Hope everyone is enjoying the sunshine.
I’ve got my appt. through to see Prof. Drew or one of the team for 29th July at 2.20pm so hopefully scan be the same day.
Spent most of the day yesterday in bed asleep, but not feeling sicky just very very tired. Today I feel ok, still tired but manageable, gonna sit outside and read later.
Hope everyone is ok xxxx
Hi everyone,
hope you are less tired today Fudge, if not just give in to it. As long as you don’t have a temperature or anything, make sure you keep drinking water.
Hope it is going well for you Estelle and you are not suffering with the awful tiredness.
I have a kidney infection so may not be having chemo on Friday I am on strong antibiotics so fingers crossed they work quickly.
Has anyone heard from Lindiloo?
Love Debsxxx
Hi guys
Finding this a bit of a rollercoaster at the mo. One day I feel fine next I feel crap. Had a good day yesterday then I made a meal, had 2 mouthfuls and spent most of the night on the loo. Sickness is under control and feel tired but a lot of that is not being able to sleep for more than an hour at a time. Certainly makes a difference drinking plenty - I fill up a couple of 2 litre bottles and keep them in the fridge then try and work my way through. On the one day I didn’t I felt really tired so I know it works.
Debs - hope your infection is getting under control and you are feeling a bit better and Fudge - I am having round 2 on 7th so hope to see you again.
I am going to email Lindiloo now as I am getting a bit worried.
lotsa love and hugs Estelle xx
Hi guys
Good to hear from you both. Have you contacted Liniloo Estelle? Hope she ok.
Sorry to hear you’ve had kidney infection Debs. Hope its better now and your treatment is on schedule.
I’m back at work in the shop. Did a full day today. I enjoy the company of the other girls and providing I’m well enough its better than talking to myself at home!! I just wish people would leave me alone, I had two in today that wanted to hug me etc. If it wasn’t so hot I’d go back to wearing the wig at least you are invisable then!! I know they mean well… but! I don’t want to appear ungrateful but I just want to be normal for awhile!!! Lets face it if I still had my hair no one would say anything. Well some would but they’d be the people that I know well and I’d choose to talk to them about it! Funny one of them was someone I’d being avoiding and she reacted as I thought she would! Sorry to go on but they spoilt my day!
Estelle I have my clinic appt.on 7th July at 12.15 so I’ll try and pop down and see you. What time is your appt? My next and last chemo is 9th.
I have my appt. with surgeon on 29th july at 2.20pm.Asked for my scan at the same time so I didn’t have to make two journeys, got it same day but at West Cornwall!! at 9.30am,didn’t know they had a CT scanner!!!.
ok of to bed now another day tomorrow
xxxx
Hi
if you ring ct dept they will change it back to Truro. They send a team to Penzance so it is the same people.
Just seen on the news Michael Jackson has died, sudden and sad if it is true.
I think Lindiloo must be on a cruise, well I hope it is something nice that is keeping her away.
I am at Truro 7th so may well see you both.
Off to bed so really hope you are all well. With luck I will get my chemo tomorrow.
Love Debsxxx
Hi all
Did you get your chemo Debs? If so hope all went well and side effects arn’t too bad.
Funny enough the appt. at west cornwall suits us better as Bob only has to leave our shop for half a day rather than a whole one. I can go for the scan by myself as long as I finish there in time to get to Truro for my appt. Should be fine.
Be good if we can all meet up on 7th even just for five mins, we are always having to get back for the shop and Tuesday is our big delivery day. Hard to beleive that 9th is my last chemo!!
Hope you are feeling better Estelle.
xxxx
Hi everyone,
hope you are all o.k. I got my taxol on Friday only just managing to stay awake. I hope my infection has gone I have done the antibiotics but still feel rubbish.
Will be at clinic on Tuesday so looking forward to meeting you both.
Has anyone heard from Linda?
Love Debsxxx
Hi
Been away for a few days to visit family - think my Mum & Dad just needed to see me to stop them worrying so much.
My appointment is for 9.20 so don’t know if I will still be there, Fudge.
I have had word from Linda - she is fine but has had a few family dramas which need her attention, but she sends her best.
Feeling a bit strange as all my hair went over the weekend and although I was prepared it still upset me a bit. Still, at least it’s cool lol. Know what you mean about being treated differently - it’s only been a couple of day and I am feeling it - might invest in a wig so I can have invisible days too.
Feeling very tired so am going to try to get some sleep if the steroids will let me - hope to see you both tomorrow. Love & hugs Estelle xx
Hi all
Estelle sorry I didn’t pop down today - you may not have still been there - only just got there in time and then had to wait for blood test, then get back to Pz to let the staff go for late lunch! Debs went in before me to see onc so managed to have a few quick words with her. Hope it went ok today and you don’t have too many side effects. Its hard when the hair starts coming out and I found it quite painfullboth emotionally and physically. Mine is growing back quite nicely although not quite enough to go without a scarve or headband. I just hope it doesn’t fall out again!! I’ve found Buffs quite handy, Milletts sell them, you can use them as a full head scarf or thick headband,they are made of micro fibre so very light and you don’t get hot.
Good to see you Debs, hope you got your appts sorted. I’ve now got 3 on 29th July. CT scan in morning then Duncan Wheatley at 2.05pm to see results of scan and then surgeon at Mermaid centre at 2.20pm. Hopefully all will be good. Just get through my final chemo on Thursday.
Take care all
xxxxx
Hi Fudge,
nice to meet you and Mr fudge sorry we did not have longer to chat.
Hope all goes well with last chemo and scan, fingers crossed you dont lose any more hair. It looks good wearing scarf as headband, as you know that is what I did this last time around.
Estelle …will we ever meet? Sorry about your hair it is such an important part of our identity. I cried buckets the first time and so did Ian. This next time for me will be4th and I will still have a weep.
I hate it when I lose my eyelashes that I find really upsetting. Hope you are feeling o.k.
Take care.
Love Debsxxx
Hi all
Last chemo yesterday. All went well, although appt. was for 8.40am and my drugs didn’t arrive till 11.10! Never mind met up with alovely elderly gent who had spent 6yrs looking after his wife after a stroke and was DX with stomach cancer on 9th April and then his wife died on 1st May, yet he was so cheerful, you do meet some amazing people on these journeys!
Still got another dose of steriods to take this evening so tomorrow the full effects should hit home! I’m hoping as its the last one I won’t feel so frustrated!
Hope you are feeling ok Estelle and that side effects haven’t been to bad.
Thanks for the comment about my head scarve Debs, its good when someone else says it looks OK, gives you the confidence to wear it more.
Think we are in for a wet weekend ladies!
Love to all xxx
Hi everyone,
well done fudge hope you are feeling o.k. I must say you look good and I really hope your hair remains in place. I am not looking forward to losing mine for the fourth time! I know I will shed a few tears but if the chemo works and buys me more time it will be worth it.
Estelle… hope you are coping o.k. with your treatment.
Lindiloo… I hope you are well and ready to come back to us soon.
Well I had my 1st of the 2nd round ‘Brian’ came to have a chat and said my liver has been this bad before and treatment has turned it around I will be scanned after these 3 we don’t have time to waste if it is not working, so fingers crossed.
Weather changed can’t see St Ives from window today it is grey and miserable. A bit like me really.
Love Debsxxx
Hi All
Slept almost all day yesterday, taking it easy today and hopefully start getting back to normality from tomorrow.
How are you Debs? hopefully not feeling so grey and miserable! You don’t strike me as a grey and miserable person but we all have bad days and I know compared to you, Estelle and Lindiloo I’m having it relativity easy.
I now want to get over this stage and move on and get the surgery out of the way. Sometimes I still find it hard to realise it is all happening to me, usually after chemo so hopefully I’ll start being positive again very soon.
love to all
xxx
Hi everyone,
hope you are all doing o.k.
Yesterday was my first awake day, feeling more like me today but have so little energy I think I will be in big trouble if this does not turnaround.
I am at clinic again Friday for another dose. The chemo unit move has been canceled as they have decided to waste millions on moving things around latest thinking is they are doing a Hot and Cold zone, sounds a bit too bloody American for my liking. Looks like we could end up in the Tower block and I for one am not keen on that part of the hospital.
Oh well, moan over.
Take care speak soon.
Love Desbxxx
Hi All
Dear Debs - hope all goes well tomorrow and that you get more energetic by the day!! Will be thinking of you.
Hope Estelle and LIndiloo are ok out there!
I’m back at work now. We were busy today - selling wet weather gear!!! Working tomorrow and Sat. I’m feeling good at the mo. Feeling very positive and actually looking foward to op and moving on etc. Am I strange?!!
Cut all my nails as they gone weak at the tips and keep splitting. Hair is still there so far. Using rosemary shampoo and conditioner from health food shop, stimulates hair folicules and strenghthens.Gentle brown toner in next week I hope!
love Fudge xxx