Hi girls. Congrats to all of you nearing the end of chemo, you are heros. Herceptrin is a breeze, believe me … I have 3 (think?) to go. You might get a drippy nose and a bit of joint ache, but please don’t fear it. Sharon, I am so glad they have you on treatment and pray that it will work. You will be sick of being told you are an inspiriration, but you soooo are. Will try to make Sat. Be great to meet you all. Take great care all, ands hope to see you soon
Hi Girls
Started tablets last night, no side effects so far. Took them no porbs at all, feel better now I know something is in my system.
Looking forward to tonight, got a lovely dress but I’m so bloated don’t know if I can wear it!!
Will be a great night with great raffle prizes and an Auction.
Looking forward to seeing all that are coming and getting a catch up, I’ll have to spread myself thinly, so many people to catch up with.
Lets arrange a lunch for sometime soon then again holidays maybe kicking in for some
Hope the girlies still on treatment are doing good, it’s a long hard slog but will get there girls, keep that positive spirit xxx
Hugs and best wishes to all Sharon xx
Hey Sharon
Best of luck with the Xeloda!
The only SE I’ve had during my first cycle is lack of appetite &
fatigue towards the end of week 2.
I’m sure they’ll build up over the next few cycles tho, so I’ve got my wee cotton gloves & udderly smooth cream on standby!
Have a fab night tonight!
Hxxx
Hi girls - just catching up after having been away on holiday last week. Went to Dumfries and Galloway where we were last year. Weather was amazing. Off to London on Wednesday to meet up with friend who is over from California.
I’m making the most of being off chemo, though probably will start again in week or two.
Sharon - I think about you often - you are so brave. I have been on Xeloda on and off over the last few years. I am usually OK on them, maybe nausea after morning tablets and a bit of tiredness. Hope you get some relief with these. If you feel up to a coffee some day, please let me know.
Would love to meet up with everyone again. Let’s try and get something organised.
Love to everyone
Sheila
Hi Hazel
I’m not looking forward to the sore feet, had bought 2 tubs of Udderly smooth cream back in Jan when I was supposed to be on Xeloda so have plenty, Oh I’ll need to invest in cotton gloves me thinks. So far I’ve had a bit diarrohea, have had loss appetite past few months that’s nothing to do with chemo.
Sat night went great, loads generous people gave in some great raffle prizes and some were auctioned, Fiona got the signed celtic ball which was fab. Total at end was £1300.50, they don’t know where the 50p came from as raffle tickets were £1 LOL.
Thanks again to the girls that came, it was a really good night and you all looked FAB, gorgeous xxx
Got Dr coming this afternoon as my tum area quite uncomfortable and sore, Distric nurse was out and said my tum is very distended.
Hope everyone had good weekend, it was great weather.
Lots love Sharon xxx
Hi all…Just popped in to say what a great time I had at Sharon’s party. I loved your wee dress you looked fab honey…Im glad they are getting you sorted out…good luck with doctor this afternoon. Hope everyone else is doing well many girlie hugs xxxx
Sharon, so pleased you had a good night on Saturday and raised so much money, so wish I could have been there, if I was I wouldnt have ended up in casualty yesterday after a fall on Saturday night, no drink involved!!!
hope the Doctor can give you something to help with your tummy, take care
love n gentle hugs
Carol xx
Hi Guys,
Sharon and Hazel you are both such great girls with so much spirit its just great. Sharon sorry to have missed your night but well done on raising so much money, lets hope it helps your fight. Hope your tummy starts to feel less uncomfy and sore soon. I did the race for life on Sunday and got a bit sun burnt even though I had sun cream on, have managed to raise around £250. All you guys were in my thoughts on the way round - finishing time of 33mins for the 5K!! Carol hope you are ok after your fall.
As some of you know my mood has been a bit low lately but I am slowly gettin back to my smiley self. Have been getting massage treatment for my breast lympoedema and am glad to report a massive difference, what a relief, the pain and swelling is much improved. Not such good news on getting some eggs frozen for possible fertility issues in the future, my oncologist doesnt seem to think it should be something I should be worrying about but then he is an old fuddy duddy plus the procedure of getting eggs from me introduces oestrogen into my body so he’s putting a block on my going down that road which has upset me a bit as the possibility of not being able to have kids in the future will always be there in the back of my mind.
Hope everyone else is doing well
Ali xx
sharon great news raising so much… looks like you all had a great time… hope your tummy settles hun xx
maybe see you and maggie for lunch at the weekend if you can make it… ali you are welcome too… but guess edinburgh is a bit of a trek from dundee.
glad to hear your feeling a wee bit better emotionally ali… think theres quite a folks who were diagnosed last year who are feeling like that at the mo… your oncs attitude wont be helping either… you can still ask to be referred to the fertility centre even if you decide not to do anything just yet but its maybe helpful to get information from them too as they do see lots of women in similar situations and it will maybe give you a fairer view to have both your onc and fertility docs input… but ultimately its your choice and not your oncs… he should be giving you facts and leaving the choice to you not dictating what you can and cannot do… fertility is a massive part of a womans identity and for some women the risks of being childless outweigh the risks of getting cancer… but only you can decide that not some doctor sitting in an office somewhere.
the breast lymphoedema wont be helping either i have that too and my boob seems to just keep on growing and growing… was expecting the rads to make it shrink not get bigger… who is doing the massage for you? is it the lymphoedema nurse? i may contact mine and see if she can help.
carol hope your doing ok after your fall and you havent done any serious damage.
Lxx
Lulu thanks for your advice, I think I have a lot to think about considering fertility etc. Yes it is my lymphoedema nurse who was doing the massage, my BCN said that doing this massage has had great results for all her ladies with breast oedema so its definately worth a try. Wont be able to manage your wee catch up with the girls this time as I’m a bit strapped for cash due to my sisters wedding in July but I would like to hopefully manage the next one if thats ok.
Ali xx
youd be more than welcome… ill keep you posted.
Hi
I am wondering how long you have to wait if you want a reduction on
your non cancer breast, to match the size of your other breast which
has got a lot smaller due to operation ?
Hi Ali
Glad you’re feeling a wee bit better emotionally. Your onc sounds a bit like mine, a right old misery! I think you should go with Lulu’s advice and ask for a referral to the fertility clinic and get all the facts. Fertility is a huge thing and although I have 3 kids and wasn’t planning on anymore I found it really hard knowing that the decision to have more had been taken away from me. My onc didn’t help, he asked how many kids I had, if we were planning on more and when I said no, he said that’s great one less thing for us to worry about … and proceeded to tell me that the chemo would destroy my ovaries – although they sprung back to life last month which was a bit of a shock!
Yvonne – sorry I don’t know about reduction options. My boobs are pretty small and lob-sided now, but hey that’s me I’ve got used to them. I don’t think I could face anyone surgery right now, although having said that my Dr had put in a referral for me today to get my gall bladder out 
Hope everyone is doing OK
Take care
Helen
xx
Hi Girls,
How Ya all doing? Not been on for ages as I’ve been mega busy trying to get things at work tied up before I go on holiday tomorrow.
Ali…good to see you posting and that you’re feeling a lot better, hope you can get the fertility thing sorted out soon. Good to hear the massage is working for you too…Poor Hazel’s arm looks really uncomfortable in all that bandaging…but then if it works that’s all that matters…
Helen, Hope you enjoyed camping with the family…the weather has been fab hasn’t it?
Carol, Hope you’ve recovered from falling over…sounds very painful. You were lucky you didn’t break something!!!
Sheila, Did you enjoy London?..you sound a lot better now…I hope things keep improving for you…
Annie, How are you recovering? any more trips down south? and how is the cat?
Everyone will have to say what dates are good for meeting up…I’m back on th 13th…The Edinburgh girls are all meeting up today and they normally make a date for the next one…I’ll get Lulu to tell me when it is…
Well…just about all packed!! D-Day for my bone scan is 20th July…back still sore but not going to think about it…I have loads of painkillers…what more could a girl ask for!!! I must admit my new, post chemo style of packing is very amusing!! can’t remember a damn thing that’s in the case!!..got a feeling I’ll land in Lanzarote minus my knickers or something…actually I’ll just go and check!!
Anyways…take care everyone, keep well…speak soon
Fee xxxxx
fee
i went to spain one year and forgot my bikini and my towel and that was before i had chemo. LOL have a fab time xxx
had a great day today out with the girls and was great to see Sharon looking so well and she is sharing a room with you and hazel in whitby. was lovely to see Kim again and donna.
we are thinking 17th for next meet up but havent decided where yet… maybe we should try and find somewhere a bit closer to the station.
Lxx
Fiona have a fab time in lanza sorry not been on for a while but still in agony with my back after my fall, getting peed off now as we have had to cancel another holiday!!!
Hope everyone else ok
Love
Carol xx
Hi Guys
Great catching up with you! Good luck Fee for your bone scan. You will get the results very quickly via your GP so no agonising wait. Have a great weel deserved break doll and hope to see you on your return. Hope you are feeling better soon Carol. I am still suffering from the fall I had Christmas week when I ended up underneath a bus in a blizzard! I find Tramadol quite effective for pain.
Well a packed wee time over the next couple of weeks girls. We ahve a big hen weekend for a really dear friend in Blackpool, followed by Lilly Rose’s christening. She is such a wee doll! An Amy got out of Yorkhill on Monday - she was in for 6 weeks! She will be seeing a lot of hospitals alas, poor wee mite. She might need a trachioctomy till she goes to school and she was born without an ear too. But she’s hime and happy!!
Sorry I didn’t make Sharon’s night - had an attack of diverticulitis, violently sick. I am on a whole load of stuff for IBS as well and they are keeping the symptoms under control. Might get surgery to remove the affected area next year, but am not uyp to it at the moment. The Buscopan and peppermint oil caps are working a treat for the spasms tho.
My big cat is just great Fee, he was like a kitten chasing a moth the other night! I cna now go away with an easy mind. This weekend everyone is going down south!! Thank God my cousin’s boy is staying to look after all all our pets! My cousin Jaquie is flying in from Brussels and hert wee girl flew in on Sunday. Great having all the family together with causes for celebrations too. About time eh?
Hope you are all well and getting better and better with each passing day. Enjoy this glorious weather too!!!
Love and lollipops
Annnie xx
Hi girls - not been on for a while. Had a good few days in London We did a lot of walking around - mostly in shops. Got quite tired and my arm with Lymphoedema become very swollen and sore. Think it was the heat that caused it. Been getting massage for this which seems to help. Going to get measured for sleeve - how glamourous is that!!!
Carol - hope your back is getting better. You must be so disappointed you had to cancel holiday. Will you manage to get away later.
Fiona - don’t know when your off on holiday but have great time.
Sharon - how are you getting on with Xeloda. I didn’t find it too bad.
Helen - how are you doing. Will you manage to get away this summer. Hope kids are OK.
Annie - have a great time with your family.
Saw Oncologist last week - getting Ultrasound and Xray this week.
He thinks fluid might be building up again.
Hope the sunshine comes back again soon.
Sheila
Hi Sheila, back is getting better, started physio, hopefully we will get a holiday in October or November. Hopefully getting back to work at the end of this month
sorry to hear the fluid is building up again, take care
hi to everyone else
love n hugs
Carol x
Can’t believe how quiet everyone is - must be on hols.
Weather here is so awful. Wish I was off somewhere warm.
Back on chemo again. He’s putting me on Xeloda alone, so
that should be better than having Taxotere as well. Hopefully
it will get rid of fluid in chest and stomach. I have been
very breathless and tired.
Carol - how do you feel about going back to work. It is quite
a thought after being off for so long.
Hope everyone else is coping
Sheila