Hi Guys
Sill in. Was hoping to get out tomorrow, but still a lot being drained, anout half a litre so far. Will be in till the drainage is 30ml. Better in than out and I’m quite comfortable, if bored!!!
So much to catch up on. Sharon, pet, I know just what you’re going through as I faced just that when I was dx in Jan - I was more worried about finance then the horrible thing thay was happening to me. Make an appt with Carol at Maggies. She will make sure you will get all you are Entitled to, make contact with banks, councils, utilities companies etc so you won’t have to deal with them and she’ll chase your DLA applicarion, which will be backdated to the date of your diagnosis. If you look at earlier posts, I was OUTRAGED that I and everyone in my position was subjected to absolute poverty at the worst time in their life. This is A political matter, requiring a political solution. I have already contacted the press. We need mass protest, not only cancer suffers but the genuinely ill. It’s my mission once I am up to it. But in the meantime, Carol will make sure that everything that can be done to ease your crisis will be done. This is a dark time for all of us, but I believe we can at least hightlight to the unsuspecting public what THEY can expect if they fall ill, as so many of them will!!!
Take heart Sharon, you have beaten this beast, think how strong you have had to be to do that. And there is help. Call Maggie’s 1st thing Monday, gather up all of your commitments, council tax, utilities, bank loans - anything that is leaving your Account and take them down to Carol. Call your MP’ or I will if you want when I get out and kick up blue, f**** murder that you were dx in oct 2008 and you are STILL waiting for DLA!!! And then tell him about ESA, because the cretins are knocked speechless when it’s Pointed out to them. Remind him that you are a VOTER, with a wide circle of VOTERS who are similarly disgusted. Demand an explanation in writing about the delay iin DLA, tell him you reserve the right to make this public, remind him he represents YOU and is accountable to YOU. He is bound to act on your behalf, and to keeP you abreast of the actions he takes, or plans to take on your behalf. They are all running scared just now, rightly so.
We will all have to have a long lunch and confab soon!!!
Fee, how are you? It’s so unfair that you are having such a bad time on FEC coupled with the worry of flu’. My FEC was a game of 2 halves. Fine, except for agonising consipation. Then I got the chest infection and was hit by everybloodything!!! The good news is that it is effective. Hope you are back to you wee self soon. Isn’t the fatigue hard to believe? Like … My teeth can wait till tomorrow! It does pass. The longest night
passes …
I will post when I get home. Just had to respond to our Sharon. Save yourself the cost and stress of calling dwp etc, just get all of your stuff together and see Carol. Thur is drop in day!! But make an appt and you can go though everything in details. Hugs and good luck, speak next week When I’m out.
Enjoy the rest of the weekend, take care of yourselves.
Annie xxxx