Hi Pauline
I’m just about to move onto the CMF part of my chemo, 4 cycles left given on day 1 & 8 then 3 weeks off, so 8 actual chemo visits left - What a drag! If it doesn’t get put back again then I’ll get my last session at the end of Sept, followed by rads; fingers crossed it’ll be over by christmas.
I hope your appointment goes ok tomorrow - i’ll be thinking of you.
Take care all.
Helen
helen my cmf is differnt to yours… my epi is 3 weekly and then so is the cmf… 3 different lost of infusions so should be finished by dec too even though i have only just had 1st epi i dont start the cmf til sept. although still have rads after that too but maybe take me into the new year.
pauline… im finding it ok being a patient not sure the docs and nurses would agree… i do ask a lot of questions… but then im just a nosey bugger LOL. good luck with tomorrows appt.
Lynda xx
Hi girls - lots to catch up on. Been on holiday last week to Solway Firth. With daughter husband and baby - had great time. weather fantastic. So good to get away for a week.
Lots seem to be happening to everyone - willl need to read everything again before i can reply properly to all of you.
Are you watching wimbledon. Sat all evening watching andy Murray.
Love to you all
sheila
Hi Sheila.
Glad you had a good holiday - I was wondering where you were.
I’m just back from my 1st CMF chemo, feeling OK so far. My bloods were back up, but I’ve got immune boosting jags this time. Not looking forward to giving myself them.
Hope everyone is enjoying this good weather.
Hugs
Helen
Helen - I got jags also but my daughter gave me them - she’s a nurse. Do you not know someone than can do them for you. Don’t fancy doing to myself either. They really do make a big difference. Should increase your energy a bit. Hope you can cope ok with this chemo.
Far too hot for wig - my hair is coming in well so have plucked up courage to go without it. Hair is white and quite spiky. Got a good tan from being away so looks OK.
Was at hospital this week - Xeloda for 2 more weeks then will get a break for 3 months. Tumour will start to grow again eventually but just need a break to get my strength back.
Hope everyone coping with this hot weather.
Love to all
Sheila
Hi Girls,
Sorry haven’t been on for a while, I’ve been enjoying the nice weather although it has whacked me out!! The Kids were away at their Dad’s last weekend so I went a friend took me a run to Callendar and Aberfoyle, it was dull but warm and it was nice to get away.
Helen, can’t believe you’ll be giving yourself injections… I don’t fancy that at all! The district nurses come in everyday to me and they’re very good at working round times if I have to go out. Hope the CMF is kind to you just like the EPI was.
Sheila, You will be looking forward to a break from Xeloda, have you got any plans for trips and things? It’s good your daughter can take you away. I would love to get away on a holiday, especially whilst this weather is good. I’m hoping to get away to York on my next good week for a few days, but it all depends on how I feel… I get so tired very easily and some things just seem too much effort…Next chemo on Tuesday and I’m dreading it this time due to the sickness I had, hope they can give me stronger antisickness.
Love the new wig Lynda, how are you now after chemo? have you been coping ok?
Pauline, how did the wedding go? picture on facebook was nice…who’s the wee girl? at least they had nice weather for it… did you get date for Radiotherapy yet?
Annie, Good luck for tomorrow with the results… did you get away for a few days?
well fingers crossed for Andy tomorrow!!! he’s been playing some Fab tennis and I’ve enjoyed every minute of it. I was screaming like a Banshee the other night on the edge of my chair!!
Hope everyone else is well and enjoying the sun
Love and hugs!!
Fiona xxx
fiona i hope your next chemo goes ok and you dont feel as bad… they certainly should be able to give you diff meds and if they dont help get back in touch with your onc for something stronger.
i have been doing pretty good… mornings havent been so great and wasnt so good the last couple of days but better today… im hoping to go to a wedding on sat and camping at T in the park next weekend… so hope it all stays good.
im not a big tennis fan but would be good for Andy to win… hes done good so far.
Lynda
Hi guys,
Gutted about Andy at Wimbeldon. He still did us proud though.
Well, at Hairmyres today. Mr Musa, the consultant who operated on Sharon and I, and has left, and in a hurry! I think he was overworked. Got a new consultant, Mr Murphy. Ladies, the margins were clear, so no more chemo OR surgery. I expected at least 2 more chemo sessions. Fee, I know FEC can be awful, but it shrank my tumour from - I was told today - 5cm to 16mm after 2 courses. And I saw that when they put the marker in, so please take heart. Just think how it’s chewing the wee murderous mad cells and sometimes it get good wee loveable cells.
BCN drew 150ml of fluid, relieving the underarm wound, such a relief. Will need to have it done again.
Fee, Helen, Leslie, Lynda Yvonne, I pray that you get through chemo with as little disruption or anguish as possible. I can see a light at the end of a tunnel, lit up by rad therapy and Herceptrin of course. We will all see the light at the end of the tunnel.
Forum’s a bit quiet of late, hope you are all doing well and keeping well, and getting lots of R&R.
Gentle hugs - Annie xxxx
Hi Girls,
Gosh it’s quiet on here!! hope everyone is doing ok and coping well… I’m not looking forward to my next chemo tomorrow. I’m getting stronger anti sickness, so here’s hoping they work. Ive got to phone NHS24 if I start being sick. It won’t stop apparently so will need a jag. At least fore warned is fore armed!!
Great News Annie about the margins and not needing any more chemo or surgery, hope you don’t get too much fluid building up but it’s such a common thing…
Lynda, are you all geared up for T in the park this weekend, I hope the weather stays dry for it… How was the wedding? did you manage to get to it?
Helen, how’s things going with the CMF? are you doing your jags yet?
Sheila, Pauline, Yvonne, Sharon and everyone else… big hugs!! hope your all good…xxx
Love
Fiona xxxx
Hi Girls
How’s everyone? I hope everyone is doing OK.
Fiona – Good luck tomorrow with the chemo, I hope you aren’t too sick afterwards. Have you only got one more left after tomorrow? – I’ve got my second part of my CMF tomorrow too, so fingers crossed it won’t be too bad this time either. I start my injections on Thursday, my GP rang and doesn’t want me going to the treatment room at the surgery during my low days so I’ve got the district nurse coming out to show me how to do them, then hopefully I’ll be able to do the rest. I just assumed from what the chemo nurse said that it was common practice to give yourself the injections, which is why I agreed to give it a go. How are the boys enjoying their hols?
Annie – I’m really pleased your margins were clear and you don’t need more chemo or surgery – thats great news, what a relief that must be.
Lynda – how are feeling now? I found the week before I went back for my EPi, was when I was at my most tired? How many cycles are you getting of EPi-CMF as when you last said it seemed a lot shorter than mine. Did you manage to make the wedding at the weekend?
Sharon, Pauline – how are you both doing? Did you get your finances sorted Sharon? When do you start your rads, must be soon.
Sheila – how are you? I’m glad your hair is coming in good, I gave up on my wig last week too as it was just so hot.
Yvonne – not heard from you for a while, how are you coping with the EPI.
Take care all.
Helen
hiya all
it has been very quiet on here must all be enjoying ourselves… or zonked out!
i was all set to go to the wedding but got to the station to find they had cancelled the train and put on bus but there was no driver and they couldnt tell us if it was gonna stop in all the stations and would probably take an extra hour… and we have to go through the same palaver to get home so we decided not to go.
fee i hope your next chemo is better and that the sickness is better with your stronger meds… and def dont put off calling nhs24 if your feeling poop.
annie i know some people who have had seromas drained loads of times… hope you dont have too much more problems with it… pleased to hear you not needing more chemo.
helen my epi-cmf is different to yours… i get 4 x epi every 3 weeks and 4 x cmf all via iv every 3 weeks too… although they gave me info about the get it one week go back the next week then have 3 weeks off… but they said i wouldnt be getting it like that and have all my dates for epi and cmf up to nov.
hope all you other lovely ladies are doing ok.
Lxx
Hi Lynda and Helen,
Forgot to mention my weight has gone up from 64kg to 69kg… it was 70kg 6 weeks ago!! chemo nurse told me about 10% leeway on initial weight then they have to adjust the dose!! I don’t feel quite so bloated now that I’m not on the steroids. still chubby though!! will definately have to sort that out once chemo’s done… at least after tomorrow I can say only one more to go!!
Good luck tomorrow Helen, hope everything goes well…
Love
Fiona xxxx
Hi Fiona
Well, after my initial telling off for putting on a 1lb, I have consistantly lost weight (to my delight) and have gone down from 9,3 to 8,11. I was actually given a leaflet last week on eating sensibly to put on weight!
Good Luck tomorrow, I’ll be thinking of you as my chemo is pumped in.
Hugs
Helen
Morning all…
See the rain is back with us this morning…bring back the sun.
Hope you are all doing ok.
Start rads on monday for 5 weeks…waiting to be bbq…whole new experience!!!
Just cant wait to get it finished with…another knew chapter again.
Good luck to everybody getting chemo today…hope it goes ok.
Take care and big hugs
P
XXX
Hi girls - hope you’re all doing OK and coping.
Fiona - how are you coping with this chemo. Hope you don’t have such sickness as last time.
Lynda - have a great time at T in the Park and the sun shines for you.
Helen - good luck with injections - you’re a brave girl.
Pauline - How are you feeling about starting rads. - having to go every day is such a bind.
Are any of you getting away for a wee break over the summer.
Sharon and Yvonne - haven’t heard from you for a while - hope you’re both OK
Did anyone watch the TV program with Dawn Porter about Breast Cancer - was disappointed as all about her.
Hi Sheila…
Watched that documentary last night…was not impressed with it although was aimed at a mass audience and brought it more into the public attention which was good.
How are you doing now? Gran children keeping you on your toes?
Are you going away to your sisters again for a bit of pampering?
Everybody else hope you are all ok.
P
X
Hi all
Sorry not been on just been too busy with appointments and lying in bed every night trying to get hayfever to settle down, haven’t been too bad past couple years but this year it’s came back with avangence!! Doc gave me stuff but nothing is working. Also have been in contact with someone with swine flu so crossing fingers I don’t get anything.
This weather’s been great really enjoying seeing the sun so much.
Start Radiotherapy on Mon so Pauline might see you at the beastson. I’m in for frying at 11.10 everyday for 5 weeks.
Got medical tomorrow for ESA, still can’t believe we have to go through this crap, surely reports from hospital and docs are enough.
They say it to catch out people who are faking an illness but I can assure them I certainly aint faking anything or any of us.
Was going to watch the Dawn Porter thing but relalised I didn’t like anything that she has done before, knew it would all be about her so sounds like didn’t miss much.
Fiona and Helen hope you go on ok with Chemo.
I can’t stand needles but was really proud of myself for managing to give my self injections, was told could wait in all day for distict nurse.
Was told by DWP that I wouldn’t get help with mortgage then this morn received a form from them to fill out and send back, jusdt shows you sometimes people who tell you things don’t know what they are talking about.
Be glad when this is all over so I can get a holiday, mum and dad taking me away as I am skint.
Fringers crossed for tomorrow
Lots of love to all you lovely girls
Hugs
Sharon xxxxxx
Hi Girls
Hows everyone? Well, I’ve survived my second dose of CMF, started feeling a bit nauseous late afternoon, then realised I hadn’t taken any anti-sickness today – ooops, so probably my fault.
I actually thought the Draw Porter show was OK, even if it just makes others more aware of the crap we are having to go through and the long term worry and uncertainty that we now face. I have a good friend, who I rarely hear from since I was diagnosed, and when I do see her she comes out with comments that make me think she genuinely has no idea of what I’m going through at the moment.
Sharon – Good to hear from you – good luck next week with your rads. Really glad to hear that you were brave enough to give yourself injections – I’ve got the district nurse out tomorrow to show me how to do them – so fingers crossed I’ll be able to self inject as I’ll now be getting them with my final 3 chemo cycle. Have you been given any Tamiflu if you’re been in contact with swine flu? Good Luck with your medical tomorrow.
Fiona – How are you? How has the sickness been this chemo? Hope its not been as bad as last time.
Lynda – Are you all geared up for T in the Park. Hopefully the weather will stay good.
Pauline – How is your arm now? Good luck with the rads next week too. My rads seems like such a long way away, I’m not looking forward to having to come through to Glasgow daily during the winter months. Where’s your photo? I miss not seeing the fish stand lady.
Sheila – How are you? Have you been up to anything exciting this week? How is your granddaughter?
Annie – How are you? are you taking things easy?
Well, off to bed now although need to be up at 12:30 & 06:30 to take my folinic acid tablets.
Hugs
Helen
well im not allowed to go to T in the park 
GP wanted to check bloods before i went and im neutropeanic so been told to stay home away from muddy fields, portaloos, swine flu and dogey takeaways… oh well theres always next year… but this is the first time in 8 years i wont be there.
helen i dont get sky cos i owuld have watched the dawn porter show but have heard mixed reports… eg apparently she kept saying once it was in the nodes that meant it had spread but that it was good to raise awareness.
sharon nice to hear from you again, good luck with rads.
hope rest of you are ok.
Lulu x
Morning all…
Lulu,thats a shme about being banned from the park…but like you say there is always next year.Better safe than sorry.
Are you on the G-CSF injections now? They are great for boosting you up .
Helen,good luck with injections…you will get alot of support from your d/ns.Remember though you dont have to inject yourself…its not for everybody.Sure Fiona got the nurse in and worked round her schedule.
Was messing about with pictures and forgot to put fish lady back on…will it sorted!!!
Hows the family all keeping?
Sharon,will watch out for you but my appointments are at 09.20.Good luck with your medical today.There should be no need for this crap like you say but the system sucks!!!
Well thats me been on the tamoxifen and zoladex for a month now and at the moment have had SE to note…perhaps early days!!
Arm movement is improving which is good too.
Hope you all get some vit D today looking good outside.
Big hugs
P
XXXXX