can’t believe it’s come round so quickly. If everyone else is free, please just go ahead and organise something and if i’m feeling crap I’ll make the next one.

I think my baby is about to get her first tooth, will keep you posted!

Hugs

Helen
xx

MORNING ALL…

HELEN…ALWAYS CHECK WITH UR OWN DOC ABOUT STUFF…DONT JUST GO ON MY WORD.GREEN TEA IS GREAT FOR DETOXING ALL THE CRAP OUT UR BODY BUT ONLY ONCE UR CHEMOTHERAPY IS OVER.
BATTER INTO THE KIDS EGGS…IF THEY HAVE ANY LEFT.GLAD UR WIG APPOINTMENT WENT OK.
GLAD THE SE OF UR CHEMO WERE NOT 2 BAD…JUST B GOOD 2 URSELF.

SHARON…GOOD LUCK WITH THE APPOINTMENT 2 DAY.MY PS SAYS HE WILL DO THE RECON IN THE SAME OP…BUT I AM A BIT SCEPTICAL OF THIS GIVEN I HAVE 2 GET RADS 2…CAN B PROBLEMATIC WITH SILICONE IMPLANTS.
STILL AWAITING NEWS FROM DLA…I APPLIED IN JAN…THEY SAID THEY R AWAITING MY MEDICAL REPORT…AT LEAST I HAVE NOT GOT KNOCKED BACK YET.INTEND 2 APPEAL IF THAT HAPPENS…GOING ON 2 HALF PAY NEXT MONTH.
HOPE U R FEELING BETTER.

SHEILA…THAT WAS SOME AMOUNT OF TAXOTERE U HAVE HAD.I WAS JUST ABOUT ON MY KNEES AFTER THE FIRST ONE!!!U PUT ME 2 SHAME.

FIONA…HOWS THINGS THIS MORNING? ITS WEIRD THE SE…BUT U WILL GET THROUGH IT.

EVERYBODY ELSE…HOPE U R ALL OK AND BEING GOOD 2 URSELF
PXXX

Afternoon Everybody,

I’m up and about. Kind of! Feeling much better now. Would kill for a new stomach lining, any one got one!!! X

Good luck for Today Sharon, hope all goes well at appointment. Just think only a couple of weeks and you could be all over and done. X

I’m off to try wigs tomorrow too. Hope I find one first time, hairdressers hate getting their hair done let alone trying on wigs!! I’d much rather do someone else!! I’m looking forward to LGFB day on Monday, hope I stay well enough for that. Be great to catch up with you also Helen. They sell some really cool scarfs in maggie’s centre too.

Sheila- can’t believe how many Tax you’ve endured!! That’s a lot! I’m just so worried about being totally wiped out and not being able to have some normal life. X

Pauline- how’s you’re energy levels now? Are they feeling a bit more normal? You need to make sure you build yourself up in prep for surgery. X

Annie, Jo, Tracy, Angela hope you girls are doing good too.

Hugs

Fiona xxxx

Well girls that’s me on for double surgery 27th Sept. Plastic surgeon said no problem at all she’s used to seeing patients who have had chemo first. Won’t be ablr to get implant as getting Rads when recovered.
I’ll go into Royal on the Sunday then down for surgery at 8.30am on the Monday.

I’m excited now, strange thing to be I know but I think it’s the fact I’m getting what I want.

Sheila - You are some tough cookie getting all that Tax, I only had 4 that was bad enough.

Helen - the wigs really are brilliant

Pauline - enjoy your weekend away

Fiona - Good your feeling a bit better, you can have my stomach lining, mine is alot better now haha, hope your baby enjoyed his birthday.

Angela - good luck for work next week.

Hope everyone else is good.

Take care for now
Sharon xxx

SHARON…

GOING AWAY ABOUT 10AM.CAN’T WAIT.
SHARON…
RU GETTING A MX PRIOR 2 THE 27THSEPT…IT SEEMS A LONG WAIT.
HOPE U GUYS HAVE A NICE WEEKEND 2
TAKE CARE
PXXXX

Morning All

Pauline - hope you have a good weekend away.

Sharon - glad your appointment went well. How long will you be in for?

Fiona - hope you’re taking it easy. I’m really looking forward to the LGFG session on Monday. I’ll be great to see you. I’m planning on driving through, so will have to scroll back for your parking instructions.

Hope everyone else has a good day.

Helen

Sharon

Just re-read your post - are you really having to wait till the 27th Sept? seems ages away.

Helen

Helen

Park at the |Transport Museum, you can park there fro 4 hours and its just accross the road from Maggies

Angela

OH MY GOD, sorry guys it’s Mon 27th April, 1 week Monday.
Don’t know why I wrote Sept!!!

Sorry guys

Sharon xxxx

Hi Guys,

Sharon- was wondering why you had put Sept!! HaHa thought it was a bit long! It’s good you’re getting it done, especially if you get things in place the way you want it. X

Pauline- hope you’re enjoying a good time away. Hope the sun shines for you. X

Helen- how’s the baby’s tooth? Is it through yet.

Well I picked a wig!! Very like the bob I have now. Just hope it’s nice when it comes. I had to try get the thinest one I could to match my fine hair.

Gonna relax in front of telly tonight. Have now got thrush in my mouth from antibiotics so I’m hoping chemist can give me something in the morning! Was quite tired once I’d walked up and down sauchiehall street today.

Big hugs to everyone else, hope you’re all fine. X

Fiona xxxxxxx

Hope everyone has a nice weekend. Hope the sun shines.

hi eveyone

Sorry not been on for a bit, I have had a nightmare this week !!!
Seen my little niece last weekend and then found out on the Tues she had chicken poxs… So I had to go to the beatson to get check out on wed they done my bloods and checked to see if i was immune to the virus turns out i wasnt so had to go back on thurs to get drugs to help my immune system spent about 4hrs there and then got 2 very painful jags on the bum…

Feeling ok apart from that, back again next week for more chemo such a pain just feeling back to normal (as normal as you can feel when on chemo)

Going out for curry tonight with a few friend and my mum is taken the girls so i can get a long lie… woohoo

It’s been a long 2 wks with the girls not being at nursery roll on Monday …

Hope you all have a good weekend lol

jo xxxxx