Sorry I have not been on here for a while. I still haven’t got my own computer sorted out.
Soo, well done on getting to the end of your chemo. Yes we will go out and celebrate, definatly. We should try and do it before your radiotherapy starts. I agree it doesn’t seem that long since it started. I hope you are still feeling ok. If you are back from your hols and reading this Janey it will hopefully help you see that there is an end to all the bad stuff. You just have to take it one step at a time. Hope you did have a great holiday with plenty of G&Ts, Mmm just the thought of it is good in this weather.
Deb, it is so good to have you back. Glad you are ok and hope the decorating is almost finished.
I am up for going to the discussion. Like Soo I will need reminding though. The fashion show info is found from the homepage events – special events link. I will print off what is says for when we next meet up. I have not looked but will check that there are still tickets when I have finished this message.
I can not meet this Friday but next week or any other evening is good for me. I don’t mind where we go either, I can drive Deb or we could get a lift. Janey, let us know when is the best time for you and we will get something arranged.
I am so sorry. Just re-read the older posts and realised that you have already started your chemo. Hope it went ok. Please let us know how you are and if you want to meet up for a chat.
Thanks for having me! Hol was good and just what we needed. Note pic posted with short hair and large G&T. First chemo was traumatic - not knowing what to expect I suppose and all the drugs I am now taking - feel really drugged and light headed and sickly. Got the results of HER2 test which is positive so Herceptin for me too. Think I am having the bloody lot - 4 x FEC, 4 X TAX, removal of remaining nodes at end of chemo, radiotherapy, tamoxifen, and now herceptin - is there anything else they want to throw at me???
Have wig ready, but now decided it’s not really me - any advice on local places to try in our area?
Would love to meet up - when is your next outing???
I can do Thurs evening. Would love to meet you all. It is nice to read your posts and learn that this chemo is do-able. I feel much better this week (thank god) but have cyctitus so have more antibox to go with the other 2 I am taking.
I would love to join you on 10th Sep (but I will remindining too).
Although I have lived down here for 7 years nearly I am not too familiar with places! Just let me know where and I will try and find you all!
Thanks for your support and last chemo Soo is definitely worth a celebration!
x
It would be nice to meet up - I can do both but if Thursday evening is best for all of us thats OK with me - Where do you want to go (any suggestions)- as always I can travel (I will get hubby to drive me this time if need be)
I must admit we are a bit crap at trying to meet up (aren’t we?)
Hope you are all feeling OK - does anyone want to meet at the end of the month - hopefully this will give us enough time to arrange something - all suggestions welcome
I would love to meet you all! Hair has now gone (that was hard) and getting used to wiggy and scarves. 2nd FEC tomorrow, I am keeping fingers crossed that it won’t be any worse than the first.
Jayney
x
Hi Jayney
Glad you are OK - hope your 2nd treatment went well. I could not get used to my wig so have been wearing scarves for ever (seems like it anyway). Hair has started to grow back now, slowly, but am getting a bit worried about the colour!! Also it does not seem to be growing as much on the sides (looks like I will have a Mohawk).
Going for consultation tomorrow (Tuesday) about when rads are starting - hopefully they will be next week but who knows. Starting herceptin on 17th August so hopefully my rads will be finished by then.
Debs/Loo
Hope you are still Ok - haven’t heard from you both in a while so hopefully we can all still try and meet up soon.
2nd treatment last week and feel remarkably good - too good to be true who knows??? 2 down and 6 to go seems a long road, but keeping everything crossed that I will continue like this. How did you cope Soo, was your chemo 8 cycles and did you do ok throughout???
How great that your hair is coming back - I’ve just had mine shaved!!! I will be so pleased when mine starts to grow back next year. Do you know about your rads yet??? I will also have to have herceptin as my HER2 test was postive!
Take care
Jayney
xx
PS - new pic is of me in wiggy (getting used to her now!)
Hi Jayney
Looking good in the wig!! Its quite a shock when it all falls out but then you get used to it and wonder how you will look WITH hair. So glad you are feeling good with your chemo - where are you going for yours? I went to Lister
I only had 6 FECs but felt OK up until the last 2 they were the worst but not too bad. Started my rads on Wednesday 22nd July and have a course of 18 so will be finished on 14th August then straight after that my herceptin starts on the 17th (more needles - ouch!)
Met some nice people on the way to Mount Vernon as I get picked up it is usually the same people and we have a good laugh. Treatment only takes about 2 minutes but the travelling takes the longest
Loo, Debs - if you read this hope you both are doing OK
Getting used to wiggy, in fact we are bonding quite well now. Head is still sore, stubbly bits coming out and feels like I’m lying on a hedgebog! I am having my chemo at the Primrose Unit in Bedford and think I will have my rads at Addenbrokes???
I am hoping that I can get through the next 2 x FECs and then 4 x TAX for me, it seems a lot to contend with. Just keeping everything crossed. Glad you started your rads yesterday - was all ok??? Do you have to go daily??? There is certainly no time to catch your breath with all this - will be interested learn about Herceptin as I also have to have that, but not until end of chemo and am coping with things in bite sized chunks!!!
Hi Soo and Janey and Debs if you are still around.
Sorry I have not been around myself for a while.
Soo, hope everything is ok with the rads. Glad that the trip there and back is ok too.
Janey your wig looks great. I have finaly got rid of mine as I now have a head of very short hair, the colour has been a big surprise though!!! Should be able to colour it though.
Soo, you are right, we are rubbish at meeting up. There is another thread for a meeting in London that I thought would be interesting but I am not going to be able to make that either.
If either of you fancy doing something next week though, maybe just go for a coffee. Not sure how much time you have though Soo with the rads treatment.
Let me know if you want to though and we can arrange something.
Would have been lovely to meet for a coffee next week but I’m up in Cheshire, making the most of my week 3 in readiness for swamp juice no 3 on Mon 3rd Aug - yuk!!!
It really gives me postive vibes to read threads from people who have finished their chemo - it seems more doable - how I would love to be in your shoes (bet you never thought you would hear anyone say that).
Take care and let’s hope we can meet for a coffee in Hitchin/Letchworth soon??
Nice to hear from you Loo - Cannot do next week during day (or until rads are finished in 3 weeks time) as my treatments are between 2 and 3 and I don’t get home until about 4.30/4.45 and I have to be available from 12 to be picked up (never know what time they will come)
Maybe we can do an evening?
Glad your hair has returned - how long did it take to come back - someone told me it is about 2-3 months
Jayney enjoy your time away - yes I have to have rads Monday - Friday for the next 3 weeks
Glad you are taking things in bite sized chunks as I feel that is the only way to cope
Happy to meet in an evening or when your rads have finished Soo. How are you doin??? Is it going ok???
No 3 FEC on Monday and seems like an age until it is over (16th Nov if it all goes to plan). I get really emmotional after I have had the treatment, then seem to pull myself together. I find myself dreading it and then hoping that bloods will be ok and it’s not delayed - crazy eh???
Doin ok so far, let’s hope it continues.
Love
jayney
xxx
Glad you are doing OK - seems like everyone has gone awol!! Sorry I have not logged on for a while.
Have now finished all chemo and rads and am nearly on my 3rd herceptin - had to have a port inserted as my veins were totally messed up - they tried 7 times to get a needle in on my last herceptin - went for bloods on Friday but they couldn’t even get it out of my foot so they had to go in for the kill in the groin (painful). Hopefully now that the port is inserted it will be alot easier.
Hair has also started to grow back so have been going out without head scarves. Went to my neighbours party on Saturday though and because I walked in with a lady that was lost someone thought I was a lesbian (soon put him in his place) good job I thought it was funny also been told I look like a football hooligan!!!
Any way hope all goes well with the rest of your treatment will start getting back into the swing of things by coming back to site more often and hopefully catching up with you.
Loo/Deb if you read this please let me know how you are getting on would love to hear that you are both doing well
You are racing ahead - well done. How were the rads??? My herceptin may start with cycle 7 of the chemo if all goes to plan, but have found the first TAX really hard. Aches and pains have been awful. My veins are also packing in, so will have to have a line I think. I asked about a port, but they don’t put them in in Bedford, they can maintain, but not insert so I would have to go to Addenbrokes or Lister. Did you have yours inserted at Lister??? Was it ok?? Is it a port-a-cath? Don’t know much about them, so any advice would be appreciated. I donn’t really want a line as I believe they are a bit restrictive and like you I have to have Herceptin for a year.
Glad you are doing ok. If you are planning a meet soon, let me know.