Hi girls - this is my 3rd week so starting to feel bit better. The weather is just awful - wouldn’t dare go out with my wig, wearing scarf instead. One of my birthday presents was a day of pampering for 2 at the Spa in the Crutherland Hotel, EK. Fiona and I are going on Friday and really looking forward to it. There is the usual about not getting a masssage if you have cancer.
Euan got home on Saturday. He is very weak and tired and has to be very careful not to go near people with bugs. I still haven’t got rid of my cold so not been to see him yet, which is just awful.
He has to stay off his work till February.
Carol - so glad you enjoyed your hols. So jealous as I’m sure you’ll have nice tan and I look like a bottle of milk.
Helen - good luck on your move. That will be hard work so take it easy and let others do it.
Fiona - christmas lunch should be ok for me on 12th.
Annie. Sharon, Yvonne, Pauline, Maggie and anyone else - hope you’re all ok.
Love
Sheila
Hi just quick note can’t do sat 12th any other ok.Sheila sorry to hear all your troubles glad there is some good news.
Hi to everyone else got cold off to bed
Yvonne
Hi Girls
My goodness, but you are all quiet!
That’s 5 zapping down, 25 to go. Getting a bit tigt and tender underneath the arm, but otherwise ok. But the waiting!!! Got Herceptrin tomorrow mornig at Hairmyres and rads in the afternoon, so will be whacked by teatime, I expect.
I will only manage lunch if it’s a Saturday because of the rads, I am never finished before 2.45pm (appt time is 1.30) Is that of for everyone.
Hope you are feeling a bit better Shiela, and that you can seee Euan soon. You must be just about demented, but both of you are so vulnerable now.
How are you Maggie? Getting towards the end of chemo soon, thankfully. You can bounce back really quickly once you finish. I was so much better within a couple of weeks after FEC.
I picked up a wee cold and had a wee coughing fit getting rads. They said not to worry because I didn’t move my arms. Still scarily tired, seems to have lasted forever. Didn’t leave the house yesterday. Will pop out for a paper later and a wee walk. I went to a housewarming party on Friday night and it took so much out of me! Great to be out celebrating though, just need to know my limits.
Hope you are all well and getting back to normality and I really hope we can all meet to before the year is out.
God bless.
Annie x
hi everyone a meet up would be great, but cant manage 12th or 19th due to other xmas meet ups with friends and works day out.
Im off to the Maggies centre tomorrow for lgfb day, looking forward to it.
I was a bit upset yesterday, I lost a friend to cancer 4 years ago, met his mum yesterday, she asked me how I was and I said good, all treatment finninshed and her reply was yeh some people are more fortunate than others with cancer!!! was I supposed to apologize for still being here!!! I appreciate shes still hurting but she really hurt me
love to you all, hope the house move went ok Helen
Love
Carolx
Hi Gang,
Hope you all had a nice weekend?
Carol… hope you have a good time at LGFB today…I really enjoyed it…you get a lovely bag of goodies and the girls are great at make up tips.
Doesn’t look like we’re going to suit everyone re Xmas lunch… At the moment it looks like Maggie, Sheila, Annie, Pauline and myself for the 12th Haven’t heard from Sharon, Helen or Lesley… will send a wee text…
Doing all my Xmas shopping online this year!! Have tried doing the shopping centres a couple of times and just find it too much!! it’s the walking!!
I had good news about my heart on Friday, the cardiologist says there’s been no damage to the heart even though my LVF level dropped and it is showing signs of recovering on it’s own. So all being well I should get back on herceptin soon…
Look forward to seeing whoever can make it along for lunch on the 12th…
Hugs and best wishes
Fiona xxxxx
Hi girls
Haven’t been on as I have been so busy, one my neighbours got diagnosed so past couple weeks I’ve been helping her come to terms with it, she got a lumpectomy at monklands on Frid so just waiting now to find out what next.
Got Herceptin yest then started Rads in the afternoon, needles to say Rads where delayed, my appointment for Frid was 4pm I got out at 5.40pm didn’t get home till 6.45, yest my appointment was for 3.50 did’t get taken till 4.40. Lets see what happens today.
Carol - great you all had a good holiday, sorry about your friends mum treating you like that. How did you enjoy the makeup??
Sheila - good to hear your son is out and home, hope you can get to see him now. How was the Spa???
Fiona - Whayhay about your heart!!!
sorry but I’ve got hairdressers 12th and then night out.
Also girls night out on the 19th. My works do is the 18th but I’ll not be going.
I’m also getting really fed up at the moment
Hope everyone else is good
Big hugs
Sharon
Hi Peeps,
Not the news I was expecting from the hospital today, I am not allowed to get any more herceptin… The protocol of the trial states that once a LVF level drops below 45% the patient will not be given anymore herceptin, even if the heart shows signs of recovery…Mine dropped to 42% so that’s me!!..I was so happy getting good news in Cardiology on Friday, then to be hit with this today!!.. My oncologist says I have had extra compared to the patients on the other arm of the trial, which should be enough… so it’s hold your breath and cross all fingers and toes from now on…!! not too sure how I feel…Bit wobbly I suppose…
Sharon, sorry to hear about your neighbour, no wonder you’re a bit fed up at the mo… is that the neighbour who did stuff for you while you were in hospital? It’s all you hear of at the moment!! breast cancer seems to be a bit of an epidemic just now… Sorry you won’t be able to make lunch either…it’s a busy time all round I think…Hope you enjoy your nights out…x
Carol, how did you get on at LGFB? did you enjoy it?
Well back to work…
Big Hugs
Fiona xxxx
Hi Fiona, Just read your post on the thread and sorry to hear that your Herceptin has come to a stop. Is there any other treatment that they are going to give you instead? It is such a shock when something out of the blue happens when you least expect it. Take care, love Val X
hi everyone, nice to hear from you again Sharon, sorry to hear you are fed up, you have been through so much this year, just think not long until you are an aunty.
Fiona, thats so bad what the hospitals doing to you, can you not appeal their decision?
LGFB was really good yesterday, cant believe the amount of stuff you get
hope everyone good
Carol xx
Fiona sorry to hear thats the end of your herceptin but hopefully what you have had has been enough to stop any wee lurker cells.
it is a bit scary when you get changes in your treatment plan… hope all goes well honey.
Lxx
Hi Guys
Fiona, I was talking to the specialist breast nurse at the Beatson last week about Herceptrin, how they know if 18 sessions is enough etc (some of the ladies at Haimyres have been on it for years). Some countries only give 3 sessions. She told me that they are doing clinical trials at the Beatson as that might be enough to do the trick! Apparently the 18 protocol is based on results done on mice, they just times it to gross for humans. Having said that, I would be devastated if I didn’t get it as my tumour was fed by HER2 (I am er/or negative) Don’t know if that’s any consolation. I would appeal it, especially if your heart recovered naturally!! Keeping fingers crossed for you Fiona. You so do not need this.
I had my 7th rads today and waited, wait for it, 2 and a half hours! The computers were down in the mornig and the spent the whole day catching up. The waiting is horrendous and the whole day is wasted. Yesterday was ok, I was seen at 2 and my appointment time was 1.30, but the other lady she shares the car was very late in being seen so stll didnt get home till 5pm. I spend the morning trying to get as much done as I can. Still, by Jan it will just be Herceptrin every 3 weeks, so the end is in sight.
Carol, so glad you enjoyed the LGFG day. i too was stunned by the amount of stuff we got and am still using everything. I gave loads of it to my sister too. It was a great day, such fun. Wish we could go again! Incidentally, that was the most tactless remark made to you even though I am sure she would have been mortified if she knew she upset you. I think I have a bit of ‘survivors guilt’ because I ave now met some people who are terminal; ne lady has cervical cancer (didnt respond to chemo)and is her husband’s carer. He has prostate cancer and too, is terminal. What can you say? She is getting Marie Curie nurses at night.
Hope you are feeling a bit better Shiela. Maggie how are you coping with FEC? Not long to go, and I can reiterate what everyone say, Rads is a walk in the park in comparison. Just take an engrossing book!
I met Sharon up at Hairmyres for Herceptrin and she looked a million dollers, the picture of health and her hair looked great. Gives us hope now that I have cut off the rest of the chemo hair that Tax left me! Baldie again fro the 2nd time this year!
It is always a problem for all is us to get together - I have never managed it due to treatment. I have had to miss 4 lunches/ get togethers/ booze ups because of the times of my rads. What are they like about changing you times? If I could get morning appointments I could have the afternoons free.
I have done all my christmas shopping on line! Got some real bargains too. All this bloody free time, could do some deep searches.
No way could I go round the shops. Getting round ASDA is a task and a half.
Off for a bath then bed, need to do my big shop tomorrow morn I have 2 Ryvitas and an inch of milk - having visitors in the evening. hope they don’t beat me home.
Sleep well and take care.
Annie xx
Hello ladies, sorry Ive not been around much, sometimes find it a bit difficult to keep up, I don’t think Im firing on all cylinders, yes Annie…Ive only one more blast to get, next Wednesday and then start my Rads in January…19 all in. Finding these last few weeks tough, not so much the chemo, more my state of mind. Anyways…it’s 6.47am and Ive not slept all night…gonna try and get a couple of hours before the nurse comes to clean my hickman line.
Take good care love to you all, hope to meet a few of you on the 12th
Maggie xxxxxxxhugsxxxxxxxxx
Hi girls, sorry not been on for while, problems with computer. Using Fionas. Trying to do some online shopping. Have no energy for shopping. Got chemo on Monday so starting to feel bit rubbish. Not sleeping because of steroids but hope to get wee nap this afternoon.
Maggie - you must be pleased chemo nearly over. Hopefully you’ll feel bit better and be able to enjoy Christmas.
Fiona - sorry to hear about your disappointment with Herceptin.
Sharon - how are doing. What a shame about your neighbour but you will be a massive support for her.
Helen - how’s the new house.
Euan home now and went to see him Sunday. Still had bit of cold but was careful. He’s doing OK but will take time.
Too tired to think anymore
Love to everyone
Sheila
gosh we are all quiet just now, hope you are all ok and looking forward to Christmas
I went to see Thriller at SECC on Saturday night, I was well and truly knacked, couldnt stand for much of it, it was good for what I did see, think my dancing days are over!!!
love
Carol xx
Everything really quiet these days.
Once again, I have some bad news -yesterday my lovely Dad passed away very suddenly. He had been taken to A & E with extreme back pain and sickness. While getting CT scan, he passed away. He had an anurism in major artery from heart, and it would have been instant. He wouldn’t have known anything. He was 86 but very fit and active and since Mum died, did everything for himself.
It is just such a shock.
I just think I can’t take anymore of this.
Funeral on Saturday. My sister is 18 years younger than me, so am leaving her and husband to arrange everything.
Will be in touch soon girls
Love
Sheila
Sheila, so so sorry to hear about your dad, this is all you needed, I am sending you a big hug x
love
Carol xoxox
Sheila, Im so sorry to hear you news.
Angela
Hi Sheila…
Sorry to hear your news.Thinking of you at this time.
Hang on in there.
Pauline
XXXXX
Hi Sheila,
So sorry to hear your news, such a heavy loss for you to bear at this time. Thinking of you.
Fiona xxxx
Oh Sheila wish i could give you a big hug right now, I’m so sorry to hear about your dad, you are not having a good time right now but hang on in there
Lots of love Sharon xxxxx