Hi Helen,
Not sure what the floor number is but it’s upstairs from Radiotherapy…(there’s a main reception, they will point you in the direction of area 2)
do you go in on the same floor as radiotherapy? or do you go in and then go down to radiotherapy?.. there’s two entrances you see… very confusing!!!
Fiona xxx
Hi Fiona
I go in at the main reception level and take the lift down to rads, although I haven’t quite worked out the lifts and what 0 I need to press. I keep getting down to floor 0, but the wrong side of the lift opens and I have to go back to level 1 and start again!!
See you tomorrow
Helen
Helen…was sorry to have missed you today…my chemo has been cancelled coz of infection…but Fiona was so good and made me realise that another week…I will be as fit as a fiddle…I think we would all have had a laugh if we could have had the time to sit and have a coffee…maybe next time .xxxxx
Hi Maggie
Sorry I missed you today, but my rads were delayed by an hour so i needed to head off as soon as it had finished, maybe we can meet up next time you are at the Beatson.
Take care all
Helen
Hi girls
Met with surgeon today he said margins are all clear, he didn’t see anything he didn’t expect, the tumor was only 5.5cm which he was really surprised at (so was I) he said that all the tissue was affected and 2 lymph nodes were effected but all removed.
He is very happy the way things are going at moment, if he is happy so am I, onto oncologist now to see what happens next, surgeon said it’s capsitabine(sorry if not spelled correctly) and herceptin until they can get the Lapatinib.
Onwards and upwards
hugs to all
xxxxxxx
Hi girls - just been having rotten time. Went into hospital as an emergency last Tuesday, DAY OF MY 60TH,I had a lot of fluid in abdomen, lungs etc so they had to drain it off. Was in till Friday evening - they got over 6 litres out. Just felt so ill. Missed my family night out on birthday but was determined to go to my night out on Saturday. Felt really awful but went for a short time.
Everyne so sorry I couldn’t stay. Slept most of Sunday then chemo on Monday. Feel as though i’m really low and they just pump me with this horrible stuff. Tired and sore from Neulasta and everything else that comes with Taxotere. Haven’t been through all posts yet but will catch up soon.
Hope you’re all doing OK
Love
Sheila
Sharon, so pleased for you at your results, you have an amazing attitude to this bugger.
hope everyone else is good too
love n hugs
Carol xxxxx
Sheila, so sorry to hear you are having such a rubbish time, you will just need to have another 60th birthday later in the year, you so deserve it
take care
love
Carol xxxxxxx
Hi Sheila…
Thinking of you.Sorry to hear you had a hospital admission on your birthday.
Big hugs
P
XOXOX
Ocht…Sheila, what a shame you missed your birthday celebrations…keep in mind 61 is the new 41…which means you are younger than me. I’ll be just finishing all this in time for my 50th in February.
hugs and hope you are feeling better
Maggie
xxx
Oh Sheila,
So sorry to hear what happened to you…That is just rubbish!!!..And Taxotere as well!! I really feel for you…
Sending all my love and best wishes and hope that things get better for you soon and that you don’t have too much trouble with Tax…
Big Hugs
Fiona xxxxxxx
Sharon,
Good to hear all went well with surgeon…it’s good he’s pleased. Hope you are doing well and Keep us posted how it goes with the onc.
Hugs
Fiona xxxx
Oh Sheila
So sorry to hear your not too good at mo, you’ll get there
Thinking of you
lots love and hugs
Sharon xxx
Hi Guys,
My, but the forum’s a wee bit quiet!
Oh Shiela, what a time you are having pet, like everyone says, you’ll have a great party when you are a bit better. how’s the Tax treating you? I’m getting my 4th - and last - on Tuesday and it has not been kind to me, bit of an extreme reaction on my part but you get through it. Might see you up at Hairmyres?
Sharon - you are an inspiration. You will be feeling so relieved to know that the bloody tumours are being chopped up on a disection table and no danger to you! Do you know when you start rads? I go for my simulation on 2nd Nov and they start on 17th Nov to 4th Jan,so I will be a well done specimen. When do you go for Herceptrin?
Might see you too at Hairmyres/
I have so many hosp appts now they are double booked!
And another wee gift of Tax - I have to get banding done on my brand spanking (and big) new piles, courtesy of my impacted colon. I am getting a lot of pain, and stomache spasms since. Just what I need. Will be getting the op quite soon, next couple of weeks and am waiting for op day at Golden Jubilee hospital. My onc Consultant says as long as it’s not my nadir week, she would recommend it as I am in such discomfort.
Working Tax Credit have just written to me to investigate my claim for this year! It’s a misunderstanding, they asked me when I became too ill to work (12th Jan) - I called them to query something - and they interpreted that as employment ending. Suggesting that I have not been entitled to anything for this year and will have to repay it all! Just got it this morning so it’s going to be a worrysome weekend - and it’s my birthday tomorrow. Was going to go out for a couple of hours but feel a bit down now!
I will be so very glad to see the back of 2009, like so many of us.
I wish I felt strong enough to work, but I can’t even go to the local shop just now! God knows when my life will be even vaguely normal, apart form all of the obvious things that cancer has done to us from the hair on our head to the soles of ouur feet and tips of our fingers and my bloody digestive tract. Can anyone suggest anything for the weakness?
Boy oh boy, what a moan. My luck this year has just stunk, but it will all work out. They say a woman is like a teabag, you don’t know how strong she is till she is dunked in hot water!! We have all learned a whole lot about ourselves throughout this experience, I’ll warrent!
Hoping you all have a fun and restful weekend and are lookinng to seeing John and Edward slaughter another routine this evening. I laughed myself sick last Sat!
Hugs
Annie
Oh Annie…what a shame you are having such a lousy time. All that and stomach spasms and piles (Ive had the same thing in the past…it will be worth it to get rid of the wee barstewards)…I have no idea how to help with the tiredness, as that seems to be one of ‘my’ worst symptoms…just go with the flow doll. Ive also had real problems trying to get information on what Im entitled too (money wise) …and at last there is a lady from Ayrshire Cancer Care coming to my house on Thursday to see if I can get any help…judging by what you are having to go through…Im not going to hold my breath.
When I met you at the Maggie’s you are such a strong person…you really helped me when I was feeling overwhelmed…I wish I could help you in the same way…but…the only thing I can say is…you’ll get through it and you will be even stronger in the end…Im sending you a great big cuddle and kisses…keep posting and let us know how it’s going…OH and HAPPY BIRTHDAY xxxxxxxxxxxx
Hi Annie, sorry to hear you are having such a crappy time, hope you have a great birthday tomorrow, you so derserve it
Ive been a bit down this week as one of the girls I met at hospital passed away, she was only 39 and had 2 wee boys, still cant get my head round it.
Roll on my holiday!!!
hope everyone else good
love
Carol xx
Hi Annie,
Sorry to hear things are rough for you at the moment…Everything is just rubbish isn’t it… I do hope you manage to enjoy your birthday tomorrow… Breast cancer is the gift that just keeps giving isn’t it!!! your poor wee bahookie!! I sympathize!! Had a few myself… Big hugs sent to you, with a nice big dollop of anusol!!!
Carol, sorry to hear you’re a bit down, Big Hug to you too…
Just settling down to X factor… those bloody twins better go tonight!!
Love and Hugs
Fiona xxxx
Happy Birhday Annie xoxoxox
Hi Girls
Annie – Happy Birthday, it was my eldest’s 8th birthday on Friday and we had his party today – so I had to have a huge glass of wine when we got home to recover! Sorry to hear you’ve been having such a hard time, you poor thing and I can sympathise with the pain of piles too - I had the indignity of having to show my torn one to the poor doctor!! – I was totally mortified! Just take it easy you’ll get there.
Sheila – What a crappy time you’ve had too! I’m really sorry that you missed your birthday celebrations, you’ll definitely have to have ‘another birthday’ as soon as you’re feeling better, may aim for 60 & 60 days!.
Carol – So sorry to hear about your friend, this bloody BC is so cruel and when something like this happens I think it brings it home how venerable we are .
Sharon – I’m so pleased that your margins were all clear, you’re doing just great.
Fiona – It was great seeing you this week and catching up even if was only for a short time. Take it easy this week at work.
Maggie – Have you applied for a MacMillan grant? I had £400 to help with the cost of travelling to get rads. Are you at the Beatson this week for your chemo?
Pauline – How are you? When are you back at work.
Yvonne – Are you almost at the end of your chemo? When are you starting your rads, I’m sure you’ve said but my chemo brain strikes again, so have no idea.
I start my 3rd week of rads tomorrow, my skin seems to be holding out for the time being. I woke a few times on Friday night for my red wine induced coma and under my arm was agony which I thought was
from the rads, it wasn’t till I eventually got up that I discovered I had one of the kids big stickers from the dentist stuck firmly under my arm! – no idea how it got there, but boy was it agony to remove – I’m sure it didn’t do my skin any good as it felt worse than waxing!! I started Tamoxifan on Tuesday, so far so good expect I seem to have a really weird taste in my mouth – I think I’ve had a couple of hot flushes – but nothing too bad.
Take care everyone
Helen
Helen, is it a kind of metalacy taste in your mouth, I had that when I was having rads, still not totally away, you are getting there with them.
I popped into work today and my manager is very keen to get me back, he says im looking great!!! pity he doesnt really know how im feeling, not even thinking about it until after christmas.
Fiona how are you coping being back at work, is it better or worse than you thought?
Annie, Sheila, hope you have a better week this week
Sharon, whats next for yourself?
everyone else, here is to a good week
love
Carol xoxox