Anyone from East Kilbride/Glasgow area?

So good to be able to catch up with everyone again.
Annie - hope you enjoyed birthday. Hang in there - it’s really hard. Know what you mean about Taxo piles. Mine have come back this week and agony. Forgot how grotty SE’s are - think I’ve had everything this last week. Feeling slightly better today, so hopefully things will get better.
Helen - you’re doing well with Rads. is travelling not too tiring.
Fiona - are you coping with work OK. Take it easy - you’ve been through so much.
Carol - you must be so looking forward to holiday.
Maggie - how was your weekend.

Haven’t had one drink yet to celebrate my birthday. Next week should be good week, so hopefully I’ll get wee champagne. Bottle in fridge , chilling.

Take care everyone
Sheila

Hello Girlies!!

Hope you are all doing well? What’s this weather like???!! not good for wigs that’s for sure!!

Sheila, good to hear from you…hope the side effects don’t get you too bad!! Sounds lovely a nice chilled bottle of bubbly in the fridge.

Helen, I can’t believe this is your third week of Rads…how are you finding it? can’t be as hard as trying to beat my bejewelled score surely??? Ha Ha!!! only joking…liked the bit about the dentist sticker…had a good chuckle about that one!!!

Carol, bet you’re looking forward to your holiday with weather like this!!! It’s good you’re not going back to work till after Xmas… I wouldn’t if I had the choice… I like my work but I’m finding motivation has abandoned me this week… which you need when self employed… No work… no wages!!! This is when I wish I was employed, with a nice understanding boss, who could cut me some slack till I got on my feet! Anyway on a lighter note I’m training with Sharon in The wig shop starting Mondays and I’m looking forward to it… That’ll take me up to after Xmas and we’ll take it from there…

Sharon, how are things with you? have you any dates to start treatment yet?

Annie, Mags, Yvonne(where are you woman!!!), Joanne… Big Hugs!!

Take Care for now

Fiona xxxx

Hi Girls

What is happening with this weather, it was just horrible today. Definitely not the best of conditions to drive through to the Beatson in, but thinking positively - 10 rads down only another 20 to go!!!

Weel, just a quick post as I’m in the process of cooking Dinner.

Fiona - thats just great training with Sharon on Wigs - I’m, sure you’ll be a huge inspiration to everyone wanting a wig. At least its getting you away from bejewelled - I’m sure you must of found a cheat - lol!

Carol - It hadn’t even occurred to me that it could be the rads causing my mouth to taste funny - I just put it down to tamoxifan.

Sheila and Annie - I hope you are both feeling a wee bit brighter.

Sharon - How are you coping? have you got a treatment plan in place yet?

Maggie - let me know when you’re at the beatson next, and we can try to meet up.

Pauline - I hope you’re keeping well are you having something exciting for tea ?

Everyone else take care.

Helen

Hello all…number 4 chemo tomorrow…and feeling Cr*P tonight…is anyone in the Beatson tomorrow (Wednesday)?

Sorry…should catch up with everyone…and I promise I will…just a bit lousy. hugs to you all xxxxxxxxxxx

Morning all,

Just on to have a bit of a something! I have to go to work in a mo and not feeling awfully good! I have to get it off my chest or I’m not going to be able to function at all today …

I found out by accident last night that a client who is a dear friend, her niece passed away last week from breast cancer who was the same age as me with a 9year old son… she was diagnosed with secondries in Jan after 5 years of initial diagnosis…she’s Her2+ also which makes it worse…She doesn’t know I have found out and sent me a text yesterday to cancel her appointment saying she had a cold…obviously she can’t face me right now which is totaly understandable… needless to say I haven’t slept much and can’t get her out my mind…I can’t believe how much this is upsetting me … this whole breast cancer thing is just so rubbish sometimes! it never really goes away does it?

Sorry to unload like this, didn’t know what else to do… have to go and pull myself together now…

Love
Fiona xxx

just sending you a hug Fiona, one of the girls I met in hospital also died last week she was 39 with two little boys and that totally upset me all week and I was on a total downer as its so bloody unfair, her boys were 3 and 8.

life is so precious, when I go out now I notice things like trees, sunsets and stuff that I really never took much notice off, bc totally changes your persona.

take care

love

Carol xx

Maggie good luck with your next chemo, your getting there x

Hi Fiona

Sending you a huge hug too. Hearing such awful news really hits you hard, I know reading your post fulls me with fear for what the future holds. I think the scary thing is none of us know whats happening inside, which makes BC so bloody cruel.

Maggie - I was at the Beatson today, sorry I missed you.

Take care everyone

Lots of Hugs

Helen

Fiona…you are right…the whole thing stinks. It’s awful when you hear of people dying from it, and so bloody frightening. Please God we all get through this and we can just get on. I too have started to appreciate the little things in life, Ive always been close to nature and love being alone in the wilderness and down the beach, but these days I seem to observe more than usual. A friend from the next village said exactly the same thing…she has been clear for 6 years…but she says she still is more in tune with nature than she ever was before…funny that ??

Helen…were you in the waiting room when I came back for my driver…I saw a girl with a scarf smiling at me…I was in a flap cos I had taken longer than expected…poor driver waited for 3 hours for me.

PS Helen…Im waiting for you to confirm me as a friend in Facebook xx

Fiona - so sorry to hear about your friend’s niece. When you hear news like that it really hits home what a serious disease this is. As everyone has been saying, make the most of each day and so often it’s just the simple things that brings a smile to our faces.
Maggie - hope chemo ok - have se’s started yet. I usually get couple of days before it hits.

What about everyone else - Yvonne, Pauline, Annie - are you OK

Still feeling bit crap - had to go to bed this afternoon. Bit better now. Just get so fed up at times, but know must keep going.

Love
Sheila

Hi Guys

Fiona and Carol, I know what you mean about hearing about girls who have succcumbed to this horribe disease. It just brings it home what a scary thing is happening to us all. We are all positive and strong - all of us - and those girls I’m sure, were too. I also feel a bit guilty because i was caught early with a big tumour that was less than a year old, or I would have been dying now or soon as it would have met. So it’s that easy to get caught too late. It has made me terrified for my 5 nieces. One, Sinead, has just turned 13 (Sep 25th) and her maternal aunt (dx when she was breastfeeding at he age of 38) had a radical mastectomey in 2006, at the same time as my brother died. Wee Naydi is convinced that she will get bc. What can you say? Just pray that they will never be afflicted by this or any other cancer. Their girls’ poor kids! It is hard to come to terms with losing a parent at any age. My mum became deadly ill when I was 14 and never fully recovered, so we are always moved by childrens’ grief.

You might have heard recently about the mother and daughter who died in a housefire in Blantyre a couple of weeks ago? We lost a family member to a housefire in 1986 and it all came crashing back. My cousin, who was rescued wearing only her goonie, was inconsulable. they were newlyweds and had just moved into their new house. Within 2 weeks, she had lost everything a few days after her 21st birthday. I shrink when I hear a fire brigade to this day. Nd hearin about a tragedy on your doorstep … throws it into sharp focus like it happened last week.

These things never leave you, and we will just have to come to terms with the fact that we are, or are going to be, bc survivors. It will be an integral part of us for the rest of our lives and is as scary as it is inevitable. But look what we have went through, what we have conquered. BC not for sissies that’s for certain sure!

I am feeling so very much better! Still can’t go the the loo, but have cut down on the laxatives (3 types) as they were causing the pain with terrible trapped wing. I threw up in Morrison’s yesterday because of the pain - just made it to the loo!! So now I am taking the minimum, am ingesting very little anyway. Just praying I don’t have to go back to A&E with a raging temp and an impacted colon again! So sore, so HUMILIATING! It was the worst thing I have ever gone through.

I had very early chemo yesterday and had my dex and fruit tea ready for after my shower but my lift arrived and left without taking them. So they gave me 20mg intravenously and what a massive boost - I felt like I was on speed!!! I washed windows in my living room, trourghly hoovered, washed the kitchen floor, stove and hob - things I could only dream of a couple of days ago! Took my 16 mg today and feel full of beans. Finishing steroids tomorrow so I will probaly crash with a massive bang, but feeling good - and capable - and AWAKE!!!for 2 whole days has been such a gift!!!

Waiting now for my appointment for the banding procedure, which sounds both gross and embaressing. Let’s hope that they give great sedation, the more the merrier. I can hardly sit just now so hope painkillers will also be at hand!! This has been the worst, this and the weakness/sleepiness. So not me!

Shiela, how are you feeling now sweetheart? Is is grim, the old Tax, very few things have laid me low, but it did. It was Sharon’s bravery which persuaded me to continue as I was ready to beg for another chemo after 2. But research proved that Tax + herceptrin gives me the best chance, but it was Sharon who inspired me. Thanx Sharon, what a girl!

Maggie, how are you feeling after FEC? Are you getting many s/e, apart from the unavoidabe weariness and stomach pains? You are almost there. One more hurdle done! Oh, TIP. I suffered awfully after every chemo with bleeding ulcers and thrush (even with FEC) Last Tax and this I one sucked 2 ice lollies each time, wee fruit ones, while getting the infusion and got 2 tiny ulcers which disappeared overnight!! Worth trying and not at all unpleasant. Hopefully I’ll get off this time too. It seems to work on the same principle as cold cap. Got some in the freezer now too, but havent needed them yet.

Hope you are all well and in good spirits, you are the best, believe me.

God bless, sleep well

Annie xxx

Morning all,

Feeling a lot better today!! in fact…woke up fighting!! There is a thread about Lapatanib and the fact that NICE(nasty!!) have ruled it out as treatment on the NHS… well!! I’m pissed off basically!! People are going to need that treatment and I know Sharon is probably one of them… and possibly me and Annie if Herceptin doesn’t do the trick!!! One of the women want to try and drum up support to bring it into the media attention… If things like this are going to rely on a secondary breast cancer patient to sue their primary care trust then it’ll be a long way off!!I know Scotland is different but if Sharon can’t get it up here then we have the same fight!! Could all you girls pop onto that thread and give your support… please!!!

If we can get the same support for this as what the Katie Price fiasco drummed up then that’ll be great…

Karen who died didn’t receive herceptin first time round as it wasn’t available… but now it is and it just shows how things progress and that receiving herceptin early on really does work… Lapatanib isn’t available and you can see a pattern forming!!

I haven’t a clue how best to drum up support, so if anyone has a spare journalist lying around… give em a dunt!!!

lots of love to you all

Fiona xxxxx

Hello,

Here’s a link to a downing street petition… If they get more than 500 signatures they have to take it seriously!! Copy it and send it to all your friends…

petitions.number10.gov.uk/cancer-pct-funds/

Hugs

Fiona xxxx

Ive signed it, quick and easy and forwarded the link to my friends, even the one in Lanzarote!!!

cant believe only 48 people have signed it so far

hope you are all ok

love

Carol xx

Well done Fiona for sending us this link - have just sent it and will forward it on.

Maggie - I was in TR I for rads on Wed, but was in the main entrance at lunch time having soup with my chemo nurse.

Take care all

Helen

Hi Guys,

Crashed, as predicted, after the dex. Getting my planning session for rads on Monday.

Signed the petition, but it is generic - all cancer treatments to be available to all … perhaps we should start a specific thread? Ladies died waiting for Herceptrin …

Well done Fiona. Best of luck on the Irish jig front. I am sure you would be such an asset.

Maggie and Shiela, how are you guys? CHEMO SUCKS BIG TIME!!! There! Silly, childish and a wee tantrum, but soooooo f*&^%(g true. Yes?

Hugs and cuds

Annie xxx

just like to wish all the girlies Happy Halloween xxxx

love n hugs

Carol xx

Happy Halloween Girls!!

Been a busy old night at my door tonight!! I’ve ran out of stuff!!

My eldest is 16 tomorrow and is off to the cathouse dressed as a rock clown!! After going to the mighty boosh book signing!!

Well we glass of red for me tonight!! And of course X Factor.

Hope you are all well, don’t let the ghoulies bite!!

Love to you all

Fiona xxx

Hi All

Just back from trick ‘n’ treating, so settling in with a glass of wine ready for the xfactor.

Annie - what times your appointment on Monday? I think my rads is at 11:40.

Take care everyone

Helen

Hello lovely ladies…hope your weekend is going fine. I had a lovely day yesterday, I went to Girvan (that’s where I was brought up) took the dog along the beach and had an ice cream while looking out too Ailsa Craig…then went to visit my parents grave (I know that sounds a bit depressing…it was ok…glad I did it). Then drove to Dunure and watched the sun setting…all in all it was a great day…completely shattered today though…how are you all doing??? hope you are taking it easy…many girlie hugs xxxxxxxxxxxxxxxxxxxx

Hi Annie, you day sounds wonderful yesterday.

Well im in shock today, one of my neighbours 39, 2 kids 2 & 6 was ill with leukemia, she was in the beatson undergoing treatment and I bumped into her hubby yesterday and asked how she was doing, she died on Wednesday night from a blood clot in her brain, as he knew I had cancer, it was horrible, my hubby was with me and he started crying!!, it was awful, I never slept a wink last night.

life is so precious, I cant even face going to her funeral, the poor wee kids.

love and hugs

Carol xx