well thats me just back, yep from a 9.30 appt, patient transport forgot to come back for me, so making my own way in the rest of the week, hubby going to take me as he has now lost his job, the company went into liquidation, can this year get any worse!!!
oh the joys, apart from that rads was fine and spoke to breast cancer nurse today, she was really nice.
Maggie, hope you enjoyed your run in the car
Hope everyone else ok, think ill be in bed for 8.00 tonight, im knacked
love
Carol xx
Hi girls - lots to catch up on. My computer on the blink again, but hopefully should be ok now.
Weather has been amazing. Managed to get my tan back a wee bit.
Watched My New Breast - was a bit gory but film really informative.
Pauline - so pleased to hear everything has worked out on brain scan. You must be so relieved. Good your still enjoying the wine.
Maggie- I had Hickman line in - much better than using veins. I was always very aware of it as it hangs down a bit. Felt it could be pulled out easily, but not at all. Watch you don’t get infection in it. I did a few times but got antibiotics and cleared up ok.Bones do feel achy from injections and from chemo. Sore mouth and bad taste are horrible. I used to have a white wine spritzer with lots of ice. It is really refreshing
Carol - as you say - can it get worse. So sorry to hear about your husbands job.
Annie - so pleased you got your DLA, but it is dreadful we have to fight for it.
Helen - hope your not missing your wee boy too much. The wee boy next door started school and he just looks so grown up in his uniform
Fiona - are you counting down the Rads. Hope your not too tired with daily trips and then fighting for a car space.
Take care everyone,
Sheila
Hi Girls,
Hope everyone is doing fine? Gone a bit quiet here again… I think it’s the sun. It keeps us all busy and cheerie!!
Carol, Sorry to hear about Hubby’s job. This is certainally a year we’ll all be glad to see the back of… Things can only get better in 2010 surely… Good you’re in and out in Rads… I was only 20 mins yesterday which was Fab… fingers crossed for today… I’m pretty tired now, wish it was the weekend.
Sheila, good to hear you’ve been enjoying the sun… Hope the computer behaves itself from now on.
Right I’d better crawl upstairs for shower! or it’ll be me late for Rads today!! I’ve had 2 cups of coffee and still like a zombie!!
Love to All
Fiona xxxx
Hi everyone, rads was fine today again although I have a horrible metalic taste in my mouth, spoke to the nurse and she says that happens sometimes, lovely!!!
Fiona, you are getting there with yours, not many to go now
well sun is shining, think ill put some washing out!!
hope everyone else is good and enjoying this weather
lots of love
Carol xx
Hi Girls
I hope everyone is doing fine. I’m doing OK, although I think my chemo is beginning to catch up with me - as I’m totally exhausted this week, and all I want to do it eat chocolate!. But the end is in sight - 12 days time I get my last chemo - thank god!.
Fiona - how many more rad sessions have you got left? How have you found it? Are you really tired from it?
Carol - Sorry to hear about your husband loosing his job - what a crap year this has been. My Husbands work have just voted to go on strike because they havent had a pay rise for 2 years (he did vote not to strike), but how bloody stupid are they!
How is everyone else? What has everyone got lined up for the weekend? We’ve not got anything planned, just swimming lessons at the weekend; kids not me!.
Well, better head to bed, another late night; maybe thats why I’m so tired this week!
Take care
Helen xx
hi girls - up early today. Had 2 nieces staying, 14 and 7. Cara is up really early. We’re off to town centre to get boots for Caras birthday. That’s if I can get the 14year old up!! We watched strange dvd last night - Twilight - not my choice but Kirsten likes it.
Helen - you must be desperate for chemo to finish. Side effects just build up as time goes on. I too was desperate for chocolate, which I never usually eat. Try and rest as much as you can, which is not easy with a young family.
Carol and Fiona - you seem to be doing ok with Rads. It will be good to get a rest at weekend. Are you doing anything nice.
Fiona goes back to work next week, after 1 years maternity leave. She is looking forward to it, but I will really miss her. She is going to do 3 x 8 hour shifts . Gerry is a nurse also, so they’ll probably hardly see each other.
Have a great weekend
Love Sheila
Hello lovlies
Again a long long time since I checked in so, very much to catch up on.
Everyone seems to be coping really well with their treatment - let a a big WAY HEY for Pauline… WHAT a relef.
Maggie, hope you’re feeling better now. How have you found the jabs? On FEC, I only got pain once, and it was fleeting, but I am getting it this time. Not too bad, feels like I have done a good bit of digging in the garden.
I still can’t believe how far on in your treatments you seems to be. i feel stuck and this time, VERY ill. I have not been out of the house since last Thur. A & E on Wed as I had an impacted bowel - my worst nightmare. Tax hates me. They were going to admit me as my temp, b/p and infection levels were so high again. But, and this memory will be with me forever, we got it started. I am still throwing up and having very painful bowel movements.
My income ended on 13th Aug and I have been too ill to go down to Maggie’s to have it sorted, but should be much better by next week. I think they will take me off Tax as my s/e have been extreme. I do know that Mr Yusef was anxious to start me on Herceptrin as my cancer was so very aggresive so I have no idea what what is to come.
I am used to feeling tired but now I feel feeble and it’s getting to me. I am not answering my phone (too tired) the thought of food is making me spew so am having smoothies and lots of milk.
Sorry what a moaner. No one else on Tax seems to get this!
I still want more chemo as I think I must need it, but the oncs know what Tax is doing to me.
I cannot wait for this to be over and to be able to have a wee bit of craic!
Carol, I am truly sorry about your man’s job. is there anything in prospect at all? We have all had a pretty glum year, but this is something you just don’t need sweetheart.
Wish I could meet you all, hope to soon. We could set the world to rights eh … but in the meantime, stay strong and ignore this old maoning bison.
Love and lollipops,
Annie
Annie - so sorry you are having such a rotten time with Tax. I have had quite a lot of it over the last 3 years and it is awful. I had to take 3 or 4 Movocol powders and also lactolose every day for constipation, which was agony. Also all the other SE’s that go with it. But hey - it does work, so hang in there girl. It’s not for ever. Just do what you want - if you can’t be bothered speaking to people, don’t. Get as much rest as you can. If you feel up to it, I could meet you for a coffee when you’re at Hairmyres. I am only 5 minutes away. Keep brave
Love
Sheila
Hi Girlies,
Sorry Annie your having a crap time!! As Sheila says, Tax is a hard chemo and there can be an awful lot of side effects to deal with and because you’ve already had FEC and surgery your body won’t be as fit as it could be. Take it real easy and do what suits you… which includes having a bloody good moan, which you are intitled to!! Hope things get a bit easier for you as you go along…I’m still on Movicol 2 months down the line… things can take a while to get back to normal( what’s that by the way?)
Sheila, How did you get on with the nieces? Did you finally get to the shops?
Helen… nearly there!! not long to go till last chemo… you’ve done so well coping with chemo and kids… no wonder you’re feeling tired… you definately get 10 out of 10 for endurance!!
Carol, How you feeling going into week 2? I’ve got 4 boost left now and have moved to treatment room G for them… the boob is doing well and hasn’t dropped off yet!! skin a bit pink and nipple still tender… so it’s all hanging in there!! mind you I’ll be glad to ditch the cream but have to keep going with that for a couple of weeks yet…
Maggie, How you hanging in? Did you do something with Jack yesterday seeing as your pills were helping?
Sharon, How did the holiday go? Are you all chilled out? How’s the Rad burns? have they healed?
Pauline’s on holiday for the week…before she went she mentioned getting together for a wee night out in the next few weeks. Is anybody up for that? Give a shout if you are…
Well girls… off to get ready. appointments are earlier this week and parking spaces harder to get before 11am so I’ll need to stake one out!!!
Hope everyone is good
Love
Fiona xxxxx
Morning girls, miserable old day out there today…typical as Im off to the Maggie’s this afternoon for my “look good, feel better” day.
How are you all? Annie I hope things start to pick up for you…it all sounds like complete cr*p.
My stomach has been the worst thing, Im quite sure if I didn’t have this problem I would have sailed thru FEC. Ive been put on 400mg of Tramadol a day. but came off them yesterday as I was turning into a CRAZY woman. Not kidding…it was like drinking a bottle of gin for breakfast.
Fiona how are you? Hopefully we will be able to meet at the Maggie centre this Friday for the writing class.
How are the rest of you getting on…Sheila, Helen, Carol? Hope all is well (or as well as it can be)
Maggie
Oh lunch sounds good Fiona
Miserable day today. Had good day with nieces. Kirsten was up and out in 10 minutes and that includes putting on her “Amy Winehouse” eyes.
Maggie - sure you’ll have had a great day at Look Good Feel Better and come away with lots of goodies.
Fiona and Carol - another week of Rads. Hope all goes OK.
Helen - end in sight. You have done so well.
Annie - how have you been over weekend. I usually found 3rd week not too bad. Tiredness, nausea, sore mouth and tase all started to improve then .
Sharon - how was holiday. How depresing back to this horrible weather.
Love to meet up with you all again.
Sheila
day 7 of rads, so far so good apart from a sore and tender nipple!!! I am more tired than usual but I think its more the travelling in and out every day.
Hubby has got a job, he starts tomorrow which is great, but the company he worked for 26 years with are wanting him back too so he will take this job just now for a couple of weeks then go back to them when they get the ok to start him, one less worry, only problem is he will work away a lot, but you get used to it.
Fiona cant believe you are in the last week of rads, well done you, mines finnish the 9th October, wish it had been the 8th as thats my birthday!!!
Annie, you are having a rubbishy time, hope you are feeling better
Helen, not long now until you start rads, did you have any joy applying for the Macmillan grant for expenses because all I see to do just now is put petrol in the car, it soon adds up
Sheila, Pauline, Maggie, Sharon, Yvonne and anyone else, hope you are all ok
Love
Carol xxx
Hi Carol,
Ask the girls for gel for the nipple. I got some today, nice and soothing…I went to the last breast clinic seeing as I’m finished on Thursday… everything holding up good and doctor said it looks like I’ve gotten away with very minimal side effects… woo hooo.
I am completely knackered now… I’m sure it’s all the waiting and travelling backwards and forwards to hospital…I’ve still got physio on Friday and herceptin on Monday so From Tuesday I’ll get a break…It’ll be nice when it goes back to just every 3 weeks. I used to think that was a lot but now I don’t… but it did fly by really.
well off to make the tea… no rest for the wicked
Love to all
Fiona xxxx
Hi Girls
Well, thats me 11 chemos down and only 1 more to go next Tuesday - Yipee! I can’t believe just how quickly it seems to have flown by.
Fiona - I can’t believe you have almost finished your rads - you must be soooo relieved - you’ve had a really crap time with se’s but you have done great.
Carol - Its great news your hubby has got a new job - something less to worry about. I’ve not heard about the McM grant yet, but hopefully I’ll get something as 80miles a day for 6 weeks will cost a fortune in Petrol.
Annie - Sorry to hear you’re feeling so crap and having a hard time with SE’s. I hope you’re managing to get plenty of rest.
Maggie - how are you feeling? are you managing to get out for plenty of walks with Jack?
Sheila - I bet you’ll really miss Fiona when she goes back to work - will you be helping with childcare for your grandaughter? My little girl is now 16months and she’s such a ‘wee girl’ - loves her dolls, pushchair, bags and bangles - which is great after having two boys - although it makes me laugh when she wonders round with a power ranger gun in her hand!.
Pauline, Sharon, Yvonne and Lulu - hope you’re all fine.
Does anyone else get pissed off and want to shout at the TV, when the news reports that the risk of breast cancer could be reduced by changes in lifestyle? I feel like shouting 'how much bloody healther could I have been? healthy eater, non drinker, not over weight, breast feeding - ah! OK - thats my rant over!!!
Take care all.
Helen
Helen - can’t believe you have only 1 more chemo left. Well done girl. I read report in paper today about lifestyle and breast cancer. We all feel bad enough without being told it could be our own fault. I too eat well, never smoked, and have a good lifestyle.
Carol - congrats to hubby getting another job. One less thing to worry about.
Fiona - are you thinking about going back to work. Take it easy and don’t rush things. You have been through so much, be good to yourself for a wee while.
My daughter back at work today and had Jessica for some of the day. She is just a wee pet. Hope to help out when I can, but worry about starting back on chemo again. If I just get Xeloda, should be OK but if on Tax, that’s a different story.
Hi to everyone else
Sheila
Hi All
Just a quickie as I need to pick Seren up from nursery.
Just had my MacMillan Grant through to help with travelling expenses to the Beatson - I got £400! I’m really pleased as it’s going to cost a fortune in Petrol.
Hope everyone is doing OK. Feeling a wee bit rough after yesterday, but I’ve been busy gutting the house as I’ve got a viewer tonight - so much for taking it easy!
Hugs
Helen
Hi girls
See everyone is doing ok, even Carol’s hubby got job quickly.
my holiday was fab just what I needed, relaxed most of the time in our own space, villa was out of this world and big enough to get lost in, weather fab 35-39 most days. Wish I was still there, if it wasn’t for what I had to come back for I’d have stayed longer, ate in every night as dad and sis’s boyfriend did good barbies. Steaks were to die for, our cooking was alot cheaper than eating out anyway.
Anyway girls that was my good news, now some bad news!!!
don’t know how to put it so i’ll just come straight out with it!!!
Day before I went away I found out…
I have 2 new tumours in my other breast. Today I found out the details…
same as before Hormone - and Her2+.
They are not sure why this has happened again as i have been on Herceptin since Jan, I see oncologist next thurs then start Chemo again ASAP, will prob get mastectomy but will not be allowed Recon at same time as cancer has happened again so soon, I will need to be monitored very closely in future. If I got recon they wouldn’t be able to detect anything until it was too late.
My life comes first I suppose. Will prob be on Herceptin a long time
So “lets start from the very begining” and there was me thinking about going back to work 
Still telling friends and family.
I watched the breast programme on catch up, really thought it was good.
Ever get the DEJAVU feeling anyone???
Sorry folks, My head was all over the place but now I know what’s going on I feel better.
Hugs Sharon xx
omg Sharon, cant believe it, that is so bloody scary, you were doing so well
dont know what to say
take care honey
loads of love
Carol xxx
Sharon = I am shattered at your news. How you managed to get through your holiday knowing this. I just don’t know what to say. My heart goes out to you.
Take car honey,
lots of love
Sheila
Evening!!
Wee Request?..Have been chatting to Sharon via text. Lunch next week? Is anyone free and would like to meet up? Tues, Wed or Fri? I have Herceptin on Monday and Sharon has Hospital on Thursday…would be so nice to meet up…
Hugs
Fiona xxxx