Good luck going back to work Carol. Betcha it will be a relief once you are back in the swing! A wee bit of normality eh?
Shiela, sorry you are back on chemo. Is your new regime easily tolerated?
How are you doing Sharon? What treatments are you on now?
I will be starting physio soon, twice a week for an hour and hydrotherapy. I am certainly getting a bit of strength back and can walk up stairs as long as there is a rail. Did a bit of walking in Blackpool! We had a great time, family and friends all together (mostly) including my 3 wee nieces who are all born with 9 months of each other. Joolz gave up the chance of going to Vienna to come to Scotland! (Her parents teach in the NATO school in Brussels) She is with them now in the Highlands, where they have a house.
I get my last but one herceptrin on Monday, but might need surgery for the diverticulitis, although it’s is better now that I am on meds for it.
Have any of you girls been doing anything exciting? Not world shatteringly exciting for me, but I am taking my nephew down to Blackpool for his 21st next week, and Naidy (brother’s wee girl) is coming back with me for a month! She will be staying between me, my sis (her cuz Claire is her “best friend” and a wee jaunt up to Drumnadrochhit when Joolz is for the summer - they have a house up there. I am hoping to get a good few long weekends in to make up for last year! Just wish the weather was better, I had to put my down duvet back on last night!! Thought I wouldn’t need it till October!
Feels like ages since I’ve been on here!..Just back from holiday on Tuesday and had a wonderful time in Lanzarote, wish I was still there. It was quite a thought to come back…Ii did really well putting the up and coming bone scan results to the back of my mind…it’s amazing what being away from it all can do…However, not doing so grand at the moment…Got the wobblies big style and I suppose it was to be expected. My back is sore which is making me feel worse, and then I haven’t been feeling well…trying so hard not to panic but as Tuesday gets nearer, I feel ready to blow…trying not to take it out on those round about me too…was going to have a winge on facebook, but too many people who know me will worry if I go on saying this, that and the other!!! so you girls are getting it in the neck!! apologies!!! I’ve been mega down and angry today, Bloody horrible disease and the crap it brings…Thinking of Hazel and Sharon and Sheila who are having it really hard right now…wish It would all go away, wish I could make it better for all of them…x
Hope to meet up with you all soon…really could be doing with it, I missed Edinburgh yesterday as wasn’t too well…
Hi girlies, Fee good luck for tomorrow, fingers and toes crossed for you. Sheila and Annie, I didnt get signed off for work which im totally mad at as ive to go for an ultrasound on my back and pelvis as my left leg is constantly bigger than my right!!!
not on the forum as much now, but you are all in my thoughts
I thought I’d better let you know that our friend Hazel passed away last night (28th July) She put up some fight and yet still managed to smile and send kind thoughts to other cancer sufferers when she was fighting the big fight herself…Love goes out to her young family her husband her parents and all her friends
You are going to be sorely missed wee one…forever in our thoughts…RIP
I was really sad to hear of Hazels passing. This foud disease has messed so many people up and shattered families. RIP.
Any news Fee? Please let us know. Very worried about you!
I had the family up (for a funeral) nad they left Sunday evening. We had a great time all getting together… Funeral was friend’s dad (pancrea cancer) I was taking my nephew down for his 21st, but Mr Jameson went so quickly that we had to postpone. Trying to make it down for a couple of days at the weekent. I have my last Herceptin next Monday, so need to come back for that. Poor wee lad was sooo looking forward to going down. He will stay down for a week or so with my brother.
Fingers crossed for me girls - mammo today. Bood is still sore and hard - and I finished rads in Jan! Did anybody think the s/e would last so long. Also waiting for physio for the myopathy. I have to be very careful walking as I fall so easily!
Fiona - so glad you had a good holiday. Have you had results yet. I think it is quite ok to go through some bad spells after treatment. When you think what we have put up with, physically and emotionally, it is bound to take its toll. You are a fighter Fiona, and a brave person.
Carol - hope you weren’t too disappointed not getting back to work. You can just enjoy this lovely summer !!!
Annie - you sound like you’re having great time with family.
How is Sharon - haven’t heard anything from her for ages.
At hospital today. Xeloda not working, and lot of fluid in stomach.
Going in Friday to get that drained. I have to start new chemo so need to get another (3rd) line in. Doing that on Friday as well.
Next week starting on Myocet. Not much about on BBC site. Think it’s just the usual side effects. It’s quite scary starting something new. Having been on Taxotere for so long, although it was hard, at least I knew what to expect. I feel really emotional just now - I am crying at anything or nothing. Going to wedding next
Saturday and Dr Yosef kindly put off chemo till after that. Bloods were also very low so have 4 days of GCSF - that usually makes me feel bit better.
Love to everyone
Sheila
Sorry not been on in such a long time…I’ve been really upset about Hazel…It’s the funeral today, It’ll be very hard but there a lot of us going who’ve all met and knew Hazel so at least we’ll all the there for each other…
Annie, My bone scan was clear…I have osteophytes and arthritis, which I’m getting physio for…I hope your mammo went ok…and wasn’t too sore.
Sheila, very sorry to hear that the Xeloda isn’t working and I hope all goes well with getting the fluid drained, Sharon had it done just over a month ago and they got 5 litres, It was such a relief for her…I hope the Myocet works…I’ve never heard of that one before but there seems to be new ones coming out all the time. I hope the side effects aren’t too bad…you had such a bad reaction too the Tax lasts time didn’t you…I’m seeing Maggie, Kim, Helen, lulu,Carol, Sharon and Angela today…nice to see everyone again. just wish it was under better circumstances…
Fiona - hope all went well at Hazel’s funeral. It must have been so sad and a very difficult thing to go through. I don’t think I knew her.
Glad your bone scan OK. That would be quite a relief for you.
Was that “our” Maggie’s picture in Sunday’s Mail. They were amazing. Well done.
Fee, great bone scan wasok. Mine was too, some bone damage and wear and tear but nothing sinister. Got result from mammo today - within normal range. Got hardness and scarring but no cancer. Finished herceptrin last Monday, so the madness is coming to an end. Will sleep tonight! I started physio on Monday and that will be intense.
Shiela, how are you keeping? Havent heard from you for yonks. Any news on Sharon?
Annie - good news on bone scan and mammogram. That should give yu a wee lift.
Been in hospital ( AGAIN) for 6 days. Thought it was just overnight to get fluid drained but it turned out awful. 2 different drains wednesday and thursday but decided still lot of fluid left so had to put in massive chest drain in on friday. It was really painful, but fortunately my daughter Fiona there so they let her stay with me. I was going to my best friends daughters wedding on the Saturday but didn’t get. I am heartbroken I missed it. I feel as though I can’t make any arrangements as just don’t know how I’ll be feeling. Drain out Sunday and they were please with amount of fluid. Got new chemo on Monday then home. Usual side effects, but drinking loads and eating not much. Should be skin ad bone the amount I east but not hundgry. Got into trouble from Dr Y for not eating enough.
Everyone is so quiet just now. Hope you are all OK
SHARON - think about you often. Are you coping.
It sounds like your having a right time of things. Even worse when you cant plan anything nice because of appointments and treatments. Look after yourself though, it wont do you any good in the long run if you don’t eat.
How many sessions of the new chemo are you having?
I didnt know Dr Y was still working, last time i was in it was Dr Dunn and her team I saw.
Just to let you know, I saw Sharon a couple of weeks ago and shes having a rough time on the new chemo, but shes doing well and looking good.
Hi Sheila
I’m really sorry to hear that you’re having such a tough time at the moment and sorry that I’ve not been on the thread recently. How long are you on this new chemo for? You’re doing great managing to keep your fluid intake up, but try to eat something you need to keep your strength up and take care of yourself.
I know it won’t be the same, but hopefully your friends daughter will have a dvd of her wedding and you and your friend can have an afternoon in watching it together.
How is Fiona and your wee granddaughter – is she 2 yet?
Hi Girls…sounds like some of you are having a tough time…Sheila how are things today? Im so sorry you missed the wedding and that you had to get drains in…have they helped? sounds like a you are going thro’the mill at the moment. Just try and be good to yourself, when I couldn’t eat during my treatment Fiona told me to try Complan, unfortunately every time I went to the supermarket I forgot to buy it…but it maybe worth a try. Sometimes I would have a notion for food and found Japanese Miso soup with noodles in it done the trick…quite bland but when you don’t feel like eating it hits the spot…Hope you get some respite from everything this weekend.
PS…yes it was me in the Sunday Mail…me and my big baldie head staring oot’ scared the bejesus out me… and no doubt everyone else who saw it ha ha Big Hugs from Maggie take it easy doll xxxBIG HUGSxxxx
Sheila, sorry I’m not on the forum much now. What an awful time you are having, cancer sucks, so sorry you missed the wedding, you are going through so much crap just now, if there is anything I can do for you p,ease let me know, I’ve got shingles just now so not out and about much but nothing like what you are going through…
So sorry to hear you’re having a really tough time at the moment, I hope you’re trip into hospital has sorted things out for you. How is your Lymphodema? Are you having any treatment for it?
Sharon was looking really well when I saw her at Hazel’s funeral, she has had to have a break from chemo but went back on it last week. Me and Sharon are going to Spain in mid September, really looking forward to both of us getting away for a week in the sun.
Forgot to say … I hope I don’t sound morbid, but I’ve just bought a lovely book, called ‘Dear Mum, from you to me’ - It has a question on each page, going back to your own childhood, thru pregnancy and hopes for the future. Anyway I thought it would be nice to record everything about me and how I’ve felt about the last year and keep it for Seren for when she’s older. Hopefully when she’s older we’ll be able to look thru it together, but it’s something she’ll always have of me.